Help with heart failure diagnosis

[Garagegirl]

Hi first time posting

I just wanted to ask for people help on understanding my diagnosis

I had been under cardiology since 2013 got diagnosed with tachycardia had several tests before my operation I had a echocardiogram in June 2022 but wasn't made aware of the results until I was 37 weeks pregnant in October 2023 been abit of a roller coaster since then

Current medication

Furosemide 40mg

Bisprolol 3.75mg

Canderstan 8mg

Dapagliflozin 10mg

Spironolactone 25mg

Timeline of test

2013

Sinus tachycardia

2015

Sinus arrhythmia

2017

Hyperdynamic left ventricular function

Systolic antier motion of mitral valve

2020

Reduced ejection fraction 50%

2022

Left ejection fraction 45%

Impaired Systolic function

2023

Left ejection fraction 45%

Moderately diluted cavity

Septum dyskinetic

Apex hypokinetic

Inferior wall hypokinetic

2024

Ejection fraction 40%

Left atrium diluted

Left ventricul diluted cavity

Impaired diastolic function

Inferior vena cava dilated

Apex hypokinetic

Inferior wall hypokinetic

Dyskinesis of septum

I just on a whole wanted to know how serious this is as I'm 35 years old with 4 children

My mum died from heart failure at 50 i had a cardiac inherited blood test in February

Thanks

Sammy

[wattsy1985]

Hi Sammy, I'm not sure you will get the professional answers that you are probably looking for on here but totally understand why you have reached out, Have you considered reaching out to British Heart Foundation nurses? I've copied a link and pasted it below this will take you directly to the contact page. Hopefully they will be able to offer the guidance you are seeking

bhf.org.uk/informationsuppo...

[theonethatgotaway1]

Hi there Sammy. Each case is unique and there is no clear answer to your question. Myself I went down to 12% ef and there was nothing they could do. I prayed and asked for more time with my children. That was 2020. I managed to recovery after a while then on entresto my ef improved up to 44% then back down to 35% where it settled for a few years. I was on track. Symptoms slowly started to improve except chest pains. I had another child with a new partner. Recently though my ef has dropped to 29%. I am hoping it's just some fluctuation or because of the lazy winter months but if it's a 7% decline, then at this rate I wouldn't have long. So now they are going to fit a ICD.

Anyways. I think all heart conditions are very serious. It's not like many other organs or tissues where they can be easily replaced and fixed. But science is getting better every year. Your ef of 40% is still pretty good. It's when it drops below 35% is when they talk about other treatments like ICDs etc. So for now your meds are probably doing their thing of slowing the progression of heart failure.

I understand it's tough to get quick answers from the experts as they are so overwhelmed. I have been told to message on here for general answers off the people who are in the same boat. But for specific answers it maybe best to speak to the British heart foundation themselves as they have medical experts ready to answer questions and provide support.

I have older teens and a young toddler so i understand exactly how hard it is especially when your experiencing scary chest pains or symptoms alike. Palpitations etctect. The best thing i did was walking. Walking as much as you can each day. Anyways I wish you all the best. X

[honeybubs]

Hi Garagegirl, you are only 35 years old with children. You must get a CRT-D (cardiac resynchronisation Therapy Defibrillator) or equivalent to your specific heart failure. My EF was 35 and 2 years later it’s gone up to 54! I feel so much better. You definitely need a device fitted. Hope they deal with it quickly for you x