The LAM forum lady was very helpful she gave me the name of a Specialist I will follow up.
Now Im supposed to have a whole list of things to do, go to a heart specialist for an ultrasound to see if the heart contracts properly, have the new pneumonia vaccine prevenar 13, see an ophtalmologist because dry eyes and dry mouth have a link, see the gyne to get off HRT because oestrogen feeds LAM well that's the list for the GP to do and the respiratory specialist is sending me to a specialist dermatologist to eliminate another disease Birt-Hogg-Dube..
No point in asking for my life back.. At least the physio and one-hour gym twice a week is fun, 15mn on the treadmill, pressing a foam ball with arms 3x10 and thighs 3x10 always breathing out on effort..then hercules 5mn just pulling 4 kilos, then leg press 5mn, then 5mn on the handwheel, 5mn on the steps and finally 3x10 on pulling the elastics...then Im worn out but I am with all those elderlies with oxygen bottles ex smokers I think and that gets me down. We have to clean everything with wipes and use gel all the time so far so good..
Hope you are all well, it's springtime :))
Take care you all xx