Mildly fragile on my notes

[bhfels]

I logged on my nhs app last week to discover my GP has classed me as mildly fragile 4 days after my 65th birthday without my knowledge or even speaking to me I’ve got heart failure, my EF is about 36 I’m on the usual drugs including Entresto but I bizarrely have no symptoms. I play golf , and swim 0.5km ever other day , work in a stressful job and basically have a normal life. I bust my ankle 6 years ago when I fell off a step but that’s it , no other hospital admissions.

I’ve googled the electronic frailty tool on NHS England and I think my GP is in breach of contract as they are warned the tool is hypersensitive, can lead to over diagnosis, and incorrect care pathways so a scoring shouldn’t be done without speaking to the patient.

I’ve raised the issue and was dismissed with a it’s not important and you can speak to us if you must but the stress of it has given me palpitations as I’m worried about the impact on travel insurance as it’s bad enough as it is with a heart problem I’m heading to the USA later this year and this could force me to cancel a very expensive holiday if the insurance becomes prohibitive

How do I get them to review this properly? If it’s right it’s right but I’m really unhappy about the fact it’s been done without my input and apparently outside of guidelines

[10gingercats]

Three ideas come to mind. One is to contacts PALS and the other is to try Citizens advice as they have a lawyer consultation service for free Or you can consult another lawyer/solicitor for a few minutes free advice which they will usually give. You wil need to check before you speak to them if it is a solicitor who knows about this kind of thing.I have gone down this road and it is quite a good way to get a spot of advice before you go any further. I feel sure others will come up with other suggestions. You have to get this sorted.

[Milkfairy Heart Star]

I suggest you contact the Practice Manager and raise the issue with them.If no meaningful response make your complaint in writing.

Also contact Healthwatch for support .

healthwatch.co.uk/

[Ealing2022]

That must have come as a nasty shock. The first thing to consider is that everyone makes mistakes and GP's are under a huge amount of pressure these days, conditions under which mistakes can be made. Why not write a brief polite note to the GP and drop that into the Practice then follow up with a phone call in a few days? If its a mistake it is very easy to resolve, but if it is an accurate assessment then you may need to know more about the reason you have been classified that way. I hope it works out for you.

[Jako999]

I know the scoring system as I used to use it at work and it’s rubbish. When we were shown it during a training season at work there were about 10 of us in the room and 8 came out as frail including me. We joked about it as we said they would have to pension us off on early retirement as we couldn’t do our job any more an the one guy was only 18😳

I understand where your coming from, try and get it removed but I bet 75% of the population have the same problem but don’t even know.

[Aliceeliza]

This happened to my OH in hospital. He had sepsis and doesn't remember if they told hinm what the questions were for, he can't really remember any questions but he has been given a frailty s ore on his discharge letter. It infuriates me.

[Norton]

Hi

You can challenge this if you feel it is incorrect

nhs.uk/using-the-nhs/about-...

[bhfels]

I’m not sure how to do this but thank you for your comments. I did complain to the GP and they’ve apologised and removed the diagnosis/classification. What is very worrying though was how they said it came about. The prescriptions clerk accidentally ticked the box on the system they use -EMIS. Now I work with systems and I can’t believe that whoever has set that up has given a non clinical clerk the permission to lumber about in a patient’s records and amend them. Equally someone should be running a check on what she’s or anyone non clinical has altered each month and signing it off. It’s not the first time she’s done it , she once sent me another patient’s equipment. I dread to think who else she’s done something to. Time to get a new GP practice I think

[Yumz199725 in reply to bhfels]

Ah can't believe they made such a mistake and caused you unnecessary worry. So glad it's been sorted for you!

[ChoochSiesta]

That's a great result. You must be very relieved.