Does anyone have experience of recovery from Aspergillosis. This one I have does not seem to be the allergic type but the mycelium have been found in the water washed from my bronchoscopy. I have been working with cranio sacral and controlled breathing( Buteyko) and an putting on weight and regaining energy. I started doing that before the diagnosis. I use oxygen on activity but at normal resting my oxygen saturations can be from 93-98. These readings sometimes are difficult to take as my hands get so cold..
Voriconazole is suggested but at 43 kgs I do not feel strong enough to deal with the side effects and as I'm putting on weight and feeling better I want to delay.
Sorry for all the detail but thought if I said what I was doing but would appreciate others experiences some of you may have information I have not yet found. Oil of Oregano has been suggested but I have not found much information.
With many thanks