Well, I have Bronchiectasis, and was diagnosed about a year ago under the Royal Surrey hospital, after having 3 years worth of lets wait and see attitude. The resp consultant there obviously knows nothing of Bronchi, so I was just told to take theophylline, and if it gets worse to go back and see him.
Anyway, I since moved home to a different borough, and my gosh, what an amazing transformation within the NHS. I am now under Frimley Park Hosp, and they really know their stuff.
I was tested for Cystic Fibrosis by this hospital, which I hasten to add was never mentioned at the Royal Surrey, and luckily the results are in, and I don't have it!! Relief!!!
I have to go back to Frimley Park at the end of April to get my other blood results and go from there. They think I might need another ct scan, as the Royal Surrey seem to have lost my previous CT scan (no surprise there) and Frimley can't confirm or deny the Bronchi diagnosis.
I have had a blood test recently for Theophylline levels, as I take Phyllocontin Continus, 1 tab twice a day, but the GP called and said it is still well below the guidelines. My result was 7, and should be between 10-17. I have upped the dose to 3 tabs a day, 2 at night and 1 in the morning until I get back to see the resp doctor at Frimley, but all I can say s, I am soooo glad I moved!!!
Keep persevering people. If you can't get a proper diagnoses or treatment, deffo ask for a second opinion!!