Do Ataxia Uk do a medical card to carry for emergencies?
Not wishing to be depressing but a number of years ago the hospital where my dad died, said that any other members of our family with SCA1, MUST tell the hospital that they are very prone to aspirating after operations.
My dad was rushed into hospital with a blocked gut. The doctors decided to operate after a day. The operation went well but in the recovery room when they removed the tube in his throat, he aspirated twice (because of his weak throat muscles). He was then moved to intensive care and died 11 days later.
It was a terrible accident that happened because they were not aware of this problem.
Please make sure that hospitals are aware of this possibility and if possible avoid general anaesthetics and have a spinal anaesthetic.