I've had my ICD for 9 months now. I keep getting what can only be described as nerve pain in the left side of my neck, across my collar bone, back and left side of my chest. it's not all the time and stops me in my tracks. I've mentioned this to the heart teams but they are unsure what it is. Does anyone else get this at all. Thanks in advance
Written by
Cherrelleford
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I know how frustrating this lack of response can be. I had exactly the same with my spasms when lying on my left side after an ICD replacement. Everyone just ignored the problem. After a lot of hassling it was diagnosed as one of the leads into the ICD was trapping my phrenic nerve. A quick trip to the pacing clinic and problem solved.Do not give up and make a nuisance of yourself. It is the only way to get treatment nowadays.
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