My lung condition meant that I had to have an oxygen supply 24-7 set at 5lpm. I fought for and eventually got a portable concentrator that would deliver the same. It gave me so much freedom. My condition has recently deteriorated and I now need 9lpm. There is a portable device that will deliver the 9lpm I require but I have been told that I cannot have it as the contract between the health authority and the supplier is set at 5lpm. So to go out I without compromising my health any further I have to carry 4 bottles of oxygen that will last for just about 1hr. A drive out and about a visit to a gallery followed by sunday lunch meant 10 bottles. Not that great. Other health authorities will supply the 9lpm machine.
I have been told of course I can self fund the better machine but why should I especially when you consider that the cost between the 5and 9 lpm machines is only £150. or I could hire it at a monthly cost of £192. I am subject to a post code situation.
I feel I am a prisoner of my condition and shackled to heavy oxygen cylinders. I desperately need my independence and freedom to enjoy what time I have left, especially with my little dear granddaughter. Who needs oxygen when you've got a little Florence?