So I had my appointment with the difficult asthma team yesterday and at first it looked like we were going to be stuck without any progress or change to treatment. But then the consultant looked through my discharge letters for the admissions I’ve had since my last appointment and realised that “oh, these are all really severe attacks aren’t they!”.
So I got the phone call this morning to say that the MDT have agreed to give me a trial of xolair to try and reduce my steroid dose (and gain some control!). They’ve managed to sneak me in with the pharmacist to double check everything is ok next Monday and should hopefully be starting within the next few weeks!
I feel like I’m one of the clinics resident awkward patients at the moment though, as the head consultant had requested to see me specifically (so I had a super long wait haha), so hopefully this will help and I can bug them less!