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My sister's asthma

twiddles2 profile image
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Hi. My sister has been told she has severe refractory Eosinophilic asthma. She has started on Nucala injections which she has once a month at hospital. Has anyone else had these injections and did they help

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twiddles2
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TuckBox2 profile image
TuckBox2

I was put on Omalizumab (Xolair) 2013-2017 for my asthma, it took a couple of years before I could get on it, it was 4x injections every 4 weeks. it did help a lot in the beginning for the first couple of years, then after a bout of pneumonia it seemed to become less effective and I was swapped over to Mepolizumab (Nucala) in May 2017 1x injection every 4 weeks. Since being on Mepo I have only had 1 bad day with asthma symptoms and I have not had any hospital admissions or lost a day off of work in the past 2 years.

I have had a couple of chest infections, but I have managed to get through them with just antibiotics, I have not had any need for prednisolone. My FeNo tests have come down from 84 to between 12 & 25. I am still on Tiotropium, Fostair 200/6, and salbutamol and Montelukast, but I have been able to stop daily nebulisers and come off uniphylin.

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Josephone profile image
Josephone

Yes I’m on the Nicola injection and my life has been transformed from having frequent exacerbations as a result of my eosinophilia asthma to practically living a normal life. It certainly has improved my quality of life significantly. Hope that is helpful. Good luck

WheezleSneezle profile image
WheezleSneezle

Nucala (mepolizumab) helps me. I'm a brittle eosinophilic asthmatic but also atopic and exercise induced, so more than one type. The mepo doesn't treat my asthma if it's caused by exercise, air moving fast i.e. coughing and laughing etc. but it has vastly reduced the severity of my asthma in general. I take 4 puffs 4 times a day of Intal Forte (sodium cromoglycate) inhaler to help with the symptoms I get from laughing and coughing and that works for the most part. I am rarely on oral steroids since starting mepo which is a big improvement from before. I don't notice any bad side effects from it either although I know some people do.

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