Plantar palmar pustulosis

[Johnson-sara]

Does anyone on here suffer from above? Can you advise me on what treatment works for you. I came off ciclasporin and started methotrexate about 2 months ago but I'm not seeing any effect yet and the pain I'm in is monumental!!

[Betty-33]

I have stubborn flare up psoriasis over 4yrs now. At beginning, I was on methotrexate 25mg and ciclosporine twice a day. then I’m off from cyclosporine & I have been talking methotrexate 25mg, it keep the flare up at bay and stop the itching. Some part of my body cleared up but some part is still there. On my case, I learn now, it never goes away. Im always worried about the side effects of the methotrexate. At one point, I cut down the dosage and stop taking the medication for couple of month but it flares up again and I was put on methotrexate. I know every experience is different but in my case, not so much. I planning to go Israel and try the Dead Sea mud. I heard it works well.

I’m sorry I couldn’t be more help

[Johnson-sara in reply to Betty-33]

Mine only effects the soles of my feet and a patch on my palm. My feet are unbelievablely painful, shoes are an issue and I'm struggling. I'm on my feet all day at work when I'm not on sick and it's becoming very debilitating. I'm beginning to feel very alone with this illness!

[Betty-33]

Btw, methotrexate do take couple of month to kick in.

[Seahorse02]

Yes - I have PPP Ar 3 years now. It has both palms, sole, sides toes and nails of left foot. It has the heel and about half of right foot. But then I also have plaque on elbows and scattered on trunk plus inverse psoriasis in folds of skin on trunk. Add scalp psoriasis to all that. I have tried everything available on the market - literally. I am currently on the maintenance dose of cyclosporine plus tons of Vaseline plus Enstilar plus Halobetasol plus 1% Silver Sulfadiazine cream. I soak my feet in a tub of tepid water with a couple of tablespoons bleach every other day (per doc instructions). The plaque is better, the PPP not so much. Socks hurt, even plain water. As I’m sure you know, the Palmoplantar Pustular is the most debilitating since it affects our feet and hands. Unfortunately, all medications on the market are developed for PLAQUE psoriasis. Not enough people have PPP to warrant research (no money to be made) so there is no treatment specific for the PPP. Is anyone even certain PPP is a form of psoriasis or is it a disease unto itself that just happens to share some symptoms of psoriasis?

Hope you have better luck with treatments than I have had so far. May we both have brighter - and less painful - futures!

[Johnson-sara in reply to Seahorse02]

Yep it's agony, I'm concerned for my working future as at times I just can't get shoes on as it's just too painful. It must be a rare condition then. I'm really hoping the methotrexate kicks in soon as I've been told it's my last treatment option ☹️☹️

[Seahorse02 in reply to Johnson-sara]

@ Johnson-sara, when you’re told it’s the last option, find a new dermatologist. He/she may use the same medications you’ve been on BUT may administer in a different way. Don’t lose hope...... though I certainly know it is hard not to do sometimes. It’s painful for me too some days to put in a sock, never mind the shoe, and showers hurt. On those days/nights I personally soak my feet for 10 minutes in a tub of tepid water w/2 tablespoons of bleach, rinse off and REALLY grease them up with Vaseline and the topical medication of the moment (Halobetasol, Enstilar, Calcipotrene (sp?)) then put on a cotton sock. On top of that I put on those fuzzy colorful winter socks, THEN I put on my house shoes. I sleep in the socks. All of this is a terrible bore, but does seem to help the pain for me.

Best to you.

[jed16]

Methotrexate can affect the liver and other organs. My husband has recently had a liver biopsy to monitor the damage as he had been on this medication for about ten years. He also has check ups of his lungs and heart.

[Moody06]

I have had palmar plantar psoriasis for about 10 years and I am currently taking acitretin. These tablets have greatly improved my condition.

If you are a woman and are still within child nearing years you wouldn’t be able to take these tablets as dangerous to unborn children.

[Johnson-sara in reply to Moody06]

I've been on that and it never touched my condition so because it was so expensive I came off it.