Anyone on a trial for genetic heart problem drug

[Bigbrian]

I’m being put by on a 3 month trial for the latest genetic drug for inherited cardiomyopathy, is anyone else on it or on similar?

[Bigbrian]

Don’t know the specifics yet, just know it’s happening, I will give more info when I have it.

[WardijaWardija in reply to Bigbrian]

Hi. I have an inherited cardiac condition (HCM) so would be very interested to know what new drugs they are trialling. Can you keep me posted on your experiences. Good luck and take care.

[Bigbrian in reply to WardijaWardija]

Hi, as soon as I know I will get back to youThanks

[WardijaWardija in reply to Bigbrian]

Thanks, I'd appreciate that. May I be so inquisitive as to ask what your inherited heart disease is ? No pressure to answer . . . TC

[Bigbrian in reply to WardijaWardija]

Hi dilated cardiomyopathy with the lamin gene which is the problem

[WardijaWardija in reply to Bigbrian]

Thanks for sharing 🙂. Hope all goes well for you.