So I went to cardiac exercise test 3 weeks ago now, ordered because of describing symptoms while in gym class and exercise eg. chest pain and SOB. Got to the test and hooked up to ecg. The consultants reviewed my images from A YEAR and HALF AGO: My last echo and cardiac MRI... They aborted the exercise test before it started...
Told me the "mild-moderate aortic regurgitation" is actually SEVERE reviewing the images, and there's also subaortic membrane stenosis and he's referring for urgent surgical team MDT to discuss surgical options.
So for a year n half told to ignore symptoms because "you're too young, you're female, it's mild, it's probably anxiety".... To suddenly, "ooops, it's not mild but severe"... Same images. 🤷🏻♀️🤷🏻♀️🤷🏻♀️
Wtaf.
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Laow
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I bet its alot to take in after being told that previous you are fine. Some people on here I've seen it can deteriorate quickly in a short space of time.
It's only as they hadn't realised it was severe AR not mild. The being hooked up to ecg was quite amusing as I asked the nurse if they did them with tassels 😂 what's your diagnosis, so far xx
Hi, unfortunately women are not treated as well as men with HA as symptoms differ. If only I’d known to make a fuss after I needed CPR, taken to A&E and ignored and left on a trolley in a corridor for six hours only to be told there’s nothing wrong with you go home. Perhaps then I wouldn’t have gone on to have a massive HA some months later, which my Cardiologist tells me I had 5% of surviving.Women need to speak up to get the best treatment. Good luck with your further treatment🐥🐥
Omg so true. Women are disregarded as statistically men are higher risk of these things so they tend to overshadow women as "being anxious" rather than experiencing chest pain etc related to the heart. My age doesn't help as I'm not very old so that causes more disregard. But of a joke really that it still happens xx
Sadly that's so true. I was taken in after paramedics diagnose a heart attack; left on a trolley in a locked corridor for 5 hours after just a nurse decided that because i wasn't clutching my chest in pain or cold and clammy, it couldn't possibly be a heart attack. It was only when the day staff came on and unlocked the door that I begged to be pushed to the loo and told them what the paramedics had said that I got seen and admitted.
Yeh I almost drowned having an nstemi rescuing 2 kids but despite booked in by ambulance for cardiac emergency the didn't start appropriate assessment and treatment cascade til 2.5hrs in hospital... Still complaining of some chest pain and pain in left arm shoulder and jaw. But again, disregarded on basis of gender and age.
Which ones? The echo and cardiac mri were in QA Portsmouth and Isle of wight hospital. The exercise test was isle of wight but aborted as above before starting.
Now there’s a big coincidence, I was also treated at QA Portsmouth! I was also put on a geriatric senile dementia ward last year at QA. I was suffering from Stevens-JohnsonSyndrome, a very rare condition, the correct treatment for SJS is immediate admission to ICU on a burns unit, when I asked why I wasn’t being treated appropriately I was told as you were 74years old and we have no Dermatology beds at QA we didn’t know what to do with you. The death rate from SJS is at least 30 to 40 %. I discharged myself after 4 days as they refused me all my heart medication. It was so dreadful I concluded that if I was dying I would do so at home, not in a filthy end of life ward surrounded by poor demented souls screaming all night. I am looking to take legal action. Several Consultants have told me they don’t consider that hospital to be fit for purpose.
Strange we had similar experiences at the same hospital.
That must have been a terrible shock for you and completely unacceptable that the first reading of those images were so obviously incorrect. I hope you receive the prompt treatment you need.
Thanku. Yes a massive shock and no post diagnostic counselling offered or even a proper chat after telling me that... Jus left me wondering when I will hear anything 🥺
My symptoms have gone from bad to worse and I’m struggling to get anyone to do anything about it: I have severe symptoms. And very severe aortic regurgitation and nothing is moving quickly. My latest ECJ showed my left ventricle was under strain.
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