I hate Ataxia it’s not far
Whatever happened to us
Why
Crap : I hate Ataxia it’s not far Whatever... - Ataxia UK
Crap
Written by
bevvick1964
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14 Replies
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Hi Bev.
Should that be ..... its not fair..... if it didn’t happen to us, it would happen to someone else..... but then thinking about it, it already does..... all we can do is grin and bare it, for want of a better description!
I will be here for you, if only to cheer you up, and have a laugh, because thats generally what we do when we meet up.
Don 😀😘 Xx
looking at the positives, would not have met so many lovely friends and let's face it, things could be a lot worse, couldnt they? chin up x
Chin up indeed Patsy! Xx 😀
Most of us feel low at some point, it usually passes. Distraction can help, you have to find something that replaces the thoughts. Then they might go, or see your GP if it continues?
I’m loving my life at the moment! I’ve got great friends and my big sister is such a great support. Yes the ataxia does tend to wear me down but I have appliances around my home that help me move around such as hand rails, a stair lift and ramp etc.. (by the way I’m only 26). All I will say is definitely chin up and don’t worry I was in the same boat as you and wanted it all to go away but now 3 years later I am so much more content in myself you have to appreciate what you have as others might have it worse off. My cousin has Cerebral palsy and is bed ridden. I’m glad I can still walk somehow. Smile! 🙃
me too, am angry like you
It's not easy. Sometimes sad. Just keep on living and make the best of it. You have no other choice like all of us. 🤗💗
Whats the good of being angry, we have Ataxia, so why get uptight,
there is always someone worse off than me.
I use the furniture, walls etc to get around indoors. I have a through the floor lift from dining room up to small box room, have handrails in bathroom/toilet, and use an electric wheelchair when out and about.
Am I angry, no, whats the use of being angry, why make my life a misery, I get on and live life as best I can..... as well as Ataxia, I have other medical problems!🤨
Love your attitude! That’s how I function in my everyday life. As I stated in my first post this diagnosis is all new to me. I’ve experienced the symptoms but was misdiagnosed for years. Neuropathy made the most sense at one point but now it’s official, ataxia. Which leads me to my question for you. When you got your diagnosis what were your symptoms? I hate asking but I’m asking.... how long did you function walking holding onto things ?
I have ataxia for a few years but the diagnosis is from February this year.
What were your symptoms? I’m sorry to sound intrusive but your reply has left me intrigued.
Hello Jessie. I've pain in my arms, hands and legs and feet. Also sometimes blurred sight and fatigue. Idiopathic ataxia, artrose and diabetes 2. Walking goes wobbly. I talk slow and can't find the right words. My memory is bad. Two years ago my chef said me to go to a neurological specialist. Within 2 weeks I have a second opinion. Afterwards I had some complaints for years. I take antidepressants for years. The sideaffects look like this.
I’m crap
Yes having ataxia can be frustrating at times but you can’t let it define you you are you and it’s your life to live there’s always people worse off I’ve had ataxia from birth I’m now 46 it’s progressive annoying impinging do I let it ruin my life no because I / we all deserve to be happy and let’s face it who wants to be around a misery enjoy the little moments that bring you joy all the very best x
