Really fed up!

[francesw47]

Morning. I've been a member for quite a few years and those who know me will know that I have had a bit of a roller coaster, First AVR 2014 (my own valve was bicuspid), second AVR 2019 after over a year wait for surgery and by the time I got there was feeling pretty awful. Failure of tissue valve was due to Patient Prosthesis Mismatch - it was just too small for my needs, apparently. Second prosthetic valve was an Edwards Inspiris but op went badly wrong and there was a problem getting me off bypass leading to an emergency triple bypass to give my left ventricle some additional support. New diagnosis of heart failure. Recovery was slow but I did eventually get there (with another angiogram on the way as I developed chest pains). I have been monitored regularly and there was a bit of concern about the pressures across my aortic valve so been having 4 monthly echocardiograms. I was aware that something was not quite right again as I am breathless on exertion on both inclines and flat surfaces, fatigued like nothing on this earth, struggling with my weight again (possibly fluid buildup) and coughing. I was really really fed up to learn that my mitral valve is now regurgitating (moderate) and my left atrium is dilated. That explains the palpitations. So back to the cardiologist at the beginning of December - wondering what now?????

To say I am fed up is an understatement. The good news is that my aortic valve appears to be working ok and the EF appears to have improved again. All I want is to hear the cardiologist say 'see you in a year for review' and to go away and live a relatively normal life again. So its back to watching TV on catch up as I fall asleep early evening! Thankfully my wonderful family have rallied round once more, so I'm thankful that I am loved and cared for - but oh am I fed up with this!

So now the focus turns from my aortic to my mitral valve - anyone any experience of mitral valve repairs, including minimally invasive procedures?

[080311]

Morning francesw47

I am so sorry you have get another problem to face. I have read your posts through the years and you have been positive and so up beat. I too had Aortic valve replaced and bypass so read your posts with great interest.

I am sure you have a great medical team behind you and they will get you through this mitral valve problem.

I send you very best Pauline

[francesw47 in reply to 080311]

Thanks Pauline. Its a bit of give and take on here - sometimes we give support and at other times we need it. Its been such a source of both information and kindness, I'm really pleased to be here. Nothing much I can do now but wait until I can see the cardiologist - a discussion about where to next is important, and yes, the medical team cannot be faulted.

[Heartattackvictim in reply to francesw47]

Wise words francesw47

[Hidden]

Hi Frances, I've just been reading your history. You've gone through a lot and still with potentially more to come, along with HF on top, so I can fully understand you being fed up.

I've been in a similar situation, with surgery not working as hoped, so can relate to your situation. Also have HF (LVSD).

All my surgeries have been OHS, including a MV repair, which needs further attention, but, by a Minimal Invasive procedure. I have appointment just before Christmas to discuss options. I'm not at all sure on that outcome as it's tied in with an AV and Heart Shunt repair, but, I'm open-minded.

I hope your appointment goes well and continue being strong.

Kind Regards

Heed

[francesw47 in reply to Hidden]

Thank you. Let us know how your appointment goes....it can feel endless, which it does to me at the moment. Stay strong yourself.

[Hidden]

Hi Francesw47

So sorry to hear you have a continuing problem. It must be so disappointing for you to have to face all this again.

I can’t imagine how you are feeling and , yes, fed up, doesn’t really cover it does it?This forum is , as you say, here for us on good days and bad. The Hearties are here for you now and send all our love and support. Keep strong and I’m so pleased you have that loving family around up you too.

❤️Maisie❤️