Hello, new to this site and was wondering if anyone has had a similar experience to me?
I had a heart attack at the age of 37 and was eventually diagnosed with FH [my cholesterol was 11!]. I assume I inherited the condition from my father who had several heart attacks and eventually died from one about 4 years ago, I have unfortunately passed the condition on to my eldest daughter who is now 13.
I have been on Rosuvastatin as well as Ezetemibe for my Cholesterol for many years as well as Ramipril and Bisoprol and it has been managed around the 5 mark, still a little too high for me but better than the double digit back in 2007. I see a consultant once a year at UCLH in the lipid dept to keep an eye on my health, bloods etc. On my last visit my weight had increased somewhat and consequently my cholesterol had risen slightly, my LDL was 3.6. I had been told by the consultant that a new drug specifically for FH was on the market (Praluent is one name) and the base level LDL for approval was 3.4, therefore in theory I qualified but that the panel who decide would not allow it me as my cholesterol would fall if I lost some weight and that is the preferred method. This has caused me some anxiety and stress (not ideal with a heart condition) as I do exercise regularly and try to live well but at the age of 48 it's getting harder to keep weight under control to the extent they wish. I appreciate the NHS has budgetary constraints but as I had a heart attack so young and try to fulfill all the health criteria to prevent another that I should be given the medicinal help as well. This would not least alleviate some of the stress of constantly checking my weigh, something I never did before knowledge of this drug. Has anyone else experienced this? Or indeed are on the drug, as it would be good to know the qualifying criteria. Sorry for the long post and thanks in advance for any replies.