On 28th February, we celebrate Rare Disease Day. 🌈 ✨

[Irmmy]

Hi everyone! 😊

3.5 million in the UK are affected by a rare condition, including 10,500 people with ataxia. That's 3.5 million unique stories to tell, or 1 in every 17 people...

Many rare conditions are lifelong and complex. As a result, people affected by rare conditions often need support and expertise from a wide range of healthcare professionals such as GPs, specialist hospital consultants, specialist nurses, physiotherapists, occupational therapists, speech and language therapists, and learning disability nurses. This can mean having multiple appointments across different settings and on different dates.

Our aim is to highlight how well-coordinated care can make a real difference in people’s quality of life.

Help make a difference! You can find out more and submit your story via our website here: lnkd.in/e624KyNZ

#ataxiauk #ataxia #rdd #rarediseaseday202

[PatsyIpswich]

Thank you for sharing