My husband suffered a heart attack followed by cardiac arrest on 16 July. We were lucky and got prompt attention from passersby and ambulance who shocked and ventilated him. He has a stent fitted spent time in a coma at Kings and is now home having also been diagnosed with diabetes. He has been walking for about 10-14 minutes a day and is fine on the flat. Yesterday when he tried to come down the stairs his legs went into a major spasm and he collapsed on the floor, other than the spasm he was fine. He is now effectively trapped upstairs. Has anyone else had any symptoms like this? Do I need to get hi. Back into hospital, he is adamant no ambulances.
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Good I really think that's for the best, I know it's scary after you get home and every little ache seems like it's the end but he's survived a massive event in his life. If he is willing get him to post on here, he isn't alone there are many on here who share their experiences, lend a helping voice and genuinely are interested in helping.
WOW ! - he has to see a Dr. Maybe even a home visit by the GP if that is possible. Sometimes the cocktail of meds that they give us afterwards can cause muscle spasms this may have just happened to happen when he was at the top of the stairs. The meds can take a while for the body to get used to. Maybe get him to try coming down on his bottom step by step.
Neuro replied to my email basically saying call GP or 111, so not a lot of help. In himself he is fine, on the flat he can walk around it's just when he bends his legs to walk down/up the stairs or put clothes on that his legs go into spasm as tho he is having a fit. GP seemed to think it was some sort of electrical fault between the brain and his legs. Until bloods come back they can't point the finger at a drug and until a scan can't point the finger at an underlying brain injury (this is obviously always the worry for someone who had to be resuscitated road side). Me I'm taking one day at a time, slowly working my way through the stages of grief, made it to anger!!!
I found the acute care of the NHS absolutely brilliant, without which I wouldn't be here!
The ongoing chronic care is unfortunately not in the same ball park, where the feeling of being messed about/ anger at lack or poor action you guys are experiencing at the mo is certainly something I can equate with.
Maybe take some comfort that if he was deemed to be at serious or imminent risk then he would be of higher priority and probably seen much quicker? That said if you need to 'escalate' things, I would be getting in direct touch with the cardiologist, bypassing (excuse the pun🙂) the GP and phone helplines!
He didn’t complete the course as some of the exercises he just couldn’t do due to his leg spasm problems. He has had an MRI and there appears to be no brain damage. He still can’t get down the stairs other than on his bum, going up he can sometimes manage one step at a time other times it’s both feet on a step and hanging on for grim death. He can walk for miles at a cracking pace on the flat, so we are no nearer an explanation and he is extremely depressed about the whole situation. Obviously he can’t get on a train or go up or down an escalator so can’t go to the office. Although I drag him to our local shopping centre and try and get him on the escalators. We have even done a couple of train trips which sometimes end in disaster for him when he needs more than my help to get off the train. Standing still is difficult as well as his legs start to shake.
Nope things still the same, had spectacular falls, still can’t get up and down the stairs. Showering is a nightmare.
MRI shows no damage following cardiac arrest. He stopped taking statins as he was convinced they were the cause. He is now on Ezetimibe a type of stain.
Speaking to a counsellor occasionally, having physio fortnightly.
Despite all this he is effectively house bound and very depressed, possibly suicidal but whilst his mother is still alive he won’t kill himself, so that’s one blessing.
Needless to say life is difficult, I’m still in the anger stage of grief and he is stuck in denial. I would like him to do some residential cardio rehab with some in-depth counselling but don’t think this exists. 😢
You would think so. We are seeing neurologist, OT in the neurology department, cardiolist and GP. He can get out the house with me, it’s stairs that are a problem.
NHS have supplied a counsellor who speaks to him on the phone occasionally.
We are supposed to have had a home assessment to see what help is available but still waiting as the NHS is strapped for cash and we are not an “emergency”
I guess the major problem is that we are nearly a year down the line and no further forward.
He is still working, luckily he can do this from home. As far as hobbies are concerned, golf, travelling, opera and visiting art galleries. All of which are out of the question. Oh and drinking fine wine!!!
Don’t think he can’t get out, he can if I am with him so we do go for walks.
It’s just the frustration of not getting an answer or timescale or even a “this is as good as it’s going to get”.
Hope you are doing okay
Hi Karen. Have just read your post. Whilst the 2 things you suggest are maybe not available you should be able to get home based Physio and home visits by a community psychiatric nurse/counsellor. Check out local mental health charities such as MIND or mental health matters. Also go back to GP surgery and ask for referral to cardiac rehab team who should visit to do an assessment and take from there. Not sure what age he is but accessing Personal independent payments may also help to pay for services. Or you may need to go through Local commissioning groups to identify support required. Your local Healthwatch maybe able to help with signposting to relevant places to get support.
In all this what about support for you. Do you have access to support network or respite at all. It’s important to look after you in all of this.
Take care. Zena