Anyone have a child with behcets? my daughter is now 12, but got diagnosed with systemic JIA at 4 then changed to Behcets at 8.

[bec10]

[andreafm]

Hi bec10

I haven't got a child with behcets....but I just feel for you and your daughter to have been diagnosed at such an early age must feel rather devastating. Especially having been misdiagnosed and then diagnosed with behcets. It must be hard for your daughter to understand.

Maybe someone else on the forum has a child with behcets that you and your daughter can have contact with.

Good luck and best wishes

Andrea

[lesleyg]

I don't think I'll be much help but when I was diagnosed they mentioned a child in Scotland and child in Canada.

Lesley

[Sunset]

Hi Bec;

It is not the same for each child. Some of them, oral ulcers, outgoing light disease

There may be some skin lesions; others look or nervous system involvement

visible. In addition, there are differences between boys and girls. In Males

in General, will be more frequent and more severe lesions in the eye and the course of a disease observed.

The average starting age 20-35 ' of the disease.

Two gender are equal but heavier in men between continues.

Healthy living;

[bec10]

Thanks all for the replies - it was devastating and just keeps getting worse, I've been told she has severe behcets, hasn't been off multitude of meds since 4. Even after all this time have come to a crossroads and need advise from others who understand, on phone now so will log in tomorrow night on pc and try and explain my concerns, any advise gratefully appreciated. x