Myopericarditis patience?

[OpenMind1]

Hi everyone. I'm 11 weeks from my initial admission to hospital with chest pain and raised Troponin (360 at peak). I don't feel really awful but I have pretty consistent chest pain/ pressure with twinges of pain that go into my neck and do seem to get really tired. I've been trying to do things in the morning's and rest in the afternoons.Anyway.. what I'm battling with atm is whether i should get on and try working. I deliver mental health training and have 2 back to back 8 hour days booked next week. I had a trop test yesterday that's at 29, it was at 33, 3 weeks ago so it seems stable but still 'leaking trop' as my consultant described it.

My dr advised i give things longer, my husband would really like me not to work but i wonder if I should give it a go and see how I feel? Have any of you experienced ongoing discomfort and raised trop? I would appreciate your thoughts on the extent of rest I should still be having, it's all taking so much longer than i expected

Sorry that's a bit if a long one but I really appreciate have this forum to share with. X

[Captain_Birdseye]

Hi,

I was diagnosed last July and I'm still experiencing issues, although I suspect the condition has progressed. I worked through the initial stages and I was told this hindered my recovery as I had a stressful job.

I started feeling myself around jan/Feb so that would have been about the 7 month mark. Recovery is normally expected in 3-6 months so technically it's still early days for you yet.

This isn't supposed to be doom and gloom for you - but I'm sharing my experiences. If you're doctors aren't keen on you going back to work, I'd strongly consider following their advice, or you could end up prolonging your recovery as I have done.

[OpenMind1 in reply to Captain_Birdseye]

Oh lovely to hear from you, that really helps. I don't want to feel like I'm being pathetic and don't want to hinder things in the longer term either. I run my own business so am finding it sooo hard not to want to get back at it, but what you say makes absolute sense. Thank you.

[Captain_Birdseye in reply to OpenMind1]

Completely understand the frustration... I was 34, recently promoted into a career defining position and I couldn't do it... I was gutted honestly.

I've made a move (for other reasons as well) - but I remember the injustice of it all and I hate saying to folk to try to take it easy because it is hard... but there's time to come back to it, and in your line of work, we'll always need people like you!

[OpenMind1 in reply to Captain_Birdseye]

Xxxx thank you so much. That must have been really awful for you. I really appreciate you sharing your experience, i know what I'd be saying to others in my position just so hard to accept it for ourselves ah !

[JS1001]

hi, how are you doing now? I hope you are feeling better. I am currently going through this , diagnosed with myopericarditis with trop of 360.

[OpenMind1 in reply to JS1001]

Oh gosh. I'm really sorry to hear this. How you doing? I'm still having ongoing problems.. trop been hovering around 30 for months and ongoing mostly mild pain. Most people recover within a few months though. The advice I recieved on here from some fab people was rest, rest, rest and when I gave into that things did certainly improve. Tough on your mental health though. Really hope you're feeling looked after. Feel free to message me. Take care.