AV Block Mobitz Type 1 in young people.

[NickI97]

Hi,

Never thought I'd be joining a community like this as a 25 year old but here we are.

I've been diagnosed with AV Block Mobitz Type 1 after I collapsed playing cricket in May this year and been referred to cardiology but there's a 9-month backlog and I'm beginning to feel very anxious about doing anything remotely strenuous.

Has anybody else got this condition and can offer any advice or support on where to turn to please?

Thanks

Nick

[Yumz199725]

I know what you mean, I'm 25 and have a long history of heart issues you can look at my bio if you want it's a long story 😅. I don't have the same condition as you but I just wanted to let you know your not alone on here there's alot of young people on here. A very warm welcome and hope other members come along with a similar condition and can offer some incite! 😉❤️

[Alixia]

Hello Nick, I also have intermittent AV block 2 &3. It is scary when you first get diagnosed, but you soon get used to it and carry on as normal. I had a 48hr holter monitor to help the diagnosis, and now have a pacemaker to help my heart when it’s beating out of sync. Does anyone else in your family have heart issues? I inherited mine from my mother.

[Deejay62]

Hi Nick welcome to the group. I’m 2 1/2 times your age. I’ve heard AV block Mobitz previously mentioned in my case because of the electrical disturbances that affect my heart which started as a child. I also have other things that causes it. Have you tried going on the bhf.org.uk website, that will explain it to you or even contact the nurses, their details are on the website also. You can chat or call. Hopefully others will come on later with the same diagnoses around your age. If you scroll up you will see some information on it. I just noticed that. All the best.

[SoThisIs_Simon]

Welcome Nick!

I suddenly developed and was diagnosed with a type 2 Mobitz at the start of August, and having considered myself a fit and healthy 50yo it was quite a shock. My GP was brilliant, organised an ECG at the surgery and I was fitted with a pacemaker a day later.

I found the information on the Osmosis site very useful in term of understanding what the issue was. This their page on the Type 1 that you have: osmosis.org/answers/mobitz-...

As others have mentioned the BHF website (UK charity) is also helpful.

Talk to family, friends, local support groups. I have found the mental side of things the most challenging to deal with.

Cheers

Simon

[Silvertail]

I have 1st degree AV block (and Left Bundle Branch Block). It is just noted on my records and otherwise not remarked on. I'm on the maximum dose of HF meds so I guess they think all is OK. However, if you lose consciousness, from time to time, you will probably need an ICD. Hopefully, you will not have to wait too long to get some answers.

[EMBoy]

Hi Nick,

Sorry you have developed AV block at your age - it must be very distressing.

I am a lot older than you, but had a similar experience. I had been rushing around a supermarket and collapsed when I was loading the heavy shopping into the back of my car. An ambulance was called and the paramedic spotted that I had an unusual heart rhythm which was later diagnosed as Mobitz type 2 and I was fitted with pacemaker the next day.

Please don't worry too much - Mobitz type 1 often does not need treatment, but treatments are available if you need them. However, you do need to be checked out properly by a cardiologist. I am concerned that you have symptomatic heart block and they're making you wait 9 months for a referral. Try to get it brought forward if you can, but in the meantime, take care, especially when you are driving.

All the best.