If you have aortic stenosis, please sign this petition
Do you have Aortic Stenosis? - British Heart Fou...
Do you have Aortic Stenosis?
Written by
Cat04
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11 Replies
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Hi Cat04
Just asking. Do you know what this company is about?
Are they NHS or are they trying to get in?
I have had conversations with them before as an aortic valve stenosis patient. They are very on board. I’m a bit perplexed by their pathway.
Answer non politically. It’s not a trick question. I’m just intrigued.
Thanks
Maisie
Cat04 in reply to
It is from the UK heart valve disease charity, Heart Valve Voice.
in reply to Cat04
I know the company. I’ve even done an article for their promos!!
What I want to know is what they’re about. I’m not sure about them. Call me cautious or even a sceptic. I’m, BTW, all for innovation in science and especially heart surgery and research.
What I cannot get answers to is are they an American $ company trying to get in by the back door. There it is I’ve said it. 🤭
Cat04 in reply to
From all that I can see this is a UK based charity, also with a forum on HU under the same name.
in reply to Cat04
Thanks Cat04
I never got any further either😔!
Cat04 in reply to
You've got me searching now 🤔🤔🤔
heartvalvevoice.com/applica...
They seem to be lottery funded but do not have a charity commission or CIC registration number on their website - which is odd
richard_jw in reply to
A quick look at the accounts on the Charity commission site shows that the largest donor is A US company called Edwards Life Sciences which donated £207k out of a total of £310k in 2021 and and similar amounts in the previous year. Another large donor is CAF America which donated £55,912. CAF america is a company which apparently makes cross border giving simpler, so it's not a direct donor
That puts a different slant on it!
in reply to richard_jw
Thank you richard_jw
It’s been bothering me and that answers many questions.
Maisie
Signed it.
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