Ok long story short - my daughter has been suffering with asthma a symptom since birth as well as allergic to dairy and soya which she grew out of. Treated and diagnosed by our local consultant but as she's got older she's having more attacks, hospital admissions and needing more meds.
We were referred to the brompton earlier this year for her asthma as it was deemed difficult to manage and they suggested doing a full work up and going back to basics - which I was pleased about as she's missing so much time off school and quality of life.
Got the results a few of weeks ago and they found nothing other than acid reflux which she'd already been treated for they've just added another med to go along with it.
They found no lung disease or signs of severe asthma so are hoping the reflux meds will help. My only concern is the meds didn't help before and whilst I know this can cause an issue with breathing and wheeze - when she's got a sniffle it goes straight to her chest normally causing pneumonia then an hospital admission days of pred. When the weather changes this causes her to wheeze and become unwell needing more pred, exercise etc. Can all of these things be the cause from gerds? One itu admission , 3 lots of aminophylline and 2 lots of iv salbutamol which I'm sure any parent would agree is horrible seeing your child on those drugs.
Since getting the results she's been taking the new meds but has had a wheezy episode requiring time off school due to a viral infection of the throat and continued to have what I'd call a dry asthma cough. Now my gp said not to get too excited thinking the gerds would be a miracle cure as they felt the level of prednisolone she takes would potentially cause the tummy issues - this year to date she's had 55 days worth
When I went to get the results of the broncoscopy etc they said they'd forgotten to do ige testing and rasts so did them that day - now I've received my copy of the letter from our appointment and it says all the stuff they told me apart from in biro at the bottom it says
Cortisol 33 (165-660)
I thought due to her having hayfever and food intolerances as a child she might be allergic to something or have immune issues as she always gets chest infections when having an asthma episode as it were
But I have no idea what they mean. Any thoughts or advice would be great because I'm feeling really low at the moment after hoping to get something concrete and now feeling like it was something trivial all along