Profuse Sweating!! Why the daily, constant swe... - Behçet's UK
Profuse Sweating!! Why the daily, constant sweating?? I need to change at least 1-2 times prior to leaving the house or when I return home..
Apparently this is quite common in autoimmune disorders! I put up with it for years, having all sorts of tests with nothing abnormal discovered. Then this site happened and I discovered that lots of us suffer these dreadful sweats - and one of us (I can't remember who) was told by her immunologist that profuse sweating is a common finding in such disorders.
I'm afraid I don't have any answers or solutions, all I can do is empathise and commiserate. I seem to go through phases with my sweats, although there is never more than a couple of weeks when I'm clear of them. Apart from the inconvenience and discomfort I find it dreadfully embarrassing. I used to be a very 'huggy' person but I have to be very careful nowadays because there can be little worse than a moist hug!
Like you, I am constantly changing clothes, so much so that I now tend to spend most of my time in pjs for the freedom of movement and quickness of change... 
Not much help I know but at least you know that it's 'normal.'
Yes I really suffer with the same thing and I was told this is common with autoimmune disorders and also in problems with the nervous system....it's kindof a warning symptom that the immune system is playing up.
Also it can be as a side effect of Prednisolone so adds to this horrible symptom. What with this and now also going through the menopause, there's no hope at the moment.
Make sure you drink enough fluids as this can make you dehydrated and will actually exacerbate the problem, with more overheating, cramping, headaches and generally feeling yuck.
I even have a fan on in the bedroom during the winter and even throw my coat and jumper off when outside.
While others will complain soon that it's too cold in the UK....I will be thankful, there's a little relief 
Hi Hunni
I to suffer from these sweata which stop me even going out as its so embarrassing. It is literally like i have just washed my hair. People cant believe it. Its funny as it is not salty like sweat but just like water. My little girl used to think i was crying when it was dripping off my face. Now she says your sweating mummy again!! Nothing has helped me either its just put up with it i believe. I have had it bad gor 15 years now. Hope you have some good days with it and not every day a sweat day. Lots of hugs x Christine
Yes . Me too . Drives me mad and like the others I have had every test going . I am really glad you posted this problem though ,as no one has actually ever said to me it is common in auto immune disorders so it is nice to hear other people experience it too as everyone I know just thinks I am mad due to wearing short sleeved tops and no coat even when it's raining. I am thankful to my poor partner though who says it is like sleeping next to someone who's had a shower in bed . Thanks for bring this problem up as it has helped me too and good luck with it all xxxx
Hi I too belong to the sweat club! Can I add something to the mix? My sweats started badly when I was prescribed Levothyroxine for Hashimotos ( autoimmune hypothyroid) I had to stop taking them and I was sweat free....my dr had said its the change but with stop start stop start over months I had to say that the sweats were not the change as I would not be able to control them by stopping tablets ..
Right now I'm just sitting looking at the scream as I wrote lots about the above and stuff and then deleted it for not wanting to seem a complete nut nut!
I wanted to say my sweats are also brought on by reactions to meds and FOODS,,,, I eat only fish meat veg and some fruit.. ( there I said it) ...I don't eat anything else as I become really poorly and the sweats are horrendous should I be a bit naughty!
They started to build up a bit when the ulcers arrived..
And i agree with andrea fm on the above because of the symptoms of Behcets I have at the mo have upped the prednisalone. And wow I'm like a fountain!
Xx
Wow, this is so good to read that I'm not the only one. I sweat as soon as I start moving and then get into a shop and it's dripping of my face. Very embarrassing. It's horrid. Also because I've got bad acne and the sweat is taking all my foundation off, so I look red and sweaty and spotty. Great. Guess I have to accept it and keep towels and foundation with me.
x
Hi Josa Hun,
Just had a thought while reading your reply here. My friend had a very bad car accident and is badly scared on her face and she also has these heavy sweats (as do I). She uses a brand of make up called DERMABLEND that is made to stay on and cover things like port wine scars etc. Perhaps you could investigate this product and see if you think it might help with your particular skin problem ? She also uses a pre foundation preparation which helps it make a nice smooth covering and there are quite a few of these on the market to choose from. Maybe these little tips could be worth looking into to make your life a little more bearable ?
Big hugs hun, Good luck !
XX
Just thought of something else! It's happened a lot when I visit my sister as she lives in sunny hot climes! ...when its hot I'm obviously hot and sweaty..so not nice..but my temp is at a steady level..when I walk into an air conditioned shop or car ( though the car is a no no as it makes me cough so much) I whoosh from my feet upwards and sweat profusely..I carry a small hand towel in my bag and have a lot of flannels in pretty colours! Xx
So glad this question has been asked, I have never sweated so much as I do now. I used to be able to do a 2hr workout without a single drop of sweat, now thought look like I've stepped out of a shower as soon as I get in the car or even into work where there is no air con. It's driving me to despair 
Xx
I'm SO GLAD to hear I am not alone in my plight!! To Donna- I too have been on levothyroxine for about 6 yrs, but only sweat like this when unwell. Sweat 10 yrs ago when really sick and here we are again. I literally feel the sweat rolling down my spine and into my drawers! My legs and neck even sweat. Here where I live in Canada in the winter it gets down to 30-40 below 0 Celsius and I wear only a small thin t shirt under my snow goose because I'll sweat like a pig!! And you are all absolutely right it is much worse when on prednisone! I weaned off in July....now only on plaquenil, enbrel and still painkillers but no good relief as of yet. Hoping for some good advice in December when I go see Dr. YACIZI in New York
Forgot to mention a lot of painkillers can make you sweat....especially opium or morphine based. When I take tramadol I can fee the sweats coming on. It says this is a side effect on the leaflet and if you sweat easily anyway it makes it much worse.
No fun
Andrea
Out of interest dose anyone feel cold whilst sweating ? Most of my sweats are cold unless i am running a temp..... horrid, I use a muslin nappies they can be boiled so have a couple of dozen that I use once then wash. Just wish i could stop this 2 to 3 changes of clothes a day and at night well wash the bed most mornings. xx
hi yes i do i can sweat hot or cold day or night and when i do i just can not do any thing i get so tired i have to sit lay down or just fall to the floor ( dose's any one have this happen ) but all the rest is the same for me xoxox
Yes I start to shiver also once drenched because I am all wet. I shiver so I change then it starts all over again. I try avoiding getting to the shiver stage to save some clothes!
Yes I'm cold to touch. My face and back of my neck go cold first I sort of feel very wet and clammy.then the shivers..it's easier to deal with it all in doors .when I'm out I have to slap on the factor 50 so its like a layer of cream on your face the sweat can't get out my pours on face which is horrible but up in my hair line ears and jaw the water flows down!
My very worse place is in my groins ..I wear Cotten knickers as the leg holes soak up the sweat so when I'm out and nip to the loo I'm confronted with wet drawers! What with a spare pair and my flannel in my bag and factor 50 slapped on everywhere sex personified IM NOT!!! Haha x
Hi, I have only just recently been suffering with the sweating problem (all sweaty right now) I know I am a certain age and I have had a hysterectomy but blimey it's awful. We had a wonderful summer but I sweated buckets and had to have my hair cut short as it was really annoying me and made me feel really yuk!!!!!!...but now the cooler weather is starting I have not improved so I assume it's this Behcets problem...arghhhhhh....xxxxx
I have found Clonidine helps in this situation. Have a chat about it with your G.P especially if it is affecting your sleep. You don't have to put up with it.
Oh my gosh, the sweating is awful. I mainly sweat on my head, face, neck and yes, I too drip which is so embarrassing! What concerns my physician more though is the drop in my temperature during the sweating which drops from my low normal of 96.2 to 95.5. My hands and feet turn very cold and my toes have turned purple during these episodes. I was just wondering if anyone else has chronic low temperature and if so, what does your physician say about it. Mine is confused and really has no explanation, he just says I am very ill and he is worried. I have had Behcet's for many years but the low body temperature is somewhat new. Thanks for any replies!
Hi there,
That's something that I've never thought of doing, to take my temp during these episodes. Very interesting though. Here I am, almost a year to the day I went off sick...and still sicker than ever. I'm fed up. Spent almost the entire day yesterday in bed, stiff, weak and in pain. I could barely move and needed my other half to help me in and out of bed. The weird thing is that from a year ago I have a whole range of other symptoms and I'm sure my md must be tired of seeing. I know I would be! What is happening to you now that you are so sick and have your md worried? What drugs have you tried so far? I have been on prednisone with colchicine, then methotrexate, then imuran and now enbrel which seemed to have some effect for almost 1 month then dropped off. My specialist wants me to continue until Jan-the next time I see her! In the meantime sweat sweat and sweat, pain, stiff, losing my voice most days, sores and always bunged up beyond belief, tingling and numbness from elbows to fingertips(knees to toes sometimes as well) and can't raise my arms beyond shoulder level anymore(which makes many daily activities very difficult). Sorry...now that I've vented, I worry when I hear about people like you and wonder what symptoms you've developed. Was there a certain progression? How do you cope? I hope you are surrounded by supportive people
Most recently, I was taken off of Colchicine and Imuran 150mg when I began infusions of Remicade. With these low temp readings he is afraid I have an infection somewhere and could become critically ill by having an infusion. Although, I was having the same symptoms when I began the Remicade! It has been 6 weeks since my last infusion and I am very symptomatic now more than ever. The muscle and joint pain are back so I think I should argue for continued infusions as I do not know of anything else to try. Remicade did take most of my pain away and I was also beginning to feel well enough to leave the house (bed) more and more. Needless to say, I'm spending more time in bed again. It is the fatigue too that keeps me home bound. And, because I usually sweat profusely when getting dressed and ready for the day, I normally don't unless I have too.
Yes, I have a husband of 35 years who is very supportive. You asked how I cope, well I feel lucky that my children are grown and my husband is not demanding. I am thankful that he loves left overs and will prepare food for himself if I can't that day. I also decided a few months ago to do what ever I have to do to take care of myself. I used to feel so guilty, not so much anymore
Omg I do the same thing. I sweat all the time. I notice sugar makes it worse. I was at the grocery store and broke out in sweat for no reason.. it's so embarassing.
I sweat profusely, especially under the arms. I start sweating as soon as I leave the showers, the sweat is like fountain rolling down my body. My T-shirts become wet around underarms, and I have to change them many times a day (I always keep one in my bag). I'm a uni student and it's so embarrassing. My pants/jeans/chinos also gets wet at the back and usually I'm the last to leave the lecture to hide it or I mange to run to bathroom without letting anyone noticing. I'm so thankful to winters that I can hide those nasty wet t-shirts by wearing jackets( tell you what one of my coat has got white marks due to sweat). During my undergrad also, I had same problem, I remember how my formal shirt would always get drenched underarms before interviews ( nonetheless I was selected by IBM). I have worst experiences like when I was on stage anchoring for an event at college or leaving the class ( girls watching! ). Right now when I'm typing the sweat drops are rolling all the way to my waist. This profuse sweating has nothing to do with my nervousness or physical activity.
I stumbled upon this blog when I googled excessive sweating. I have Crohn's Disease and have never heard anyone else link heavy sweating to autoimmune. HOWEVER, I'm writing about your "sweat stains" on clothing. Silly, I know. Use white vinegar. You can add a cup to your wash and use it as a rinse agent instead of fabric softener and over time it will not only remove sweat stains and the smell, it will make your whites white again. You can also spray vinegar directly on sweat stains wherever they are just before you toss the item in the wash. This will speed up the removal of the sweat stains - even if they're yellow underarm stains. Also, when put into the dryer (or hung on the line) it won't smell like vinegar when the clothing is dry. I hope this helps a bit.
My doc diagnosed me with Behcets, i sweat alot too, but doctors didnt give much about it! Sweat usually produces alot behind the knees, forhead, chest area. Sweat can go really crazy just by doing simple task. I am also not sure if everyone noticed this, but i can feel my heart beats faster or louder when sleep / after taking meds. Meds that i eat, imuran, chochline, prednisolone. I am a new Behcets of 26 years old for 3 month treatment.
I wish all the best early recovery for us autoimmuners!
