Confused heart? Wondering if anyone e... - British Heart Fou...

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Confused heart? Wondering if anyone else has hear or know of something like this.

PitaTakey profile image
18 Replies

I am 21 and having serve palpitations. When I have the palpitations I am weak, feeling faint, pain down left arm, chest pain and nausea. I have been to the cardiologists and had a 72hr tape which picked up bradycardia, first degree heart block, Wenckebach block and atrial tachycardia. I keep getting told that I have this because I did a lot of sport and it will go away when I stop sport but I have for a year now and its got worse. I also get told I will grow out of it. Guess I'm just scared of what might happen.

Anyone got any advise.

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PitaTakey profile image
PitaTakey
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18 Replies
Wmh79 profile image
Wmh79

I get a lot of palpitations it is horrible I know, it sounds awful and scary how your describing yours , the only thing I can tell u is the hospital and drs know exactly wat they r doing and it is a everyday thing . It is amazing wat they can do and wat they know now days , I would put my trust in them and take it easy I am sure it will pass . I know it is easy to say cause if your like me worrying makes it worse , so it’s Vicious circle 😔, hope thus helps a bit ❤️👍xx

PitaTakey profile image
PitaTakey in reply toWmh79

I'm just finding it hard to trust the doctors every time I go in and I see a different doctor they say something different and conflict each other. I feel like I can't trust the system anymore. I try and stay calm and not worry but I'm 21 this shouldn't be happening and I feel like the doctors aren't listening.

Wmh79 profile image
Wmh79 in reply toPitaTakey

I totally understand, I was told in January that I might of had 2 mild heart attacks , ( u either have or hadn’t )? So they put me on tablets and said cut drink out , I did but still felt not right, I then passed out and luckily a amazing dr in another hospital done other tests and found out I had cardiac sarcoidosis and am being treated now so u r right get a second opinion, I not saying it is anything serious, I very much hope and doubt it is but a second opinion can’t hurt . U know yourself and u won’t be able to relax and not be worried till then , hope this helps . Thought I would let u know as wat I said the other day made me think , I needed another opinion for me so u might to , sometimes they can look at u bein young fit and rule things out , hope this helps , all the best , keep me informed how it goes ( as I nosey too😂) 👍❤️🤞xx

mistymolly profile image
mistymolly

You need to find out exactly what is causing it. You are way too young to have these awful symptoms. I have a lot of your symptoms and was diagnosed with a myocardial bridge. Keep fighting and advocate for yourself. I wish you well and hope you feel better soon x

PitaTakey profile image
PitaTakey in reply tomistymolly

I am trying but I'm not seen as an urgent case so I am waiting on NHS waiting times to get seen by a specialist in the mean time I have had no sort of explanation. My symptoms are getting progressively worse. I am at a stalemate with the doctors.

mistymolly profile image
mistymolly in reply toPitaTakey

Keep fighting for your rights. Write to them, phone them and go to A & E as often as possible until they do something for you

AmFabulous profile image
AmFabulous

I think you should go to another hospital for another check up to know if the first doctor was right,because I never heard of sport being a reason for heart problems,I wish u all the best and safe recovery.

PitaTakey profile image
PitaTakey in reply toAmFabulous

I have already been seen by a private doctor first, he prescribed medication that made it worse. then when NHS appointment came around he said don't take them and we are going to start again. Now after the 72hr tape he has turned around and sent me to yet another hospital, it just seems never ending.

Espania profile image
Espania

I have left bundle branch block which causes me to get palpatations. It can sometimes feel very overwhelming and I understand how you feel. I noticed that when I drink tea or coffee it made them worse. I now only drink decaf tea and coffee. I still get palpatations but they don't take my breath away and over time I have become less panicky when they occur. There is no treatment for me so I had to learn to manage as best I can. Cardiologists discharged me and I'm not taking any meds. I have to carry a copy of my ECG as my reading makes it look like I'm having a heart attack. I've never come across anyone else with this condition. I just try to stay calm when they occur. Definitely get a second opinion if you have doubts.

PitaTakey profile image
PitaTakey in reply toEspania

I just know that this is not right and something I should be living with. I used to be able to run cross countries with no trouble now I can barely go up the stairs with feeling like I'm going to pass out. I need an explanation but no one is giving me one.

kathie659 profile image
kathie659 in reply toPitaTakey

I was passing out, put in hospital, told i was fine and discharged. A cardiologist visiting hospital heard of my case and asked if i would go to his office. He figured out that i had orthostatic hypotension and treated me. Symptoms gone.

He said to me..it is okay to accept a doctor telling you, you will only ever be 85% well, but dont accept them telling you 50% is ok. Fight for your health and you life....

I do fight now...and although i have several health issues? I will continue to advocate for my life and my health.

Sunnie2day profile image
Sunnie2day

I had rheumatic fever as a child and it developed into Rheumatic Heart Syndrome. I did participate in several sports all through school and after but I was told I had to be alert to symptoms that would tell me it was time to hit the sidelines. I'd catch my breath, the pain/dizziness/nausea/etc would ease off and back I'd go onto the field or into the water.

For you to have been off sports for a year+ with you feeling your condition is worsening means you need 'further investigation' from a cardiologist - this should not be happening to you if the cause was strictly down to sport.

I honestly can't imagine what sport you might have been active in to 'cause' your condition and wonder if your condition was actually a result of something like mine, or if it was congenital - you need better testing and more information.

I'm not medically trained, just someone who has had to make adjustments for over 50 years. You are too young to be essentially out there on your own fobbed off with 'Oh it's owing to your sports'. Even if you were doing extreme sports (I did, btw), there is a reason your heart would play up and it isn't 'sport' - it's something else going on and you need to know what so your future is better organised. And again, if it truly was something as simple as sport, stopping sport should have seen you improving, not worsening. Obviously you are not 'growing out of it'.

Please do whatever it takes to get to a medical professional who will do the investigations required (echocardiogram, blood work, CT scans, angiography) to discover what has caused your heart to go wonky, and formulate a treatment plan that will give you a reasonable quality of life. If I were your age and facing this I would even try to get a loan to pay for private care to get the medical attention so clearly needed.

PitaTakey profile image
PitaTakey

I have played and done every sport going at school and at uni. I would play sport every single day and have done since I saw knee high. I know when I do sport I make it worse. I just don't understand how someone like myself is going through this when I was that fit.

I am trying to get further tests but it is taking time on the NHS. I can't even talk to a doctor at the minute as I'm not with my previous hospital and not with my next one yet.

Espania profile image
Espania

You should talk to your GP about how worried you are and see if he/she can chase up your appointments and class them as urgent.

PitaTakey profile image
PitaTakey

Oh really I never knew she could do that. I will get an appointment and see if she can help me.

Hatchjd profile image
Hatchjd

My daughter 34 has occasional episodes of palpitations and a recent 24 hr holter monitor showed wenckebach with episodes of bradycardia into the 40’s. She was told by the cardiologist that it was nothing to be concerned about and no treatment was needed. litfl.com/av-block-2nd-degr...

Sunnie2day profile image
Sunnie2day in reply toHatchjd

Does it have an affect on her daily life? I know I had to be alert to symptoms and the advice was 'if you feel (insert symptom here), stop and see if it eases off. If it continues, call us...' - I'm older now (way, lol!) and things are a little more serious but back then it was pretty much 'Do what you can, don't do what brings on symptoms.' That advice worked very well for me - I carried two pregnancies to live birth, I was in a sea-going armed military force, I participated in extreme sports (rescue swimming, surfing, horseback riding including 'rodeo', etc) and did fine for decades.

Is it that way for your daughter, is she improving?

The OP here (PitaTakey) isn't improving, she's worsening - and that's worrying.

Hatchjd profile image
Hatchjd in reply toSunnie2day

My daughter notices the palpitations but they are just annoying. She doesn’t have any adverse effects otherwise. The seem to come in spells and she may go months without them. I don’t believe she relates them to any particular event or cause but feels them when she is quiet, no issues on exertion. She is a horse rider and competed in low level eventing all through her teens and early 20’s. Interesting connection🤔

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