Hi Everybody, I don't think there's a. Med for. Braccicardia or heart failure is there?

[Goldengirl69]

I don't think there's a med for bracchicardia or heart failure is there ?

[Happyrosie]

hello Goldengirl (love the name,). You do seem to be quite distressed by your symptoms. We on this forum aren’t doctors so we cannot diagnose you.

It would be a good idea, I think, for you to contact the British Heart Foundation. Contact details on their website. I’ve not contacted them myself but other posters have said how helpful they are.

[Goldengirl69 in reply to Happyrosie]

Thankyou , but I've phoned them about 3 times , and. They not helping me . And the woman always goes in hurry. I feel I'm in Curse. 😪

[AuntyEdna in reply to Goldengirl69]

I called them once ( flying with Microvascular Angina ) and had a similar response , was told they couldn’t help so not sure what they help with🤷🏻‍♀️

[Goldengirl69 in reply to AuntyEdna]

Hello Auntie Edna, thanks for reply. I hope u get ur Angina under Control. 🙂

[Deejay62]

There are treatments for bradycardia and heart failure. Very good treatments. If you’ve been diagnosed, after having tests, you will be treated by a cardiologist appropriately to your situation.

[Goldengirl69 in reply to Deejay62]

Hello Deejay62, Thankyou for reply. Its nice to hear there are treatments for Bradycardia and heart failure . I'm waiting for a. Cardiologist Appointment. But I'm not very optimistic, been hospital a few times over the year, to be given just EcG , and bp done. It always , oh ur OK. But it not true. My doctor even say I got bradycardia. The NHS has gone so bad . To me it's non existence. . How are all u people on here geting good treatment ?? Or are u paying Private ?? Let's Hooe I get good treatment. 🙂

[Deejay62 in reply to Goldengirl69]

I’ve been under heart failure nurses and doctors for 20yrs so they know me. My heart is badly failing so are my lungs and kidneys. I have an underlying illness which originally caused it. I had to have various test to inform the cardiologist what’s actually happening to my heart. Only the past 5 yrs I’ve seen them 6 monthly or even less. Over the years it’s been once a year seeing them and heart failure nurse 6 monthly.

When you see the cardiologist they will explain more to you. Patients is the key these days. If you feel ill just keep going a&e tell them you’re waiting for cardiologist appointment. You can also contact the secretary of the cardiologist and find where you are with your appointment.

I think it’s a postcode lottery, some on here do pay to go private. Most times it’s the same cardiologist doing private and NHS work.

All the best.

[GosportNancy29 in reply to Deejay62]

You're right about the NHS postcode lottery. I was diagnosed as having left ventricular systolic dysfunction in March 2016 following a cardiac arrest and time spent in a coma with multiple organ failure and was never offered cardiac rehab, nor appointments with anyone on the cardiology team.

Seven years on, I still have no cardiology team and haven't seen anyone in the heart failure team.

[Deejay62 in reply to GosportNancy29]

You should talk to your doctor. They’re handing a lot of the decisions over to the GPs. Seems like you’ve been forgotten and your Gp should be your first point of contact to sort things out for referrals

[GosportNancy29 in reply to Deejay62]

That won't happen. He is as much use as a chocolate teapot. I'm originally from Hampshire where I was being treated for several serious medical conditions which I thought would continue when I relocated to East Sussex to care for a friend. The new GP has repeatedly ignored consultants' recommendations and refused to treat the conditions I arrived here with. I gave up asking him for any help years ago.

[Deejay62 in reply to GosportNancy29]

You should look around for a new Gp or write a complaint to the practice manager.

[GosportNancy29 in reply to Deejay62]

No local practice will take me on as they haven't caught up with new rules that came in years ago that got rid of fixed catchment areas. I have already looked around and hit a brick wall. I'm happy continuing to take care of myself without the GP's input as I have survived more than 30 years of heart failure without local support.

I'm preparing to move back home to Hampshire as I am more likely to get help there. It's no coincidence that Eastbourne is known as God's waiting room. I found out why they got that reputation when I moved here in 2014

[Goldengirl69 in reply to Deejay62]

I don't have the Strenght to look around for new gp, so I'll. And I thought of write to Manager , bug if whole of Doctors same , couldn't give a hoot, receptionists same . It likely all Superiors and Managers will be same . Thankyou tho. X

[Andyman]

I don't think there are meds for most heart conditions. But there are many that can be given to help factors that lead to heart condition. I have had a heart attack but my meds are not there to treat a heart attack but to reduce the risk of another. Blood thinners and anti inflammatories and oxidents and blood pressure reducers etc.

Non treated a heart attack as such but help reduce another.

I had a friend I cared for and he had a mountain of pills for reducing his risk of heart failure affecting his life too much.

[Goldengirl69 in reply to Andyman]

Hello Anyman, thanks for ur Reply . I see all ur meds are basically to stop another heart attack. Blood thinners , anti inflammatory, bp reducers . Do u mean all the pills afecthis life to much ? Or heart failure . Couldhe go out , I can hardly go out . Then, it's in a taxi . 🙂

[Andyman in reply to Goldengirl69]

What I'm trying to say is that pills are not a cure. Which was your question. They are to try to manage a better life whilst living with heart failure.My friend could go out yes. But with my assistance.

[GosportNancy29 in reply to Andyman]

I agree with you. Back in the early 90s, a friend of mine advised me to ask for an echocardiogram as I had all the symptoms of heart failure and my friend worked in cardiology (retired cardiologist living in Scotland). I have so far been refused investigations by every GP I asked when I moved house since then. I decided to look for ways to live with heart failure and managed to live more than 30 years with it.

[fairgo45]

There is a new drug for heart failure called jardiance if you have preserved ejection it is for diabetics but if your not diabetic it still works helping breathing I've found it useful

[GosportNancy29 in reply to fairgo45]

I have just checked the side effects and I already have a lot of those as symptoms of heart failure and uncontrolled Diabetes. Since I have heart failure, random dangerous levels of low blood pressure and type 2 Diabetes, I think I will give that one a miss.