Well today I have decided that pain has won the battle I will have to go to the doctors. I have had this for so long and the muscles are now coming out in a tight and knotted sympathy. My lower back around the kidneys has two very pronounced muscle spasms that hurt so much when I try to massage them out. The straw that broke the camels back was the gritty neck, spine and shoulders that locked in bed and left me stuck and unable to move with out excruciating pain a number of times.
I know a lot will be thinking why not go earlier? Well I have had such a problem to get them to do anything I feel it will be another waste of time. My old GP surgery treated both my lung and heart conditions without any problems or disputes on what was causing what. My new GP surgery when we moved meant I was having a number of Heart procedures and tests. So all they concentrated on was the heart to such a level that my breathing problems were diagnosed because of my heart conditions but did not once do any test on my breathing. My Heart consultant sent a letter to my GP's stating his concerns on my poor breathing, but still nothing was done! It was not until about 3 years ago I found I had worked with asbestos for over 10 years that I had a Spiro at the GP surgery to show I had RLD. After been given water tablets that hurt my kidneys and told to take for the month that they took me off them, then put me in touch with a consultant more tests and confirmed the RLD, Fibrosis, Paralysed Diaphragm and PH. Even after that the GP would look at my peak flow as a benchmark to my health? I have dropped 300 from my ICU stay in 2008 and peak flow is not a good benchmark for RLD?
I have had my pace and ablate cancelled because of the lung test results! They openly told me that they did not want to do any other operation to my heart as they do not think I would survive them. The Pace and Ablate was a back up plan and as risk free as it could be.
If I go and hear the mantra of "Sorry you will have to live with it" once more, I am going to go ballistic! Even I do not like me when I get to that level of anger. Maybe a couple of cups of camomile tea before?