myocarditis and pericarditis

[Vonnie10100]

hey,

it was just a little message to say I have been diagnosed with both myocarditis and pericarditis. I am a single mum of a 3 year old. I do have support but it’s difficult to give up that independence. Anyway it was just to see if anyone experienced it and when they recovered and was able to return back to work? I have been told baby steps so complete bed rest for 6 weeks then little step by step.

my wee girl isn’t coping with mummy not being able to help her, anyone any ideas to help her understand?

Thanks

[PadThaiNoodles]

Kids that age are extremely adaptable. This will be nothing compared to the shock a first-born gets when another sibling enters the picture. 😉

[Westie2012]

Hi Vonnie, I had pericarditis a few years ago and found it very difficult to accept that I couldn’t do anything at all so that I could recover . When I was first admitted to hospital with pericarditis I wasn’t told anything about the condition or given any information when I was discharged . As it was close to Christmas and I thought I was all recovered I was rushing around getting ready for Christmas , everything was ok until Christmas Eve morning when I was very short of breath , saw my gp and ended up being rushed to hospital by ambulance seriously unwell and being admitted to CCU for a week , I had a very close call with my health . This could have been avoided if I was told I had to rest after my first admission . When I was discharged I was given strict instruction to rest completely to avoid pericarditis becoming chronic , my youngest daughter was only 9 at the time , her grown up sisters had to take her to school , hubby and our other girls had to take over everything at home . I found it very difficult to accept that I couldn’t anything at all especially when I started to feel better but if I did too much I ended up back in bed . It was so frustrating but essential . I felt guilty having to rely on others so much , I’m sure your little girl will understand , maybe just tell her that mummy isn’t well so has to stay in bed so you can stay at home instead of needing to stay in hospital, can she use a children’s tablet to do activities on or have books and toys, colouring or puzzles she can have and be next to you in your bed hopefully you have lots of help from friends and family . Sorry I don’t have much advice but make sure you dint make my mistake of doing too much as soon as I felt slightly better ,I learnt the hard way . Wishing you a speedy recovery , take care xx

[Vonnie10100 in reply to Westie2012]

Thank you so much! That sounds so scary. I’m a single mum but have support of my parents. Thank you so much. Docs didn’t want me to go home but I had too for my little girl. Did you recovery fully or have you still got issues? Can we connect? I’m really struggling with it all. Xx

[Westie2012 in reply to Vonnie10100]

Glad to hear you have your parents to help you and your little girl, I am recovered now but it took around eight months to be fully back to normal but I also have a pacemaker so I think that added to my recovery time . I’m only a message away anytime . There’s some really good support groups for myocarditis and pericarditis on Facebook which I joined , it’s good being able to contact others that know and can relate to how we’re feeling and what we’re going through . Take care xx

[Vonnie10100 in reply to Westie2012]

Aww okay that’s brilliant to know thank you. I have been told cause I have the two my heart is now at risk even once I recover. So kinda scared xx