Hello Mary, my husband had that and diagnosis was obtained slowly but when he saw the Professor at Heartlands chest clinic things moved on apace. He was great and suggested a supplement N-acetyl cysteine or NAC. Apparently this used to be prescribed but Mrs Thatcher took it off the list. Check it out on google. It is good for lung problems. Apparently there is some medication that can stave it off but you cannot be out in the sun, and other things I can't remember now. Also your case has to be put before a committee to see if it would be of use to you. They denied it my husband but he didn't want it anyway as there were too many 'don't dos'
As an aside, we were told that IPF could be a rare side effect of statins which he did take but there was also heavy smoking to take into account though they said was not the cause.
A word of warning. When you have your breath test eventually do not overdo it though they do say 'keep going, keep going'. twice my husband had that happen to him. The second time started he tried too hard to 'help' the new technician and developed a bad cough on the way home from his appointment bringing up sputum and eventually caught an infection off me, eventually got the correct strong antibiotics - too late - next day he died of an aneurysm. Whether the horrendous coughing had to do with that I do not know nor would I want to now. So beware and any man aged 65-70 should ask for an ultrasound to see if there is an aneurysm.
I saw on TV there is a department in Stoke on Trent hospital for respiratory sufferers and that would have been good for us to have known as our critical time was over Christmas when everything around us (west midlands) was useless except for great Paramedics.