Hi, my name is Becky, I'm 30 years old and its my Mom that has Heart Failure. She has been diagnosed just over two years ago. She had a pacemaker and defibrillator fitted last March. She has her good days and bad still. I will be dipping in and out sharing our experiences, from both a patient point of view and family dealing with it.
I'm new here: Hi, my name is Becky, I'm... - British Heart Fou...
I'm new here
HI Becky and welcome to the forum, hopefully we can provide some help, personal experiences to assist you and your mum. T
Thank you for sharing, doubtless it will be helping others as well
take care
Mark
Hi Becky... welcome to our forum. There are quite a few of us with this device who share our experiences... both good, bad and funny ways that we have with dealing with our Condition
For example I gave my device a name " Kurt" to make the device feel more personal, make a friend, and what woman wouldn't want a Kurt on het chest 😁
Well after 6 months I am apparently a 1% er as one of my leads has come out... and the others are too tight. So now having to have a further op to put it right. So we have decided that Kurt he broken my heart... so when I have the op next week.... I will be coming back with Kate.... a girlfriend who will be loyal and caring and who I can depend on to look after me and my heart.😁
I try to make my son laugh so he doesn't worry about me too much.. . And it keeps me smiling too. Looking forward to hearing about your views as well as your mum's.
Aah that’s great. I gave my Capp machine a name of Logan after wolverine and it did help me ‘like’ it more😀 I have sleep apnea after being diagnosed with hf. Apparently it’s quite common as hf changes your breathing at night. My husband couldn’t sleep cuz he kept worrying when I stopped breathing at night so logan has given us both some peace of mind. Anyone else there have same experience
That made me laugh x
How old is your mum. I was 49 now 53😀I have good days bad days to so it’s helpful to hear I’m not the only one