Wirral

[auntiesally]

Does anyone know if there are any support groups for ataxia on the Wirral?

[Mermaidia11]

Hello auntie Sallie!

Greetings to a fellow wirralite

To brain charity at Norton Street bus station in Liverpool Have regular meet ups, I’m not sure whether they are specific to ataxia? I was told I had it and referred to them, but I’ve never been well enough to get there! And I wasn’t sure I was ready for support group, it has taken me all my time to get used to the lack of balance, shakes, weak legs etc - which I don’t think I will ever get used to. I’m only 44 and still incredibly angry and frustrated, so best avoiding atm

Are u seen at the Walton centre? Chocolate fire guard springs to mind ...

[auntiesally in reply to Mermaidia11]

I am young like you as well, not sure if I should go or not? But think it would help talking to anyone who has the same, no I normally go to Clatterbridge to see Dr Paniker who is based at Walton, thanks for replying,

[Kellie73]

Hi

Not sure if this is any help

ataxiabranches.wordpress.co...

Found it on the ataxia.org website, think there's one in liverpool too

[auntiesally]

thankyou

[Joel70]

There is a support groups that meets monthly at 12man in greasby contact ataxia uk for details . Hope this is helpful Joe l

[auntiesally]

thanks for that

[Lemons1]

My husband is 60 and was diagnosed nearly 2 years ago. He is still struggling to come to terms with this disease and is very angry and frustrated. His mobility and speech is affected. He was under Dr Paniker for a short time and now sees Dr Silver at Arrowe Park and he was also referred to Professor Marios Hadjvillasou at the Sheffield Hallamshire. We live in Wallasey and if you would like to meet up please contact us!

[auntiesally in reply to Lemons1]

Hello there, I have been referred to see Professor Hadjvillasou, how long do you think I will have to wait? We live in Wallasey also, my mobility is awful, but my speech is unaffected, I am the same age as your husband and feel exactly the same, how do I contact you? Why does he see Dr Silver now? I havent heard of him.

[auntiesally in reply to Lemons1]

Hi, how is your husband? Did you use to work in Asda?