don’t suppose anyone would know roughly how long water pills (bendroflomazide) might take to lower potassium levels? Could it be days or longer like months?
Did anyone else get breathing issues on it like breathing being depressed? Heart rate going up on it too (but I reacted like that to my last tablet verapamil). I’m loathe to call up GP as I feel like I’ve not been off the phone to them this past two weeks after being in hospital with very high bp
Thanks
I was on spirolactone for a few months few years back and then they stopped it didn't need it anymore so I think it does take a few months to lower potassium. I'm on verapamil 40mg x2 a day what dose was you on sorry to hear affected you like that. GPS aren't very helpful with heart issues I went to mine for what I suspected was heart related and they did not have a clue.
hi, I’ve been given spirolactone small dose to add in if bp doesn’t come down (not sure how long bendroflomazide takes to lower bp). I think spiro raises potassium.
I was originally put on just 16mg of verapamil to ease into the straight up to 120mg in hospital and 4 days later again in hospital upped to full dose 240mg day 3 x 80mg and it hit me like a tonne of bricks made me very very unwellluckily back to normal 3 days after stopping. But I’m super sensitive to meds. Oddly it was to lower bp did nothing and instead of lowering heart rate pushed mine right up. Now the bendro is causing problems 😟
I wasn't even aware what spirolactone did so your probably right, I must of had low potassium. They increased your dose very quickly any reason why?? Sounds like it didn't have a very good affect on you. So what medication you on now??
Sudden hypertensive crisis, I see a cardio in st Barts for hard to medicate high bp and he knows to start me slowly and gradually increase (which was fine when bp was ok) but the hospital just wanted to get the bp down quickly. I’m on 2.5 bendroflomazide to start with now then spirolatone and ivabradene to add in. But bp just doesn’t want to budge for some reason and reacted bad to bendro already last year.
How did you get on with spironolactone? That is the medication to try and improve my cyanosis, by removing water and trying to get the gas transfer more efficient, from lungs to blood. I do need another blood test soon to check my potasium levels. They have gone up but when is too much potasium too much? The only issue is that you are a bit left to fend for yourself. Which is why we turn to Google which we should not do.
oh that’s interesting, I was wondering why my cardio had added in a another water pill instead of different kind of bp tablet… but I’m having low oxygen level problems too and something about ‘shunting’ which sounded like oxygen gas transfer from lungs to blood. That would make sense. I hate being given these strong meds becoming I’ll with them and as you say you’re left on your own. GP can’t really help as they’re now relying on cardio for prescribing advice but you can’t contact them or it takes weeks for GP to contact them
Yes I seem to have a leaky septum causing right to left shunt. Therefore I get cyanosis on exertion but then my oxygen level was always low. They let me out of hospital when I got to 92%. I just hope I can keep it stable or improve it because it looks like a heart transplant for me. They have already discussed my condition at Barts. So I have an exciting journey ahead.
I went to an emergency clinic appointment at St barts and my consultant changed my water tablet and dose I was amiloride but then was put on spirolactone 25mg didn't last long must of been really affective cause after few months didn't need any water tablets. Erm for me was hard because you had to take with food first thing in the morning and I'm not a morning person or a breakfast person so wasn't great at first but yeah once I got used to it was good. Have you asked your cardiologist about possibly being put on spirolactone???
did the Amiloride not agree with you or did I not do the job it was meant to do?
Probably wasn't doing what it was supposed to do.
Iam am already on spironolactone. Been on them for about 6 months. I take it at tea time, 25mg. Are they making a difference. Don't know really, I it is a funny thing to say but as my issue is mechanical. I think I will always have cyanosis. Until I get a heart replacement. That what I have to look forward to.
So do you need a heart transplant or valve replacement, I need the aortic valve replacement at some point in the future.
no at the moment it’s just mini strokes very high blood pressure and the oxygen transfer problems but they’re being investigated to see what’s causing it all lot of heart tests and scan to come.
Wish you well for when you get your replacement and hope that it will restore to you to good health.
You have so much to go through hope they find out what's causing it. Thanks that's so sweet of you, I hope so too. My leak if moderate to severe but from what I read on this forum I have to wait until its severe which I'm dreading. I do have few tests myself in the next few months hope it sheds some light on my breathless.
yes it’s always worse knowing you have to have something done in the future better when you find out about something and it gets done there and then no time to dwell. (I’m even like that when I know I’ve just to get a test done 🤦♀️). But hopefully when you do get it itll improve your health enormously. Good luck with the tests and that they show what’s causing the breathlessness. 🤞
Well at present it is stable but if I end up with heart failure then it looks like a heart transplant. Barts could not do the cone procedure so there you go. They could do the septum or shunt but that will play up with my pressures in the right ventrical. It is one he'll of a journey.
Yeah sounds like a very long journey ahead wish you all the best for the future ❤️
Well atleast I have some excitement when I retire, not. Bit fed up really. But there you go. Hope you get sorted.
Heart Rate and AF
heart rate 
High potassium and low resting heart rate
Heart rate 
Fast heart rate?
