How do you feel about new treatments and ... - Beyond Psoriasis

Beyond Psoriasis

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How do you feel about new treatments and clinical trials?

MaddieHU profile image
MaddieHUHealthUnlocked
8 Replies

Are you aware of any new treatments being researched?

How do you feel about participating in clinical trials?

What would prevent you from being involved in a medical research study?

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MaddieHU profile image
MaddieHU
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8 Replies

I haven’t heard of clinical trials. I would participate.

Bumley profile image
Bumley

Have not seen any ads for Psoriasis

I would like to participate because there does not seem to be any new treatments or medication available

Only preventative would be distance trial centres

MCDW profile image
MCDW

Not aware of any trials. Would be wary considering the drug trial (for something different) which went very wrong and hit the headlines some years ago.

beaton profile image
beaton

I thought about this for a long time. I have never heard of any sorts of trials but would be interested in topical creams shampoos etc. Not keen on oral medication as I can react badly to the fillers.

linda-5502 profile image
linda-5502

I did nit know of new treatments fot Psoriasis. As i have psìoratjc arthritis wouls i be a candidate it would be wonderful if i was and i would accept. After all i have nothing to loose and everything to gain.

Nuttyshirlz profile image
Nuttyshirlz

I’ve never heard of trials or being asked have had them photograph for a medical journal thou if that counts lol

kay67 profile image
kay67

I'm not aware of any new treatments. If i only had Psoriasis then i would participate in clinical trials but i have other autoimmune diseases so my Rheumatologist probably wouldn't let me.

vascy_errol profile image
vascy_errol

Hi maddie

I have been involved with the BADBIER research (it’s called something like that) and I think it’s coordinated by Manchester uni. I’m very happy to participate which includes blood test, measurements and a questionnaire. My only criticism is the questions in the questionnaire are not very meaningful to my condition and many of the answers could be obtained from my medical records (which I have granted access). I’m sure the questions have a focus to reach a meaningful outcome/conclusion, they just don’t seem to be focussed on how a p sufferer is having symptoms or dealing with the condition.

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