Early repolarization (J wave) syndrome information

[RG72]

Hello all,

I'm struggling to get reliable information on Early repolorisation syndrome and am just seeking information sources that any of you might have so that I can find out a little more. I am in the predicament that I have sought a 2nd opinion and it varies a lot from the 1st opinion. My 1st opinion says that my condition is malignant and dangerous, but won't really give me any extra information (how serious/dangerous, what's the prognosis, what can and can't I do, etc.) other than a prescription of medications (he is operating in a second language, so it is more my problem than his! - I live overseas) they don't tell me anything. He also says that it is a hereditary condition, but no one in my family has ever suffered heart issues. The 2nd opinion says that in folks like me (long history as an endurance athlete) he can't see anything to really worry and it shouldn't affect my life. He also said that the medication prescribed by doctor 1 is over the top and I should be on fewer meds and lower doses. Doc 1 says I MUST keep to the medication, Doc 2 is in a different country (my home country) and is interpreting my test results online (but at least fully in my own language).

All of the above is just back and forth's in my understanding, but I'd like to find a few more sources of info or support in order to help develop my understanding and be able to ask more informed questions.

My only symptoms have been some severe episodes of arrhythmia, so far I have kept to the medication prescribed and the symptoms have massively reduced, but now that I feel normal I'm looking to see if all of the meds are still necessary, etc.

Any info or leads most appreciated!

[RG72]

Thanks - yeah! There's a lot to figure out and it gets quite specialist quite quickly. I think I'm safe from STEMI and pericarditis, these have never been in the equation and I've had an ECG and holter every 3 weeks for the last 8 months + MRI, CT, Echo, etc etc...

Doc 1 always seems to gloss over my athletic background - e.g. I have a slight LV enlargement. Doc 2 (Sports cardiologist) says it is completely expected given my background, Doc 1 says any change is unusual and therefore "bad".

Understood on the meds. I'm not considering stopping any, just Doc 2 says the dosages are higher (more than double) than would normally be prescribed and there is no clear reason why.

Maybe it is time for Doc 3 for some triangulation!