I'm new here: Hi, my name is Becky, I'm... - British Heart Fou...

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Hi, my name is Becky, I'm 30 years old and its my Mom that has Heart Failure. She has been diagnosed just over two years ago. She had a pacemaker and defibrillator fitted last March. She has her good days and bad still. I will be dipping in and out sharing our experiences, from both a patient point of view and family dealing with it.

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beckyfd2012
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skid112 profile image
skid112Heart Star

HI Becky and welcome to the forum, hopefully we can provide some help, personal experiences to assist you and your mum. T

Thank you for sharing, doubtless it will be helping others as well

take care

Mark

beckyfd2012 profile image
beckyfd2012 in reply toskid112

thank you

Heartlady1 profile image
Heartlady1

Hi Becky... welcome to our forum. There are quite a few of us with this device who share our experiences... both good, bad and funny ways that we have with dealing with our Condition

For example I gave my device a name " Kurt" to make the device feel more personal, make a friend, and what woman wouldn't want a Kurt on het chest 😁

Well after 6 months I am apparently a 1% er as one of my leads has come out... and the others are too tight. So now having to have a further op to put it right. So we have decided that Kurt he broken my heart... so when I have the op next week.... I will be coming back with Kate.... a girlfriend who will be loyal and caring and who I can depend on to look after me and my heart.😁

I try to make my son laugh so he doesn't worry about me too much.. . And it keeps me smiling too. Looking forward to hearing about your views as well as your mum's.

Horselover665 profile image
Horselover665 in reply toHeartlady1

Aah that’s great. I gave my Capp machine a name of Logan after wolverine and it did help me ‘like’ it more😀 I have sleep apnea after being diagnosed with hf. Apparently it’s quite common as hf changes your breathing at night. My husband couldn’t sleep cuz he kept worrying when I stopped breathing at night so logan has given us both some peace of mind. Anyone else there have same experience

DAFFODILLS profile image
DAFFODILLS

That made me laugh x

Horselover665 profile image
Horselover665

How old is your mum. I was 49 now 53😀I have good days bad days to so it’s helpful to hear I’m not the only one

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