I went to see Nurse today and no further forward. Inhalers they have me on are useless (Qvar 100 and Salbutamol) and last 4 weeks I have been so breathless and unable to sleep in bed so have been sitting up on sofa cat napping. Chris said today ' right that's it we are getting you to change doctor surgeries ' So will do that. Example today saw Nurse - Molly is her name. I only asked to see Nurse so that I didn't bother GP and she could give me advice on this.
This is how it went:
Hi Molly and explained to her recently diagnosed with COPD and my FEV1 reading was 73% (apparently that makes me mild/moderate). Explained I first became breathless after chest infection back in March and went to Hospital with Craig and they gave me chest x ray which was clear.
Couple minutes later Molly said ' How old are you '? 59 I say and she says no you said you are 73 I say what? No I didn't I said my reading is 73 and do I look 73 to you Molly? She wouldn't take her eyes off screen. Then she says have you had chest x ray. I say yes I explained that to you that I did back in March. Back to screen again.............. old Molly says I cant see it. I say it should be on there. Then she finds letter from Hospital and indeed chest was clear.
I tell her I was fine after that until 4 weeks ago when I got breathless and been that way ever since. Explained the 2 inhalers they put me on 2nd July. Showed them to her. She looked at them and said so how long have you been on them? Explained again since 2nd July. Couple of minutes later she looks at inhalers and asks............... so how many of these have you had? I say ' Don't know what more to say to you Molly - been on them since 2nd July ' She looks at them shaking her head and making a face which gets me worried. I ask should I be on them for COPD - is there a problem? She said yes these are not for COPD and I ask for inhalers that are. If only life was that simple eh? She makes decision to get me in for another spirometry test which is not for another 3 weeks. I tell her I don't really want to struggle that long with wrong inhalers as just finished 2 courses of steroid pills and don't want to play Russian roulette with my health. She said oh don't worry you will be fine.
I asked her when I could be referred to chest Consultant as think I would benefit from that and she said that they only do that when GP can no longer manage the illness. Surely that cant be right? That now leaves me thinking that when I am referred to Consultant that I am too far gone. I told her that I would like it confirmed if I have empysema or bronchitis and she said that it doesnt really matter as COPD comes under same umbrella. I have seen 2 GP's at surgery and they both tell me/treat illness differently.