How long did your remote monitor take... - British Heart Fou...

British Heart Foundation

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How long did your remote monitor take to be delivered after your implant procedure?

honeybubs profile image
26 Replies

it’s been 10 days and I still have received my remote monitor yet. How long does it usually take to be delivered after the procedure, thanks, Joy x

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honeybubs profile image
honeybubs
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26 Replies
Deejay62 profile image
Deejay62

Hi I was given mine on discharge. That was almost 5 yrs ago. Hopefully someone who’s had it done recently will reply to how it works now. I hope you’re recovering well. All the best

honeybubs profile image
honeybubs

thank you, the pain is a lot better but I feel restricted with my arm and limited to what I can do I feel very tired. Haven’t had the replacement hob yet to cook as we’ve got an induction hob so I can’t cook yet. Not eating as much veg. I know I’ve got to be patient as it takes time but it is getting me down. In the meantime my 94 your old mum is deteriorating and I should be looking after her I feel so guilty. My sister has taken over while I’m like this so she does have someone. Hope you are ok too xxx

Thumper76 profile image
Thumper76 in reply to honeybubs

Hiya. I think it was pretty soon after that I got notified of a parcel to be collected at the sorting office but I was in hospital for a week after the procedure and ignored the texts. (Thought it was a scam because nobody had told me I would be getting a monitor 😂). When it got redelivered I had to ring pacing clinic to ask what it was for. Hope you feel better soon but it does take time. X

honeybubs profile image
honeybubs in reply to Thumper76

Thank you for letting me know. I’m not sure whether it’s his secretary as she isn’t sometimes very responsive if I email her or leave a/phone messages. She went on holiday whilst I had the procedure (she says) and then responded a week after I’d had the procedure which is ok if she was on holiday so I asked her about the device to plug in and she said if you haven’t had it in another week let her know so I’m thinking she was perhaps responsible for ordering it and forgot but it may not be the case? Hope you are ok x

Thumper76 profile image
Thumper76

Yes thanks. I bet it turns up soon 🤞X

Harveyone profile image
Harveyone

Hi Honey probably about two to three weeks.🦜🦜 time flies

honeybubs profile image
honeybubs in reply to Harveyone

Thank you x

Hylda2 profile image
Hylda2

left hospital with mine last September and cook oon an induction hob.

honeybubs profile image
honeybubs in reply to Hylda2

Hi Hylda2, my cardiologist said we couldn’t use it so I’m scared about it. We’ve ordered a replacement now so hopefully it will come soon. X

Lovedogs1 profile image
Lovedogs1 in reply to honeybubs

I was having a new kitchen when I had my pacemaker. We had already bought an induction hob. I was to scared to use it, and I still have it in the box upstairs. I settled for an ordinary hob just to be safe. Hopefully we will get round to selling it one day.

Hylda2 profile image
Hylda2

Mine said fine but don’t hang over it. OH has pacemaker too and cooks and he’s fine

Hylda2 profile image
Hylda2

BHF says fine as long as you keep a distance of two feet between you and hob. I always use back burner.

Di

honeybubs profile image
honeybubs

Thank you x

Horse6 profile image
Horse6

Yes I took mine home with me after I had the implant

Pouchielou1972 profile image
Pouchielou1972

Oh, I didn't realise sometimes you have to wait for them. I had my implant and when I was discharged the next day, they sent me home with my remote monitor.

fixedrider profile image
fixedrider

I had my implant as an outpatient. They held the monitor, which is a mobile phone running a dedicated app, over the new implant to pair them, showed me how to use the monitor, and sent me home with it (after a short wait to confirm recovery).

Dj1962 profile image
Dj1962

Hi..my wife's turned up about 2 months after she was told she was having one..🤔

Tigger_2 profile image
Tigger_2

HelloHow and when your monitor arrives will depend on the hospital and the device manufacturer.

Sometimes the monitors are held in the hospital store, sometimes direct from the manufacturer.

I didn't see a mention of your device make and type. This should be bon your discharge card.

Medtronic use UPS parcel service and UPS use text messaging.

Home monitoring is a mixed blessing and where I am, it is simply done to close down the F2F clinics.

There was nothing from the hospital on the change and nothing on what home monitoring does for the patient. The clinics were good but that was 18 years ago. They slowly got further away and less frequent until they stopped altogether.

Don't get too hung up on what you can and can't do. Most devices are well protected from everyday hazards.

Only the manufacturer can definitively tell you what to avoid.

As a rule, most things in the house, electricals etc., have to pass EMC testing and it always pays to buy established brands.

I do a lot of DIY, electrical and electronic work and have never had a problem due to interference.

An induction hob should not be a problem with normal sensible usage, but check.

The only thing to avoid is very strong magnetic fields but newer devices are MRI safe. Even an accidental brush with a magnet does not cause permanent changes. In F2F they used to do a magnet test that temporarily changed device mode. A short but odd sensation.

Good luck with all your activities and rest assured that you are part of a large and worldwide helpful community.

honeybubs profile image
honeybubs in reply to Tigger_2

Hi Trigger_2

I had a CRT-D procedure but wasn’t told anything else except it would come in the post. I was given a letter in a sealed envelope to give to my GP/nurse to check the wound in a week which I’ve been for. When he told me I was having the procedure he gave me a code but thought that was for our insurance. Thanks for your information and advice it’s been very helpful. X

Tigger_2 profile image
Tigger_2 in reply to honeybubs

Hello

Unless things have changed, you should have at the very least a long foldable card called a European Pacemaker Patient Identification Card to carry with you at all times.

It gets updated when anything like the generator is replaced.

I've found over the years that my cardiology team don't give out much information unless you ask. But of course you need what to ask in the first place.

I have only ever seen two consultants in the whole 18 years and that was all in 2005, one for the diagnosis, the other for a 6-month checkup.

Personally, I think closing the clinics was a mistake. It's bad for patients and staff. I quite enjoyed the clinics and the regional clinic staff got the chance to get out to local hospitals and actually meet their patients.

It's starting to show and I think morale is not good.

"Virtual Device Clinics" and convoluted electronic (pdf files) appointments are not for everyone.

honeybubs profile image
honeybubs in reply to Tigger_2

Hi Trigger_2

I was given a plastic card with info on to use at airports etc. on the pack it’s got CRT-D and reference numbers for the 3 leads in my heart and begin with PAS pacemaker St Jude on each and a different number for each one after this & date of implant.

I will just have to wait it out until I hear something. Thank you for your reply.

Joy x

Supergra profile image
Supergra

this had me a bit concerned. I had a replacement pacemaker fitted December 2020 and still no monitor. I ask every annual hospital appointment but Covid is the reason given why I haven’t received one. I had a home monitor with my previous pacemaker but it wasn’t compatible with the new one. Anyone else experienced similar? Many thanks for all the support

Qualipop profile image
Qualipop

My friend's husband was given his to take home with him.

Dogloverxthree profile image
Dogloverxthree

took mine home with me, and plugged it in straight away phone the clinic

honeybubs profile image
honeybubs in reply to Dogloverxthree

Hi Dogloversx3,

I think I will, I will ring tomorrow thank you xxx

Corty72 profile image
Corty72

I have a Medtronic app on my phone called My Care Link. It’s constantly monitoring me. No box plugged in next to the bed for me. Even tells you how long the battery lasts.

MCL App

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