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British Lung Foundation
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has anyone tried coenzyme q10 for copd or IPF help?

I wondered how you found it if so. I came across this link which is why I am asking. It says Pao2 was significantly improved by taking it, and if that's right, many here may be interested in finding out more.

ncbi.nlm.nih.gov/pubmed/824...

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I take 200 mg/day. Taken it for many years for general health purposes, though at a lower dose pre-COPD.

lef.org/magazine/2013/1/CoQ...

As a matter of interest tobacco is a major source of CoQ10 supplements . . .

mmm. I wonder if that contributes to copd starting AFTER stopping the cigs.

I get Jarrow brand which is Kaneka, yeast fermented form. Many are from soya as well.

I take 100mg daily (ubiquinol). There are two forms of CoQ10: ubiquinone and ubiquinol which is about 8 times stronger, or 8 times more absorbable. Also more expensive but worth it particularly for older people.

When i first started taking it it brought down a high heart beat by about 10 beats per minute.

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I took 3x30mg tablets cheapest out there and had it with meal or smidge of fat and vit c to enhance effectiveness, worked fine that way for years for high heart rate, until I felt ill all the time (thyroid was cause) so stopped all supplements trying to find cause and ended up in hospital with heart stuff back, couldn't take q10 with the med, then got stuck in the trap of illnesses and meds, and forgot q10, I know it made my blood thicker though, but am going to re start it. I just wondered about copd benefits.

Well I don't know exactly but it works on the mitochondria in the cells (= their engine) so probably enhances lung function at a cellular level. Given the strain on the heart that copd causes due to it having to work harder to pump enough blood/oxygen through lungs and round body, calming it down and making it beat slower seemed a good idea.

How do you know it made your blood thicker? I find that a bit alarming as i have secondary polycethemia (too much haemoglobin) which makes the blood thicker so wouldn't want it thicker still.

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Hi, If you decide to try, first ask Dr to monitor you closely and see all is well. Hopefully someone with your condition can tell you how or if it affected them. If you research you find Q10 does interact with warfarin the blood thinner, makes it less effective, so it definitely has an effect somehow on blood, but how much so I don't know.

I was having regular esr and crp tests for a long time because of blood issues and it was higher then, but it may be that something in the ingredients was responsible, or another health condition that was brewing, I have a number of them now, and as you know esr and crp are only inflammation markers, not diagnosis's.

Given the fact q10 helped my heart for years, Im going to try again and see. Medical people don't often know about supplements and how they affect conditions, ask them but also triple triple check with research and get close monitoring until you are certain all is well, starting on smallest dose and going up from there as required. When I took it, I started on 30mg and when I got to 30mg three times daily I literally felt my heart change and get stronger, its the weirdest thing to explain, but I really did, That's why Im going back to it if I can.

I am sorry if my post alarmed you, but we do need to check interactions and effects, and be cautious because supplements affect our conditions as well, and are as potent as meds in many cases, and we need to treat them carefully too.

happy researching

Thanks for your reply lloegr. Alarmed was probably too florid a term - I do in fact already take CoQ10 (see above) and have found it helps heartbeat. My recent haemoglobin tests have been at top of normal range so it can't be affecting this too much. (The polycethemia improved hugely as soon as i stopped eating liver which i was doing a lot - so now its just borderline)

Interesting what you say about the warfarin though.

I know esr but not crp - can you explain?

Very much hope the CoQ10 works for you when you start it again. Let us know :)

Hi, CRP is C reactive protein which is an inflammation or infection marker but doesn't tell where it is in the body.

labtestsonline.org/understa...

hope this helps clarify

Carole

Thanks Carole :)

Hi lloegr

I am quite interesting in your post as I exercise quite often. What difficulties do you experience when exercising and what exercise are you doing?

Hi sokrakers, I didn't mention exercise and don't have a connection with that and q10 so cant comment on that side. I do what I can but having M.E means I cant go beyond a certain limit and certainly cant go full pelt as I have heart issues that are set off that way too, so just gentle unfortunately. not enough to call proper exercise. Sorry cant help. Carole

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Have taken CoQ10 for years - then again, there are very few things I don't take; vitamins, fish-oil,etc for general health, Glucosamine/Chondroitin/MSM & Boswellia for Ost and Rheum arthritis. Pro-biotic to help immunity and digestion and just trying celery seed and a rhubarb/dandelion concoction as a mild diuretic.

By the time I'm through that lot who needs meals? They must be doing something as am still moving around on hips that were condemned 10 years ago. I cost the NHS very little as all these are natural remedies - they cost me a few hundred a year but well worth it.

that's great but has anyone found it improved their Pao2 though.?

I've never had my PaO2 measured, as far as I know. Isn't that an invasive procedure?

I haven't had it either, but think its the one that's painful from wrist and so is preferred from ear. Its specialised, but if anyone has had improvement it would be great news for the rest suffering it too.

It's arterial and more accurate from the ear which i have once a year. But when i was in hospital last winter they said they would check my arterial gases and i was horrified due to hearing about the pain. But they gave me a local anaesthetic which didn't hurt much, then taking the blood was totally painless so i would always ask for a local now.

My husband has had cops for several years. He uses a bipap and oxygen. On a daily basis he struggles to keep his O2 levels at 88. However since he started taking ubiquinol three weeks ago his oxygen is consistently reading in the more d 90s even when he's been without supplemental oxygen all day! His episodes of shortness of breath have also declined.

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