Does anyone know if there are any support groups for ataxia on the Wirral?
Wirral: Does anyone know if there are any support... - Ataxia UK
Wirral
Hello auntie Sallie!
Greetings to a fellow wirralite
To brain charity at Norton Street bus station in Liverpool Have regular meet ups, I’m not sure whether they are specific to ataxia? I was told I had it and referred to them, but I’ve never been well enough to get there! And I wasn’t sure I was ready for support group, it has taken me all my time to get used to the lack of balance, shakes, weak legs etc - which I don’t think I will ever get used to. I’m only 44 and still incredibly angry and frustrated, so best avoiding atm
Are u seen at the Walton centre? Chocolate fire guard springs to mind ...
Hi
Not sure if this is any help
ataxiabranches.wordpress.co...
Found it on the ataxia.org website, think there's one in liverpool too
thankyou
There is a support groups that meets monthly at 12man in greasby contact ataxia uk for details . Hope this is helpful Joe l
thanks for that
My husband is 60 and was diagnosed nearly 2 years ago. He is still struggling to come to terms with this disease and is very angry and frustrated. His mobility and speech is affected. He was under Dr Paniker for a short time and now sees Dr Silver at Arrowe Park and he was also referred to Professor Marios Hadjvillasou at the Sheffield Hallamshire. We live in Wallasey and if you would like to meet up please contact us!
Hello there, I have been referred to see Professor Hadjvillasou, how long do you think I will have to wait? We live in Wallasey also, my mobility is awful, but my speech is unaffected, I am the same age as your husband and feel exactly the same, how do I contact you? Why does he see Dr Silver now? I havent heard of him.