Heart disease

[Trapper10]

Hi just looking for some advice my sister has just been told over the phone that part of her heart is not pumping as it should (no other explanation or words of comfort)Ive told her to try get a face to face consultation and take her husband with her as she probably won't take it all in. How else can I help.

Any advice will be grateful thanks in advance.

[Happyrosie]

British Heart Foundation helpline. But, you haven’t got enough information for them to give specific advice and help, in my view. So yes she does need a face to face nd with someone to help her.

[Trapper10 in reply to Happyrosie]

Thankyou for your reply I will be there for her and push for face to face x

[BeKind28-]

Hello

I do feel for your Sister not been given an explanation and just told this news

She does need to get a face to face appointment and have her Husband with her so yes encourage to push for that

Also she could speak to her Doctor with her Husband there while she is waiting to see if they can shed any more light as well as some reassurance

You are a great Sister and in this situation you are there for her , listen to her and even though I know you will be worried while with her stay positive by saying things like , everything will be ok , the things they do now and medications they have and so many with the same issue but living life to the full ( which they do )

Say things like if it wa something really serious they would have you in asp and even though it needs sorting it is positive that they are not saying you need to be in asp

So basically be there for her , listen to her , and while with her stay positive and make sure there is someone you can talk to and that you do while this gets resolved

Let us know how she gets on and they can do all sorts of things now and they do x

[Trapper10 in reply to BeKind28-]

Thankyou so much for your reply I will take on board what you say x

[BeKind28- in reply to Trapper10]

x

[Beatles1956 in reply to Trapper10]

You can always talk to us. Someone will reply, so you and your sister are never alone.

[Ptsc]

Hi, I have been diagnosed with atrial fibrillation and informed that the upper and lower chambers of the heart are not in sync, so the heart does not pump completely. I have been prescribed blood thinners as I was informed that any blood that collects in the heart but does not pump may get clots. Honestly, I am a little surprised your sister was not given any other information. I think your advice to her is correct, its very stressful to be diagnosed with a heart condition and it helps a lot if someone is with you to understand the information given by medical people. I don't think there is much else you can do, just be there for her.

[Coffeelover2]

I’ve found that my cardiology departments answer my emails. Takes a few days but they have got back to me every time I’ve emailed them. I’m sure she could phone them as well as email.

They should send a letter after a phone consultation and they should be uploaded onto the NHS app or Patient Access app as well. If she hasn’t got access to her medical records online, she can request her records via her GP.

[ChristianeL]

I have just received an information pack (for free) from Cardiomyopathy UK. I find their information brilliant and uplifting but realistic. You can order it on their website. They also run support groups.