Advice

[12dr]

Feeling very unwell palpitations nausea and very breathless the consultant says I have mild resolving myocarditis and oedema 7 weeks down the line now 😔Any tips should I seek help again as been down a @ e numourous times !Feeling very concerned not sure what to do .

[Hidden]

Hello

I am sorry to see you are still having problems

No one knows I believe their own body like themselves

You do not sound happy at all and I would either phone 111 and ask for advice or as much as I know you possibly do not like the thoughts of going to A&E if you are unsure it is better to get checked out

Let us know how you get on x

[12dr in reply to Hidden]

Sorry for late reply I phoned 111 and they were gonna send ambulance but I refused as didnt want to trouble them .My cardiologist phoned today regarding my echo I told him how unwell I feel but I didn’t feel he was really understood to what extent I was feeling .I told him my heart has been more out of rythem and racy and he told me to come off all my meds ! I’m on 5 mg of bisoprolol and I’m very confused that seems the opposite of what I thought he would say I thought he may put me in another .I’m scared to come if them .I haven’t taken my evening one x

[Heyjude31 in reply to 12dr]

Hi 12dr i am so sorry for your continued worry. I went to see the Cardiologist after 9 weeks post cardiac surgery as i was having a number of problems with my medication. He told me to stop all my meds for 5 days and then restart one by one to ascertain which was causing me the problems and then it would be trial and error. I am still trying to get to the bottom of my mix of meds, but stopping them for 5 days did really help. I am not sure if that helps, but I hope you get sorted, I think we have to trust our Cardiologists. Take care, Judi

[Hidden in reply to 12dr]

Hello

I am glad you are alright well not alright but should have said replied I was wondering how you were getting on

I know we don't always think when they throw something like that at us but I wished you had known he would come out with that and then you could have asked why ?

I do not really have an answer as to why he has suggested this and I can imagine how you feel as I would to but I suppose all I can say is they are the experts and should know what they are doing

If you do not feel like stopping them tonight how about taking them and getting on to your Doctors first thing in the Morning asking for a call back and say it can't wait and see if they can explain to you and reassure you in some way

I know that is what I would do

Let us know how you get on x

[12dr in reply to Hidden]

Yes I have taken half my tablet tonight and will phone doctor in the morning .I mentioned about my tape that they said I had been put forward for and he didn’t seem to know or think I need it 😟I really think that with my heart jumping all over the place I do.I was told I had it in the pipeline 🤨Thankyou again for your messages x

[Hidden in reply to 12dr]

Talk with your Doctor , tell them everything including that you feel you need the tape and you cannot understand why they are saying otherwise and you want some answers because you feel that everything is not alright Sometimes you have to speak out and let them know exactly how you feel

I know you can do it and don't take no for an answer x

[Hidden]

Dear 12dr

So sorry you still have no answers to the problems that worry you so.

I wish I could take that worry from you but I’m afraid that just is not possible.

I also suffer from oedema and believe me it can , as you know, be very disabling, there are a few members on here that suffer with it as well, I’m sure they will come also to you aid.

Without it being controlled I feel really bad, from heart palpitations to that heavy weight around the heart.

Your questions need answers that only the medical profession can answer, but I’m just replying to say that I’m thinking of you and am wishing you well soon.

Take care

[12dr]

Thankyou for your kind message I’m sorry you have edema to and you are also suffering I spoke to my doctor today and he really didn’t know what to suggest apart from reduce my bisopralol but my heart all over the place so doesn’t seem to make much sense I haven’t taken to today and my heart rate already up to 120 /140 when up really don’t know what to do for the best .🤨x