Flecainide and idiopathic pulmonary fibrosis

[Dylando]

I am 64 and was diagnosed with Atrial Fibrillation in 1996 which has been controlled with medication since then.I have emphasyma which is unchanged since I gave up smoking 7 years ago.I was diagnosed with idiopathic pulmonary fibrosis in January 2020 and put on long term oxygen therapy and anti fibrotic drugs.I recently read an article about Flecainide and it’s association with lung fibrosis.I saw a heart consultant yesterday and showed him the article and I am now being weened off the flecainide.IPF has no known cure and is extremely debilitating and has a life expectancy of between 3 and 5 years.Please read the article by looking on nobility.no .nih.gov or google flecainide and pulmonary fibrosis

[OrdinaryGuy]

Sorry to read about your complicated and serious health issues. I have been asked to comment relative to my atrial fibrillation experience and the regular taking of Flecainide. I cannot comment relative to your other illnesses and the need for the sound medical advice you will need on an ongoing basis. I have had A/F since 2008 and a number of events over the years. However following two catheter ablation procedures they have now stopped and I have not needed Flecainide for over a year now. You could check with the Cardiologist if this is possible for you to consider having this procedure and at least getting Flecainide out of your health situation. However I have to continue taking Apixaban (Anti-Coagulant) and for "safety" a small dosage of Bisoprolol. Keep talking to and communicating with your Consultants/Medical Team/ Secretaries as necessary and being "politely persistent" with them - to help yourself as best you can.