mild aortic stenosis

[nellielian]

just diagnosed with mild aortic stenosis. male, late 50s, otherwise healthy. seeking reassurance from others who have had similar experience as quite worried.

[Sunrise_]

Hi, Sorry to hear how worried you are feeling. l feel that perhaps, you can revisit your diagnosis with your GP to reduce your stress levels. Also, in the past I have found a free cardiac nurse line helpful to talk over my worries. Number is 03003303311.

Take care (-:

[MichaelJH Heart Star]

Hello and welcome to the forum!

The main aim of any treatment is to slow and even halt the progression of the disease. The first part is lifestyle changes such as a healthy diet (the BHF recommend a Mediterranean style diet), exercise as appropriate (your GP can advise), alcohol in moderation and absolutely no smoking. You may also be perscrined a statin and BP medication.

The stress ECG will provide your medical team with a better picture.

Relax. You have been caught early and worrying only makes things worse!

[Millbrook]

My mum is 92 and has moderate aortic stenosis. She said that she felt better and less breathless after she started taking 200 mg of ubiquinol daily.

In the clinical trial the dose for elderly prior to surgery was 400 mg.

My husband has Afib and I too have some heart issues and we take ubiquinol as well.

Perhaps you may want to do your own research.

pubmed.ncbi.nlm.nih.gov/327...

[MichaelJH Heart Star in reply to Millbrook]

If I am correct Ubiquinol is a brand of CoQ10. I was recommended this by a non-medical person for muscle pains from Simvastatin. It cost a small fortune and made not a bit of difference. Changing statin from Simvastatin to Atorvastatin cured the problem.

[Millbrook in reply to MichaelJH]

We take ubiquinol by Kaneka for the heart not muscle pains. COQ10 is a less bioavailable form. Coincidentally, my husband also had muscle aches from the statin he was taking. Changing from Lipitor to crestor got rid of the muscle aches.

[road2ruin]

I am not sure we are in a position to start potentially recommending medication!

Did they say why the stenosis was occurring? The reasons for it will affect the long term treatment. It is a very treatable condition though and as mention caught early they can monitor and medicate where needed.

[Maninblack]

My husband had aortic stenosis diagnosed in his late fifties. It was monitored and eventually he had a new aortic valve fitted in his late seventies by TAVI. I’m sure your condition will be monitored,.

[MichaelJH Heart Star]

A friend's mother had a heart attack over 40 years ago. A former colleague's father had a bypass around the same time. Both are now in their mid-nineties and doing well for their age. As I said dont stress but make any necessary lifestyle changes.

[nellielian]

thank you all for your comments. they have been very helpful.

[Bookworm60]

Hi thereI was diagnosed with mild aortic stenosis in my early 50s. I was monitored annually ( echocardiogram and consultant appointment) and it gradually moved to moderate then severe. I barely noticed as it was so gradual but certainly was slowing down and getting a bit breathless by that point. I'm now 61 I have just had an op to replace the valve. All good so far ! My older brother also has AS but his has stayed moderate and he is pretty much symptom free. So you should be regularly monitored and will get whatever treatment you need according to how it progresses. It is very disconcerting at first but you do adjust to the idea. I worked out that my brilliant surgeon must have replaced heart valves for another 30 people since he did my op 7 weeks ago...I think he does about 200 ops a year ! Don't be afraid to ask your consultant questions. Good luck ❤️.

[Fredders]

I was diagnosed with a heart murmur at 16 and was told to just get on with life. I was monitored yearly and eventually had an AVR at 52. Hopefully they will keep monitoring your heart now but there is a possibility you may never need surgery. Your best step now is to keep yourself as healthy as possible and try not to worry, I was told a lot of people have mild stenosis but don't know they have it. Mine was only diagnosed because I had a chest infection and my GP heard the murmur.

Wendy