new here

[Headcook10]

hello

Been struggling since diagnosis of heart failure

2 week stay in hospital diagnosed LVSD

Ejection fraction 10 %

many meds heart failure team on board

MRI reveals myocardial infarction unknown date and sudden death threat awaiting defibrillator to be fitted

Not worked in 5 months

My question is please does anyone have experience of claiming PIP

Personal independence payment and how successful we’re you

Thank you

[Ageingfast]

what I do know is that PIP is routinely rejected. So a second application is more likely to succeed.

I don’t qualify for PIP so I do not know the ins and outs.

Good luck

[Hidden]

I'm in the process of making an application, based around Heart Failure amongst other health conditions, and the little matter of having to retire due to ill health.

I still have a couple of weeks to complete the application, so I'm currently answering the questions and trying to makes a case that I qualify.

To be honest, I fully expect the application to be rejected, and then I'll appeal and hope for the best.

Good luck

[Hidden]

Welcome to the boards. Eligibility for PIP is based entirely on the impact of your health on your day to day functioning rather than what you have wrong or the clinical severity. They look at whether you can tend to certain aspects of your personal care and preparing a meal, and your mobility, scoring your answers against a list of descriptors that determine how many points you get awarded for each question. To be awarded standard rate care requires a score of at least 8, with the threshold for receiving enhanced being 12. With the mobility component, the thresholds are the same, but generally harder to achieve for many people unless they’re physically unable to walk more than 200m. Looking at the descriptors they use will give you some idea of whether applying for PIP is appropriate to you:

citizensadvice.org.uk/Globa...

Breathlessness and fatigue count, so if you can dress yourself without too much issue but then need to sit and rest for 15 minutes afterwards, or you get so breathless you have to pause when doing things or walking, that would be relevant. If it takes you much longer to do things, that would count to. It’s also about the help you need rather than the help you get: I get PIP primarily on the basis of inflammatory arthritis, and got points under the descriptor saying I need assistance to get in and out of the shower. I don’t have anyone to help me, but I routinely have to use the sink to be able to safely get in and out. Same with using the loo - I said I had no toileting needs, but on bad days, I have to use the sink to lever myself on and off. Thankfully, that bit came out in the phone assessment, so I got two points I wasn’t expecting there, as that counts as needing/using an aid.

If you do decide to apply for PIP, I cannot stress enough to get help with the forms. Many people that are eligible fail the first time purely because they’ve done the forms without assistance: from experience, how you word the answers is as important as what you say. There are key words and phrases that assessors will look for around your ability to perform tasks. Citizens Advice usually have people that are very experienced with completing PIP applications, so I would start there.

[VelvetSky]

I agree, always ask Citizens Advice to help you complete the forms. I’m older and they helped me to apply for Attendance Allowance. I thought I might get the lower rate but would have to appeal. Amazed that less than a week later I was awarded AA at the very highest rate, no need to appeal. This now makes me wonder if I’m iller than I think I am!

[Cherrelleford]

hey.

I have dilated cardiomyopathy with and EF of 15%. I got diagnosed last april and had my ICD fitted in the October. I have not worked since being diagnosed. I receive universal credit, through them I had a health and disability assessment. I will now receive extra money from them classed as limited work capability and work related activity payments. I did a PIP assessment and scored 0, plus if you look on the list of things that come under PIP, heart failure is not listed. Hope you get the answers you are looking for and all the best x