Just been put on Phyllocontin - a surprise, thought something else was next but my usual cons was away (grr as I rang up and checked specifically and they said yes, he'll be there etc). However the one I did see was lovely and a good listener so now at least I know there's someone else I can see if nec as he said my usual one (who is more of a researcher) might be reducing his clinic time.
Apart from feeling vaguely like a plant (is it just me or does Phyllocontin sound like plant food?), I realise I totally forgot to ask several things (but was having trouble breathing at the time, hence brain scrambled, and ended up back in A&E at same hospital that evening, fun fun - but the ambo people who 111 sicced me onto did some good stuff (IV hydrocortisone, not had it before) so got out reasonably quickly. I was desperate to get off pred and it didn't seem like it was doing much - apparently it was after all.
Main question is: how long does it take to start working?
I know that levels need checking carefully as the therapeutic range is narrow - done a search on here and seen some scary things about how variable it can be. I'm seeing cons again in a month so presume they will check levels then, or does it need doing before then eg by GP? It's 225mg twice a day which seems the standard starting dose. How often does anyone else have blood tests for this?
However, I've not given things long enough before so was really wondering how long it's meant to take to kick in - days, weeks...? Anyone else's experiences?
Also the pharmacist said it doesn't affect your stomach and doesn't need to be taken with food - but from what I've read on here from others on this and similar I am sceptical, so am taking it after breakfast and dinner; have others found this helps? I am really hoping it works as while I'm not as bad as many my lungs seem to be persistently a bit delinquent atm and I don't want it to interfere with my lovely new job (bad enough the time off for appts...). BUT I am a bit worried about the feeling sick thing so hoping I can minimise this.
EDIT: also, any tips on the best way to manage the 12 hours thing? Fine in the day but I can see myself getting it all messed up re the night time and morning doses, so wondering how others had got this sorted without getting it all out of kilter.
Glad I'm being taken more seriously now and seem to have to do less convincing, but I do seem to be turning into a walking pharmacy... Let's hope it works -the Spiriva seems good, on the basis that I really notice if the bloody Handihaler stops working (great drug, not convinced by device).
Sorry for ramble, brain reallly not working atm hehe.