Feeling very alone with all this, especially at his time. Has anyone else had similar symptoms to me?
I started with AF about 7 years ago. It was treated with (the dreaded) Amiodarone for 2 years, (worked well) but I had to stop taking it when I developed overactive thyroid. From February 2019 I have been in permanent AF. Back then, my GP referred me to Endoctrinology but they marked me up as inappropriate referral. When my GP rang to check they wouldn't treat me because of the Amiodarone! I was referred back again recently and had a telephone appt last week - thyroid very high and am starting on Carbimazole asap - the specialist said this will have been making my AF worse!
As well as feeling rubbish, because of the hyperthyroid, my breathing is getting worse and my ankles have started to swell at night. My GP did a BNP test and the result came back at 1700. He has referred me back to a Cardiologist but this was in March just before we went into lockdown. The waiting list was already 6 months so am not expecting an appt anytime soon.
My medication at the moment is Bisoprolol, Ramipril, Xarelto, Digoxin. I am due to start Carbimazole for the thyroid when I get the prescription. I spoke to my GP yesterday and he is prescribing Furosemide for the water retention. He also said this may help with the breathing - does this mean I have fluid on the lungs??
I feel so ill - sick, shaky and tearful because of the thyroid as well as the symptoms of the permanent AF - breathlessness, exhaustion and the constant feeling 'my heart is trying to escape', being made worse by the palpitations from the thyroid.
I hope that maybe the Carbimazole may bring some relief but I suppose what I am really asking here is the prognosis for the failing heart? I am so down with it all that I am assuming I am on a very limited timescale.
(I should add that I have seen 2 EPs during all this . I have a significantly enlarged left atrium and leaking mitral valve)
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