Just Diagnosed - Dealing with work

I have just been diagnosed with pulmonary fibrosis by CT Scan only, still waiting for blood and lung function tests. Question, how have others dealt with work. I find I am very distracted at the moment!

[sassy59]

Welcome to the forum, I’m sure you’ll hear from others soon. This is a very friendly place to be full of many helpful people. Xx

[peege]

It's no wonder you're distracted Bob-Dylan-Fan, a diagnosis of lung disease is very hard to cope with - I hope you don't work with machinery!

There are a few members on this lung patient's forum with PF or IPF so I hope they'll be along soon to offer more support.

It's great that you've had a CT scan rather than your medics relying on x-rays which don't show everything.

I believe (from reading here over the years) that you can help yourself in slowing progression by very healthy living ie healthy diet, healthy weight, quit smoking if you do, avoid catching colds which will possibly progress to lung infection, by practicing hand hygiene - all the things we learnt during this pandemic, get your masks out - exercise too - build that up slowly. Very importantly, get your flu and covid jabs up to date, you could also ask for the pneumonia vaccination .

Learn as much as you can about PF, knowledge is the key. There's good information on this site plus the helpline (details above) and do use the search box above for other members PF experiences. If you Google just look at NHS site.

I don't have PF although I do take a lot of vitamins to keep my immune system fighting fit. Wishing you all the best. Peege

sorry, that didn't answer your actual question did it. I recall forcing myself to work through the many chronic chest infections I had when health took a downturn which was really daft on reflection but I knew no better then

[Hidden in reply to peege]

Thanks for the reply.

[peege in reply to Hidden]

i just added an apology for not answering your question,

[Katinka46]

Welcome to this forum. There are several members here with PF. Do you know what caused it? It can happen without an identifiable cause.

I hope you feel comfortable with your doctors. I believe there are medications that can help PF. This is a very friendly and suppportive group. I am sure you will get good advice and information.

All the best

K x

[Izb1]

Hi BDF and welcome to the site x

[Alberta56]

Welcome to the site. I'm sure the ipf people will be along soon.

[Seaberg]

Sorry to be so late replying. I don't seem to be up to speed. However welcome. I have pulmonary fibrosis and luckily have an incredibly good medical team as support. Although my condition doesn't seem to change too much other issues get in the way! Breathlessness can cause you to panic - don't! Deep breaths and take it slowly. Otherwise I get dizzy and lose my balance.

I have been taking nintedanib for some months and have started to get more severe side effects. Loss of appetite diarrohoea and sickness but the pharmacist is ready to adjust the dose. It has been important to keep communicating with the medical team, not always easy but worth persevering. I do hope you get all the support you need and feel confident that you can approach people (like this forum!)

I am 82 and manage to get out, shop, travel (thank goodness for wheel chairs at airports) albeit slower than before, OK age may have something to do with it! It is natural to be anxious but there are people here ready to advise and support.

Sorry if none of this answers your question but all best wishes and good luck.

[Hidden]

thanks for the reply. Still in the waiting stage to find out the extent of the problem and what the treatment plan is.