Support group for Gluten Ataxia, and an Autoimmune diagnosis.

[wobblybee]

Please join us for the first Gluten and Autoimmune ataxia Support Group this Thursday at 11:00-13:00

We will be joined by Naomi, a dietician working with Coeliac UK, who will be giving a presentation and there to answer any of your questions.

Register for this event here: us02web.zoom.us/meeting/reg...

#AtaxiaUK #Ataxia #GlutenandAutoimmune #Join #SupportGroup

[Guardsman68]

Hello wobblybee hope you are doing well. I’m registered for this event and looking forward to it. I’m not currently on gluten free yet as I’m awaiting instructions from Sheffield as I have had blood results 6 months apart now with TG6 antibodies and the MRS scan showed deficiencies in cerebella and balance center connections. I’m still no wiser 🤨 all I know is I’m not getting any better and need to get started on something ASAP. Thank you for putting this up. Take care

NO SURRENDER

Lee

[Ostap]

I had a plasma exchange treatment recently for possible autoimmune cerebellar ataxia. Very grateful for the opportunity, but no obvious improvement 6 weeks on!

[wobblybee in reply to Ostap]

After 6wks you would hope to notice an improvement but..everybody reacts differently. Did your Neurologist expect to see an immediate result🤔

[Ostap in reply to wobblybee]

Actually after about 2 weeks I did notice a bizarre springiness in my legs which made getting out of a chair incredibly easy. It happened overnight and has remained. Nothing else has improved. Balance, stamina and tremors are as poor as ever. Quite peculiar really!

[Ostap]

I’m guessing so. That’s my distinct impression, but yes everyone is different. I knew nothing was guaranteed!