CRT-D devices: My dad is receiving a... - British Heart Fou...

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CRT-D devices

Kerry101 profile image
10 Replies

My dad is receiving a CRT-D device next week and I’m interested how it’s improved anyone’s quality of life and are there any issues to be aware of?

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Kerry101 profile image
Kerry101
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10 Replies
sherwood123 profile image
sherwood123

Hello and welcome, if you use the search header on the main page for CRT-d it will bring up lots of members comments.

I had mine fitted March this year, after having a bypass the device fitting procedure is easy and straight forward.

My heart was missing beats, well that’s what it felt like, now it’s running smoothly. I am also on meds, so it’s early days for me.

You will be given a booklet after the device is fitted, regarding do’s n dont’s

Kerry101 profile image
Kerry101 in reply to sherwood123

Thanks so much, I’ll definitely do that search and that’s great to know we ll get a booklet too next week.

Bigheart58 profile image
Bigheart58

Welcome, Kerry. I had one fitted in February and, along with the medication, it has allowed me to resume a fairly normal life in terms of everyday activities.

I recommend that you read the literature published by the BHF and, in particular, be aware of the driving restrictions following the implantation of the device. For example, in all cases of ICD implanted for sustained ventricular arrhythmia associated with incapacity, driving must stop for 6 months from the date of ICD implantation and any resumption requires the device being under regular review with interrogation.

I had to surrender my driving licence in March and I am still waiting to get it back!

In terms of other issues, I found that it takes a bit of getting used to, especially during the first few weeks. Sleeping wasn’t easy at first but that probably depends on what position your dad usually sleeps in. Basically, you aren’t allowed to raise your left arm above shoulder height for the first six weeks. Eventually, you get used to it and most people find they forget they have a device. I am only really aware of mine when I lie down, especially on my left side.

I hope the procedure goes smoothly and that your dad fares well with the device. It really is an amazing piece of kit!

Kerry101 profile image
Kerry101 in reply to Bigheart58

Thank you for the advice, it does sound like a pretty cool bit of kit, I’m hoping it gives my dad a better quality life with activities.

Thanksnhs profile image
Thanksnhs in reply to Bigheart58

Hi when my icd fired it was seven months before the dvla returned it, I hope you get yours back soon char

Bigheart58 profile image
Bigheart58 in reply to Thanksnhs

Thanks!

Bigheart58 profile image
Bigheart58

Here is a link that sets out the various driving restrictions;

gov.uk/guidance/cardiovascu...

Bigheart58 profile image
Bigheart58

The only other thing to bear in mind is that your dad might experience phrenic nerve spasms after his device is fitted. I had what felt like hiccups at night. It’s nothing to worry about but is slightly disconcerting and did stop me sleeping.

The ICD clinic sorted it out quite quickly by adjusting the settings of the device.

Kerry101 profile image
Kerry101

That’s really good to know and be aware of that happens it’d nothing to panic about. Thanks!

Harveyone profile image
Harveyone

Hi how is your dad getting on with his device.I've had one for 4 months &has improved exercise function and recovery.

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