Pulmonary Hypertension question [again!]

[puddy68]

Hi Everyone

Thank you for taking the time to read my post. I'm pretty sure I've posted about my PH before, but I'm having an anxious day and thought it might help to post.

I was in hospital a couple of years ago with flu and pnemonia, and an ultrasound on my heart picked up "mild to moderate Pulmonary Hypertension". I stupidly didn't follow this through when I was discharged from hospital, as I was also diagnosed with cirrhosis of the liver at the same time, and I became more fixated on that. [Although I know this is no excuse].

I'm finally trying to get my health in order - I'm seeing a specialist for my cirrhosis, and he has said that by doing all of the right things [no alcohol/good diet/exercise etc] I can manage this condition.

Now I'm doing more research into my Pulmonary Hypertension. I have no symptoms except for shortness of breath when having to climb stairs or a hill. Google has scared the living daylights out of me, however. I saw a cardiologist who said straight up that "my prognosis is not good", but didn't want me to get another ultrasound on the heart [last one 2 years ago when condition was picked up in hospital] until September, and didn't want me to start medication either. His letter to my GP said that my condition was not very severe, yet he still said my prognosis was not good when I had my consult with him [?!]

To make a long story short, my liver specialist has put me on Carvedilol for Portal Hypertension....he said this will also help my Pulmonary Hypertension.

I've organised a second opinion with a Pulmonary Hypertension Specialist at a hospital in Melbourne, instead of going back to the original cardiologist. Have I done the right thing?

Also, can Pulmonary Hypertension be managed with medication etc [I've really no idea how it's managed........I'm hoping Carvedilol is a good start]. What I'm really asking I guess is can I still live a long, productive full life with PH?

Thank you so much.

[Happyrosie]

pulmonary hypertension is fairly rare and along with your other medical history it’s really hard to make a helpful comment. You are seeing the right people I expect and you’ve posted in another forum where you might get more insight.