I wrote this about 6 month ago and came across it whilst doing a clear out... Was going to Put away but I was nagged into posting it I wanted to amend it/improve it but husband would not let me.
What do you think....
______________________________________________
B.A.t 1
I have this companion
The one I love to hate
She follows my every move
With me wherever I go
Will not let me be
This “mateâ€
I love to hate
She is all over my face
Following my every step
Keeping me indoors
Keeping me oppressed
Always keeps me company
Running “My†life around her needs
Ruling my home, my nest, my days
She keeps my friends and the world
At bay and far from me
I call her B.A.T 1
Sometimes I escape her hold on me
For an hour, or even once for a day
I managed to forget about her during that one glorious day
But then she always somehow finds me
And the hate begins again
BAT1 has taken over my days and
When a friend calls by unexpectedly
Or when I am trying to sleep
She arrives in oh so many ways and
Triggered by oh so many things
When she arrives ...is like a slap in the face
Like a kick in the guts
Like crushing lungs... pressing down hard on me
She takes my breath away
She makes me wheeze, cough and gasp
And those that love and care for me
Run to start the “NEB†once again
And as the vapours hiss and spit
Desperately trying to keep “her†under controlled and at bay
I think how much I hate her and how glorious
It would be to be free
Free of meds
Free of “herâ€
Free to visit...work and play
Free to be... Free and healthy again
I have a “friend†who lives with me
I call her ... B.A.T 1
I hate how she rules and runs my days and nights
And I hate the fact that
I can almost hear her mockingly say....
“I’ll be with you for the rest of your days
You cannot escape me nor get away
and
I’ll be with you till you draw your last breathâ€
And this is what I say to her
""That maybe so, my hurtful mate !...
But I still WILL fight you...
Because I am not on my own, no more
One day you and your type will be gone""
Leaving not just me but all those like me well ALONE.
Wow, Susy, that says it all"" Well done you for being able to write so elequently about yoor unwelcome friend.
Kathyx
I agree,
good job I really like it! Very well said!
Thank you
Thank you to all that have sent me Messages regarding ""BAT1"" Just really sorry that there are so many of us with such a demanding unwelcome ""Guest"" in our lives.
To those that have mentioned ""Publishing"" either in ""National Press"" or ""Publications"" (not quite sure what you mean) and I really would not know how to go about it nor very sure if that is something that would be suitable for the General Public as it were, not even mentioning the fact that ""it"" probably needs a lot of tweaking!!!.
So ...to all of you that have your own pest ""Brittle asthma type 1 or 2"" Keep up the good fight and lets hope We and Asthma UK can find a way to conquer this annoying pest.
Be good and take care of your lungs.
Thanks again for the messages and DO keep in touch
Excelent poem and Description of BAT1! I seem to have 2 BATS! But I keep a firm thumb on them where possible.
You could send it into Asthma UK for publication in the Asthma News magazine with a brief description of Brittle asthma.
I have written poetry in the past - but need to be in the right mood!
Kate
That was a great poem,
re poem
has expressed all i have ever wanted to say about living with asthma for 25 years, and not being able to do so., wishing everyone a very happy xmas and all the best of health for 2008.
christina
Does this make you BATGIRL, Susy??
Good Question !!! ....I can just see myself with the mask and cape...I wonder ...does BatGirl have any special powers/abilities ? and if not ....what would you pick/choose as her ""Special Powers""? ???
My dream world today has no clouds and the sky has been airbrushed the purest of blue.
My dream world today has no roads and under my feet is a never-ending sandpit of sparkling bright white.
My dream world today is so warm. The air is warm. The sea is warm. There is peace in the waves.
My dream world today does not shout. It does not moan. It does not groan.
My dream world today is a duvet for my brain, a pillow for my ears, a blanket for my heart.
My dream world today has no phones, no wires, no plugs and no webs.
My dream world today looks after my friends, we talk and we hear.
My dream world today shares time for each other.
My dream world today has no doors – please come in.
Alan
Oh my, I have a poem! Second only to just seeing John Barrowman live, you've just made my day! Thanks, Alan. I *LOVE* the line ""duvet for my brain"". That just sounds exactly what I need at times.
(as you can tell I was going through another battle with BA when I wrote this... and although fighting ""him"" still... in a better mood now, thanks to my new friends - you know who you are !!)
groovy chicks
hi its groovy chick here really love your poems i do poetry you want here it
here we go
we are so cool
and we are so great
that not many people appriciate
that having asthma is no joke as we sit and stand there as we begin to choke like a really old bloke
and nobody just sit and stair that you all need to realy care
some folks just do not see that asthma maybe in you and definately in me.
by groovy chick who is asthmatic herself she is 29. i did this poem as i have had real problems with people in the past taking the mickey and they still do i hate bullying and its not nice i didn`t or we choose to be asthmatic.
Thank you groovy chick
Really loved your poem. Hope you are keeping well.
Would love to read more if you have them... the more POETS the better I say.
Love, hugs and wheezy kisses from a very cold and whitish Orkney isles
its a thing they call asthma not no fun and such delight
as were are breathing to try and keep up the fight.
but having understanding friends on asthma uk to say the least is a sight of relief as we keep on dreaming to oh what to shuch belief.
the blue brown red and green can be really gross
to the things that we depend we live on the most
from groovy chick
smoking
smoking
Everyone who has a smoke
it makes us cough and wheeze
oh i wish they would stop smoking oh please oh please oh please.
out comes the inhaler
with every single puff
no one stopped and cared
i wish theyd stop smoking i dont care if they went off in a huff
then we would be able to breathe without a cough and or a wheeze.
Here we sit and here we stand waiting for this some what healthy land
of what is left of it
people treat it as a dumping pit.
from groovy chick
inhalers
inhalers come in different types one called dry powder
you dont want it anything even in a dish called chowder
it helps us breathe through a wheeze it even stops you from a cough.
when we drink from a broth.
from groovy chick
inhalers no 2
inhalers come in spray form in a sort of mist
dont get in the way it will come out hiss.
we breathe it in when we need
we feel great
we begin to love it even wed thought wed hate
its better feeling this
way.
we will often say
no wheeze today no time for delay
i want to have some fantastic fun and go out for a longer one.
before the magic ends
for my fantastic wonderful inhaler type friend.
from groovy chick
anyone else gonna have a go id like to see if your as good as me.
feeling tight
i wish this tight feeling of 10 people on my chest
would go and play out one day to give us a rest.
fom this big old heavy pest
it feels so bad you cannot breathe
all you cough and then you wheeze
and then we sometime sneeze
Out comes the inhaler oh what fun with glee is this the wonderful magic thing
that they made for me. its blue and cool and good for you and we can breathe again oh what a sight oh what relief.
from groovy chick
bugs
catching bugs is a yucky thing
why do people have to bring.
we all stayed away but seemed to
get that dreaded thing.
we are feeling so ruff
but we are really tough
even though we sound a little bad
we be rid of it
and then we will be realy glad.
even though the asthmas high
we will live and not die
and for the people that are unkind we will put up in a rocket
and they all come down and fall into a plug socket.
from groovy chick im not sure what this is like what do u lot think id like to know does it sound right anybody.
re poems
did anyone think about getting poems published and raising funds for asthma research etc just a thought!!
christina
Yes
Hi Christina... Some of us have been talking about that, I would love to hear about any other would be POETS ...as the more of us , with very different prose styles but with ONE big thing in mind, may help make those that cannot express NOR understand what Asthma does to a person's life the better. So please if anyone can contribute and or HELP us set this up out there in WWW land. Please post here or get in touch
I have received several messages regarding this very topic and there seems to be a real interest in actually DOING Something ....Advice welcome from one and all.
Love, and wheezy kisses from the Orkney Isles
Susy
Once there was a young girl
she ran about the house
never any fear from getting tired out
Now this girl feels old now asthma I here you shout
no more running round the house
always worrying about getting tired out
Today there is an young woman with her best friend blue
he goes with her everywere
to help when shes tired out
I tried first attempt ever at a poem xx
Well done Kerry anne
Keep it up...It does get easier with time.
Love and wheezy kisses and hugs
Susy
Hospital Neb
I visited the hospital
The doctors and nurses
Smiled and shrugged
As they ran and rolled their eyes
Get the syringe, Ventalin and Atrovent
A chamber filled with fluid, tubing and a green mask
wow Becca, That is amazing. Brought a tear to my eye.
keep it up!
x
angel
Angel
An Angel came down from heaven sent
Just to here me wheeze
and just magic around another inhaler please.
It popped in my pocket i had just to see if it was not a rocket their as id thought it might be.
Out it popped just to say hello i had 2 puffs of blue i feel better now not clogged up like glue.
Inhalers are good like that just u wait and see there is nothing better than that just than having three.
I am hansome i am great now i can aprechiate having asthma is really cule
and we don`t have a rule.
Im not bothered what people say
who wants to be like them anyway!
They can stomp scream and shout as they dont see what its all about.
Asthma in you and i
some folks live and some folks die.
it is so sad it dont have to get that bad
If you dont play the right rules it will totally really affect you
so take your inhalers with care as you always should.
never forget to take them you will soon love that bit of magic puff just feel the eaze
i feel so glad now not to here me wheeze.
from groovy chick
im not sure bout this one please susy or alanj are you out their need your help
Becca1 - Amaxing , lovely, sad and honest.
Please keep it up
Love, hugs and huge cuddles and kisses all the way from the Orkney Isles
Susy
Excellent Becca that was lovely xx
Thank you
I really like all the poems that have been posted, they're all really good
xxx
these poems are all brill. Yes Elephant it does work. The poems are all so deeply touching and even though I am not as severely affected as some they really touch a nerve. How asthma is always there, separate but a part of us we can only do what we want with its permission and by complying with its strict drug regime. Over the years I have come to only tolerate really comfy shoes - to the horror of one of my friends (non asthmatic) who calls them 'man shoes'. The reason is that when my chest is good and lets me rush around as i love to do I refuse to be hampered by heels and thin soled shoes. However, sometimes when i think my chest is going downhill I will put on slightly high shoes to prevent me from rushing around and trying to do too much!
Sorry - this is not a poem - may get brave and try one.
I love all the descriptions and it is just how I feel at times, the being held back and not being able to be how i think i really am because of it.
Sandi x
embarressed poem 2008
embarressed and shy
I am so really shy
wonder with glee
dreaming to myself
oh what i want to be.
Then all of a sudden i cough and cough and cough till the blue things out the people look about
then i often come right out.
getting red cheeks
really quite bright
i wish i was in bed all snugged up warm tonight
i feeing so very bad i want not to be very shy
at people staring down at me.
Or towards the sky
Just cant help it as you know you do
i would like to be happy as and where or who.
Going to take inhaler in front of friends it dont matter where it all ends
as we know we do
we find them as special just like me or you.
i dont have red cheeks oh not anymore as i have come wise to it more than i ever did before.
Im feeling quite proud of myself
not shy anymore
Im not bothered about people gazing at the door
If they don`t know what asthma is i do not care
as i have other friends and they know and share.
I know who to ask now when im feelin low
to come on the internet and to have a go
I am so happy when i have a chat
when my lungs are stroppy and that is just that
And I can sleep at night
knowing im gonna be alright as I have been chatting on this message board every hour of the day
I am feeling calmer and everythings ok
Everyone on this message board is so nice to me as everybody is in the same boat and understands so easily.
We are the same as everyone
We are number one
Although We have asthma we can still have fun
Now You people out their
Yes i mean you
Thoes wierdo geeks who
laugh and joke then turn away.
your not nice people
Just you wait and see
That this could happen to you one day
and where will you be
by the one and only groovy chick.
Steroids tablets
Steroids
Taking thoes pink tablets always seem to stink
Which is why i take them so what do you think
Had a bad attack you know as you do had to take them to see the whole day through
My peakflow getting higher from one hundred to four if i blow much harder ill be turining blue so have to have inhaler before i beat you
Taking thoes tablets isnt that bad you say
Keep on taking them before i melt away
Eventhough they taste yucky youll be on the mend you be often wise and things that you can depend.
Im feeling great today
Thoes steriod tablets worked.
The pain has gone away im so glad in every way are the best magic tablets i ever had
really sleepy and worn out
I am really sleepy after the night before
i told them to stop being silly.
and i said no more.
the excitement got too much it drove me insaine
Had to take magic stuff it never worked the same
Then all of a sudden i had such reilef the magic began to work.
and it got calm again as i was all worn out
feeling really sleepy now
yawning all the day
I wished i had it done my own way
i am not noisy i am just quiet half asleep
just trying very hard just not to go to sleep
Trying to stay awake
it is very hard
i just feel so very limp
it feels funny it feels strange this same wiered thing has just come on again.
by groovy chick
hope this on sounds ok i had a bad night last night which is why i did this poem
mean demons
I hate thoes mean demons
that came out the night before leaving me all battered and bruized
and feeling really quite sore.
Had to have moments piece of not saying more
wanted it to be like as it was before.
Then the magic faries came with some magic stuff.
Whispered to me go on and have a puff.
Then the demons went off in a puff of smoke.
They will be back again before we have a choke.
Next time when the demons come to play the faries magic will blow all the demons away.
by groovy chick
my poem
(ive not written poetry since school but thought id have a go!!)
I have a disease it makes me wheeze and sometimes sneeze
the doctors they listen and say that's not good it needs to be relieved
I know i say its getting rather hard to breath
I pant and puff with all my mite sometimes it's a fright
the drugs they help relieve my lungs
the nebulisers the tablets and the inhalers
sometimes i wish this disease would give me a reprieve
to go away and never come back
oh how i wish i had such luck
instead everyday it lets me know its there
I shout and swear give me some air
but oh how it dosnt listen
so i silence it into submission
with the nebulisers the tablets and the inhalers
these give me some relief
but oh how i have a belief that someday
there will be a cure
so I wont have to suffer from this disease asthma no more
I look here. I look there. I look in all the places.
I cannot find her. She has gone. Where is she?
Oh, I need her. I need her in me.
I’m getting frantic now. Where is she?
My breathe is short.
She’s is not by my side. She is missing. Oh, where can she be?
Panic.
I miss her. I need her…... I..
I look again.
Oh, what’s this? You’re there. I have found you.
Oh, how I have missed you.
Everyone – I have found her. She has found me.
She was there all the time
Just a bit blue.
Hi..ss..Hi..ss..
That’s better.
I know you’re blue, but please don’t hide again
I need you.
i am not an alien
I am not an alien with a tropical diease
I don`t have 3 bobbly eyes and a big wide mouth to sneeze.
We are humans after all havent you forgot
The magic blue contraption helps us alot
it is not infectious what we have got so we are not an alien or perhaps you forgot.
So we want to be included in everything we do with everyone now we know we are just like you.
by groovy chick
thank you
just to say thank u for this thread as writing a poem as really help me and given me something new 2 do.
my nosey teacher found my poem 2day and was taker a back by it lol and is now getting me 2 enter it into the schools eistedfod potery competion, this year theme is isperation, which i would never of entered b4
also is there any news with whats going on with book? it would b realy kwel if it does acutally go ahead.
thanks again
Clox
coughing alone in the night
I wrote this poem some time ago, and it's not originally in English - in the original language, words ""cough"" and ""alone"" form a nice pair. I guess the translation will still convey the feeling.
Eistedfodd, eh? That is terrific news. Hey, nosey teachers must be a lot better than they used to be. I'm so pleased for you and so pleased that you are encouraged by this.
The response seems to be growing and growing. Like yourself, there are a number giving poetry their first try (or first since school). I think we have to let that happen more before we actually start compiling the book. It seems that we will have lots to include.
What do you think, Susy?
We now have to give time for translations into english too. Interesting idea I've had, Niccia - If it works well in the original language, maybe we should see both. Like listening to foreign language opera - retains all of the original passion, whether love, hate, anger, sorrow - all are in the sound. Like ""Nessun Dorma"" - ""None shall sleep tonight"" just does not come across with the same soul.
Alan
Hospital Food
I wrote this poem while costified and fed up with them not being able to cater for my allergies. The nurses gave it to the catering manager and since then things have improved. ( Slightly?!)
Wouldn't it be nice to have a plate of rice?
This is what i wish oh for a piece of fish
A chicken leg i beg, please i dont mean to nag
Green beans and peas, im down on bended knees
Something on a plate or you'll hear my stomach grate
I've got lots of allergies, hospital food makes me wheeze
Cough and swell up, i think the drs are busy enough
Anaphylaxsis isn't fun and a major pain in the bum
All i want is food that is dairy free, has no nuts, eggs or celery
I dont want to make a fuss, but my stomach's empty and needs filling up
Baked potato and tuna's very nice, but i wish you would follow dietary advice
Providing it for every meal means im lacking on the nutrition deal
Please take heed and hear my cries
All i wish is for a piece of fish, peas and a bowl of rice
Yes totally...AlanJ, I am sure there are far more Poets that have not had a chance to contribute or have not found their muse or inspiration as of yet.
So I would ask those reading this to pass the word to your AUK buddies to put their pen to paper or even keyboard tabs to ""Memory"" and so perhaps this time next year we'll be published and on very high demand, raising money for AUK and making others understand that Asthma is no joke... but asthmatics can be fun !!!
I agree, Susy - others do need to understand that Asthma is not a joke... but asthmatics definitely can be lots of fun and have lots of fun!!! This site is a very good example of that.
I think Susy may have just set us a target. Let's have some more. Bring it on you poets!
one day there was snow and ice on the ground that made the cruching fluffy sound.
Then i made a snowman much to my surprise he came alive and danced upon the snow and ice.
All of a sudden i lost my magic blue friend that i needed a puff of it and he found it again
Snowie had a puff of it which he was round the bend because he had od on my magic blue friend.
I wasn`t so happy i was not laughing with glee then all of a sudden their were folks sitting with me.
I got up i was feeling great then all of a sudden snowie began to brake i got runnning after snowie and laughed till i shake a little bit more then i slipped over and looked at my bum and it was red roar from being on the floor.
Dreaming of being young again of the things we used to do not much has changed now if you belive its true.
by groovy chick
the original version
Here's the original version of the poem, AlanJ and others interested It isn't exactly the same as the translation I gave in English. (Language note for those interested: yskin = I-cough, yksin= alone, yössä = in-night) Anyone knows what language this is?
Täällä vain yskin
yksin yössä
hiljaisuus ylläni
pimeyden sylissä…
…kellon tikitys
aikaa mittaa…
Pääni on raskas, silmiä painaa
keuhkoja sattuu, rintaa puristaa,
kurkkua kuristaa…
…korvissa kutsun
unosen kuulen…
vaan täälläpä
yskin
yksin
yössä
Is it russian?
Niccia : Sounds more like Polish to me ... Am I right ?
Good guesses, but the language isn't russia or polish. I'll give you couple of tips to help you in making a sivilized guess:
1. the language is mostly written as it is spoken (unlike English ;))
2. It has some 15 cases!
More guesses, anyone?
It's not Finnish is it?
Becca1 WON!
Good, Becca1, it IS Finnish Congratulations!
What made you guess? The tips, the mere look of the text or what?
-just being curious
hehe, yay!
The 15 cases thing made me think Finnish, because it came up in a trivia thing we did in language day at school ages ago.
xx
To whom it may concern
Why do you look at me like that
I dont have two heads
thats not whisterling
to whom it may concern
Why do you think im standing here
its not for the good of my health
this holding onto a fence
to whom it may concern
I would love to get home
no I said its not whisterling
its just my stupid chest
I wish I was sat with blue
my bestest friend in the world
sat on my cossy settee
to whom it may concern
Instead im stud by this fence
bearly able to breathe
why you all staring
its just my friend blue I need
to whom it may concern
someone do the 9s
I have to go in now
back to ward no 9
To whom it may concern
soon I will be back on the mend
so noone will stare for a while
until im back holding a fence
xx
WHY
I did not ask for this
so why are you here
I did nothing wrong
so again why are you here
you treat me like scum
but ive done nothing wrong
you follow me all over
i cannot escape from you
you hold me to tight
you make turn blue
you make me scream and shout
what the hell av i done to you
why do you treat me like im muck
ive done nothing to you
yet you still want to hurt me
i just dont understand
please leave me alone
just for a while
let me hangout with my friends
without you by my side
what have i done to you
to make you so angry
please for 24hrs
please just let me breathe
xx
Here are my offerings. I came up with them last night while I was having a horrible time with the asthma that meant I had no sleep last night and very nearly called the little green men. Anyway, thinking about coming up with limmericks on the subject of asthma took my mind off the worst bits of it. I've posted them on my blog and thought some here might enjoy them too. Here goes:
A Prayer
Lord, I ask for a gentle reminder.
A poke in the ribs would be kinder
When my lungs are in doubt
How to breathe in and out,
Than stuffing me whole through a grinder.
Breathing
I think that I've mastered the art.
I've learnt the rhythm by heart -
Breathe out and breathe in ...
And repeat it again ...
Oh damn! I've forgotten the start!
Becky.
Shaking
The magic blue friend came out today i was feeling fine.
Then a few moments later i was shaking from top to toe wishing this feeling would just up and go. And then we wont feel low.
Im feeling very well
The shakes has gone now can you tell because im feeling strong like a giant now there is no more feeling vilant as now the shakes have gone silent and faded away till another day.
We can only tell the way how we feel no one else can say that when we need a puff today then we can shout hooray.
by groovy chick
BeckyG ... Oh my god !
What a wonderful poem, well done you.
Love, hugs and kisses from this far away piece of land
AlanJ - Oh my goodness ...what a sense of prose and style !!
Love your poem and your passion it's trully a pleasure full of delights !
Susy
Becky G love your poem - I've often wondered just how do we suddenly forget hoew to breathe (or spell apparently!) and have to think about it when usually we just do it. Bit jumbled I know but just - great poem concise but brilliant.
Sandi
Forgive me
I know who I am
do you
I dont know were you came from
do you
In my wildest dreams
I never thought we would fight
Please forgive
leave me alone tonight
You sometimes stay so silent
I dont even know that your there
but then I get a reminder
I hear a whistle in the air
Please forgive me I hate your guts
but your still here
no matter what
sometimes you are good to me
but I cant forget the past
you have left me gasping
why I have to ask
I know im not perfect
but hey who is please forgive me
I dont need you as a friend
I wish to let go of you
your not here no more
please please forgive me
and let me close the door
I know your always going to be near
never far away
but please forive me
id rather you stay away
Theres only my friend blue
who really understands
he takes a hold of me
he says let me take your hand
He helps me through a battle sometimes
really bad
we both end up in costa a feel really bad
So please forgive me
If you were a friend you would know
dont shut off my airways I really need them so
Im asking nice and friendly please leave me alone
And please forgive me
your not a friend nomore
xx
Kerry-Anne ...That is a really good one ! Straight from the heart or is it lungs !
Susy
ignored
I hate being ignored i know not why
having asthma is sucks im sure to cry. Going to be happy all the day through wishing i had lots of friends and even you
Feeling very lonely no one to speak to. just hearing my blue friend hiss the same old thing again helping me through the stressfull patch and hoping not a striking match.
i am so lonley wish i just matched with everyone on message board just like a chord.
the only friend i seem to know is just my magic mate blue has anyone got a clue as to why we are being ignored.
Ignored is not nice or sliding upon the ice i dont like it. having asthma is cool but being ignored is a nasty rule so don`t just ignore us we are here and we are great and we do not retaliate.
by rainbow fairy anybody out their to reply to it to see what you think to it
STRAW
hey you yeah you
dont look at me that way
just cause im different
so you say anyway
Do I look different
I didnt know I had two heads
or three eyes
walk like a crab up the stairs
Sometimes I find it hard to talk
or maybe hard to breath
even hard to walk
dont ask me to run
3ks or even 3 steps sometimes
Who says were any different
were just the same you and I
if only you could walk in my shoes
if only for just 1 day
I am no different to you
just because sometimes i can not breath
I do not need people feeling sorry for me
But then again I would not wish anyone
in my shoes why would I
who would want to live
there life breathing and sometimes living and breathing
My goodness Kery-Anne ... What words would do justice to that poem ?! Except ... Oh My God and Wow !
All my love and hugs, from these distant Islands, your friend....
Susy
Why me
Why me I scream
why not you says my heart
but why always me
My heart replies my dear look around you
the world is full of hurt
But why do I suffer and cannot breathe
why not you
my heart replies
Why do I live my life in fear
always wondering if a ambulance will apear
why not you
my heart replies
when I sit and think
why me
my heart always has a good answer
why not me
so someone else dont suffer
xxx
No words needed to say how heart felt your poem is !
Susy
xxxx
Everyone well almost everyone says why me but inlight why not me there is people who suffer everday and dont understand why i suppose where here for a reason and when we go meet him in the sky then we can ask why me but i bet the answer is still why not you xxxxxxxxxxxxxx
A burnt offering in response to a worthy thread!
Pushing the boat out
I can’t go to bed tonight because DAMM
Something wicked this way comes. Trust my thumbs.
Sliding doors, broken bones. Yes I forgot
Too late. Oblivion is better. Numb.
Loved one cares. Tired. “Don’t worry I’m hereâ€
(She’s late in bed tonight because of fright)
He’s here. Earth won’t darken. Earth is life.
All’s quiet on the western front. All’s bright?
Something black swirls and lurks deep- down Lethe there.
Like under the stairs, feels cold. dark and stark.
This place? (Curled chest and shoulders) Where’s the boat?
I found some of my old poems the other day - may get round to tapping them in sometime!!
Love & hugs
Kate
XXX
To my dearest friend AlanJ thank you for being there when I need a friend and thank you so much for saying that these quickly thought-out written words ...were good enough to post and encouraging me to do so!
Kate Moss... now you definitely will have to post one of your poems... as my curiosity has been Sparked!
Hoping to have lots more contributions from other AUK Poets... there are lots of you out there... maybe all you need is a little nudge.. so a Challenge has been issued... I promise is not hard!!!!
Nice one Susy!
Your poem seems to balance out another thread I have just read rather nicely!
..and I see myself in one or two of your lines....!!
Twizzle
*deep breath*
*being brave*
Please be gentle - my first effort in the poetry stakes for about fifteen-twenty years. Thank you Susy for your gentle persuasion...!
(With thanks and apologies to Cole Porter, I borrowed his first line)
In the still of the night
Someone came to my room, spent a moment
Crept into my lungs, made them tight
Sprinkled some starch, faint scatterings
All around, so that when I woke
As dawn placed its fingers over the edge of the earth
I felt a gasp, that familiar choke
A cough, a rasp
A mist like the dawn's own
Dissolving bronchospasm's starchy grasp.
Cathbear.... well done! You are too modest... will now expect a lot more Poems from you!
Hugs and thanks to all... Please keep poems coming ... They are for a good cause!!!
Susy
A Shortened Parody
Sorry, Mr Shakespeare.
To cross-trainer, or not to cross-trainer
That is the question
Whether 'tis nobler in the lungs
To suffer the wheeze and gasp
Of strenuous exercise
Or to vegetate on the couch,
Watch Torchwood
And post on Asthma UK?
Like your style Cathbear ! ... Have not changed my mind ... regarding your new Tittle, which made you... SHY ?... But I can assure you, No need to be
So a Torchwood fan are we !
Hugs from the Os
Susy
Susy - I too accept your challenge. This is probably the first poem I've written since high school, but I do a bit of lyric writing and composing so I've almost kept my hand in, so to speak!
Not being asthmatic my poem is suitably off-topic.
---
""They Said""
They said, “One day we’ll all drive flying carsâ€,
But it was not to be.
They said, “One day, we’ll take day-trips to Marsâ€.
To Mars? That’s not for me.
There’s plenty of places on Earth I’ve not seen,
Postcards I haven’t sent.
Of deserts of gold, and valleys of green;
Heck, I’ve not even been to Kent!
Is life now so frantic, so hectic, so rushed
That a holiday must be so stunning
It can only be talked of in tones that are hushed?
Having been coaxed with such steady subtleness by the very queen of rhyme herself, and mistress of ceremonies here, I finally lift this masterpiece (well she did give it a good mark!) from my blog and post it here. It's about my blog, my asthma - which was a great companion in my school days, and to some extent my enjoyment of idle chitter chatter and word games on AUK!
Twizzle Twazzle
Tiz Waz
Blobber Log
Twiddle Twaddle
Flim Flam
Flobberlob
Sneazy Wheezy
Click Clack
Clugger lug
Sniffy Snotty
Niff Naff
Snuffer plug
Bizzy Lizzy
Sick Sock
Twizzle’s back!
Bibble Babble
Prittle Prattle
Dizzle Dazzle
Tittle Tattle
Dibble Dabble
Doodle Doddle
Twiddle Twazzle
Twizzle Twaddle
Marks from Miss: 4 out of 5
Twizzle
PS. At school I was often sufficiently drugged into a semi-state of droisiness to be unconcerned about my nickname, Twizzle. Fortunately my asthma sometimes kept me at home or at least out of PE if I was lucky so I didn’t have to hear it too much. Clearly, this had a serious impact upon my education – not least of which was my grasp of the English language!
I chose twizzle as my ID for AUK because it reminds my my school days. You can guess what the 50 bit means!
Thank you for Posting... and well done, Twizzle (or is it Mr N H !) .. See it was not painful at all !
Susy
All my life
All my life ive wondered
were we all come from
why were all here
and for how long
All my life ive wondered
whats next round the corner
is it good is it bad
i often just wonder
All my life ive wondered
were do we go from here
is there heaven is there hell
All my life ive hoped
someone somewere cares
give me a kiss and cuddle
and make me feel so cared
xxxxxxxxxxxxxxxxxxxxxxxxxxx
Well done Kerry-Anne ! up to your usual standards..So .. Well done again K A !
WOW susy what can I say you always inpress with your poems
KA
XXXX
Thank you Kerry Anne, do you have another poem to add to this thread...
Waiting for more contributions.... from YOU ALL .... and ...yes.... if you are reading this... that means YOU too !!!!
Please....pretty please with bells and bows on !
Susy
Hi Susy,
Loved your poem. Hope you are feeling better
'Giant steps are what we take
When clothed in baby small steps'
Mia
to my mum
I tend to write poetry to deal with problems i have so sadly i cant post many here as they are probably to descriptive to be appropriate but this is one i felt i could share.
I wrote this poem dedicated to my birth mum the week i was reunited with her after being adopted 29 yrs before.She has a laminated copy of it by her bed.
I know its pretty basic but here goes.
There was always something I had to do,
Search the world far and wide for you.
I looked in the mirror,who did I see?
Your shadow there, a missing part of me.
The absent piece of jigsaw, so far lost,
Must be found whatever the cost.
A certain loneliness always there,
With you my ups and downs i wanted to share.
At last I have found you my life now compete.
An extended family I've yet still to meet.
When I look in the mirror i know who i see:
The shadow is gone, i see you and see me.
The questions i have about me and my past,
Like who do i look like are answered at last.
My biggest dream has at last come true,
That we be reunited,
Yes Mum
I LOVE YOU.
hopalongkp... beautiful poem... as it obviously stems from the heart, Lovely, honest and true...well done.
Welcomed and Thank you for the addition to A Poem Post!
Hugs from the Orkney Isles and again... Well done you!
Your latest poem is clearly very heartfelt and is very moving. A few people have messaged me saying that they find it very upsetting to read, so I have added a 'sensitive content' warning to the thread title, and added this post so that your poem is no longer at the top when the thread is clicked on, so that people can choose whether or not to read further.
If one of the functions of poetry is to stir up emotion, I think you have succeeded there, but I do think we all have to be a bit careful that we are not upsetting people too much.
I haven't removed the poem, but if anyone has concerns about it, please do message one of the mods so that we can review the issue. Susy, I hope you understand why I have to say this.
Em H
(Mod's hat on)
Hi EmilyH... I have removed the poem... sorry to any and all that were Upset by it.
Susy
Thank you Susy for removing it. Yet again we have one of those situations where there is a very fine line between allowing people a forum to express their feelings and emotions, and making sure that we don't upset people unduely.
I don't think there can be any hard and fast rules in this situation, I would just ask that people consider very carefully what they are posting and the impact it may have on other people.
Em H
Hi.. no problem... I actually thought the tittle would have been more than enough... well not to worry!
Susy. I also think the title would have been enough and am sorry that you have removed it.
I think you are right about a lesson learned.
Alan
x
Guys, please don't be affronted...it's a great poem (yes, I read it) but for one reason and another it has come at the wrong time for some people, and we have to act on that. Please understand our position too, and Susy, please don't stop posting your poetry as I know it provides a lot of pleasure for many users on here.
I originally wrote this poem in Spanish at the age of twelve when my family was in hiding from the DINA (Military secret police) ... but on reading it when translated... I thought it could apply to Asthma... so... I hope you like it and that it does not offend anyone !
Susy- That poem is so beautiful and very powerful.
Are you getting rain and sun today, hence the rainbows!? Where do all your poems come from? I wish I could write as many, and capture those thoughts.
I think I will give the wisdom words a rest for a while, to let some others have a go as I seem to be on it too much - because I find it easier than writing poems!
Hope you are OK
Best Wishes,
Twizzle
I wrote this after watching a program about the children in Iraq and Afghanistan being injured and killed.
Elephant2001 - Firstly ... sorry it has taken me so long to say (but I have been away from AUK for a few days)....Thank you for your beautiful Poem, if we all were able to express our emotions so clearly this world would be a better, brighter and more beautiful place !
As the point of speed poetry is not to amend once written or said... will have to settle and be ""happy"" with this... but how I wish I could change or add
""Would like to remind all AUK members and already Poets in this site ... to continue with their contributions so that we may soon have enough Poems for The First ""AUK Poems Book"" and so raise money and awareness about AUK and Asthma as a whole !""
So please do not be shy.... A short, long, happy, sad, angry, fed up, matter of fact and even Crazy Poems and Rhymes! ..... will be much appreciated !
So come on ... go on and .... put a few words down !! Pretty please with bows attached ! -
Susy
Hope you are all keeping well or at least ....like me .... on the mend !!
xxx
OK Susy, another shortburnt offering in the hope that asthma research will focus upon ‘pragmatic, real world and effectiveness’ drug trials rather than ’efficacy’ trials…
…""Ladies and gentlemen (and children of all ages,) the most amazing, the most spectacular, the most dangerous…â€
CIRCUS FAYRE CHOICES
Freefalling with a parachute whilst a
safety net loops a wide angled clause and
courts a trapeze artist though rarely calls
on the myriad times and falls. Safe choice?
Switchback rides surprises laugh back finale.
Dizzy. Lets start again, lets start again.
Golden cage rolls and rocks with steely bars
Though all hearts clamped with lockable keys
Iron, stone, wood. No difference to what
one lion step, or baby step makes when
confined to all singing ringmaster rules.
Clown face mask suppresses tears and fears, so
Giant steps are what we take when clothed in
Baby clown St Paul steps. Almost there? Nope.
A circle of arms negates all fears. Hope?
For some not all. Freefall parachuting
beckons. The softest breeze of tumbledown
foggy edges calls Circe island wise
Distance traveled is no guarantee gainst
Love, statistics and probability
Free fall without a safety net is fear
With a parachute is within grasp. Hears
music rides a magic colour carousel,
The smells and fears are cloaked in sweat and tears
Whistling down the wind is all around, can
hear the sound within her chest like tadpoles
struggling for air. Sometimes soft, gentling song.
Thank you for your poem.This is my first time i have used the forum and it was great to find people that understand how hard asthma can be to live with.I have been very unwell for 4 month.So thanks. Denise
Moderator Message
I understand there have been enquiries regarding publishing some of the poems on this thread.
This is a plan that was mooted some months ago from some of the thread originators and contributors. I think the general feeling was that if such a book were to be published, it shall be done with the full permission of all the contributers to the thread and with all proceeds going towards Asthma UK.
There has been a recent resurgence of interest in this project from a newer member and I wonder if we can use this impetus to start taking the project forwards.
Having had a chat with someone ""in the know"" today, it is worth bearing in mind that Asthma UK themselves hold the copyright to these works as they have now been ""published"" effectively in this forum. I think therefore the next step forwards may be to contact AUK themselves if we wish to progress this.
Can we please have a public ""show of hands"" regarding this, and suggestions for the best way of moving forwards with this.
Many Thanks,
CathBear
Mia.... All am going to say about your amazing poems is .....Well done ... and I am ... Rolling Up and hope that many more Roll Up ... Roll Up too !
Susy
Denise... welcome to AUK.... and thank you so much for your comment .... just sorry that you are having such a rotten time of it !
As you may have seen... most of us have a Love / Hate relationship with our Asthma and Meds !!!.... The most important thing is to...
Look after yourself and Keep well
hope to hear more from you soon !
Susy
AUK POEM BOOK
Thank you Cathbear and the ""one in the know"" for clarifying .... and ....
To all those that have written or chatted to me about this thread over the past few days ... I will second Cathbear's point and say ....
If we are going to make this work..... a SHOW of hands and more Poems Please !!!
If any current AUK or would be Poets in this site ... that would like or needs more information on where we are at ... please message me or AlanJ
Keep well, keep writing Poetry, and lets get the AUK Poem Book into print.... It is up to YOU all now !
Susy & AlanJ
I am me
If my life were different
If others didnt treat me different
would I be happy
would I be free
If my life were different
would I be the person I am today
would others not look down at me
if I were the same as them
In my life try so hard to be the same as you
I cannot be i am me and theres nothing i can do
So I stand strong and proud
and say I am me
I wouldnt change the way I am
and dont look down at me
I am the same as everyone
although sometimes its hard to breathe
I am what I am today
and am happy as can be
Thank you Kerry Anne, beautiful as always ! - I have not qualms in saying ... YOU are a poet... NO doubt .... so do not doubt your talent !!!
More, more, more !
Susy
OVER THE HILL
Fag dash Lill from Livingstone Hill
Would sit forlorn at the check-out till
Bish bash bosh she’d moan until
She’d clocked off posh for boyfriend Bill
Space consuming boyfriend Bill
Hunky dory with time to kill
With muscles to die for was always ill
Yet he kept his Lill, now there was a skill
Night life dazzled with drinks to spill
But day time frazzled with forms to fill
Job applications -such a chill
But their dream remained to escape the Hill
Living in sin was such a thrill
Until along came tiny pity pot Phil
With breaths and wheezes and sounds so shrill
Life just got harder without the pill!
Young at heart with dreams to fulfill
House husband Bill saw his basin fill
He’d preach hygiene to his fag ash Lill
With a ‘No Smoking’ sign on the mantle sill!
Heart break, arguments and tears until
Mid-night and beyond and beyond until
Intelligent chat was brought to nil
By the cries and love for the child so ill
.
..
...
....
In the tug-of-love tunnel he went through the mill
Through the allergy funnel his breathing took skill
But inhaler or homework flinched not the young Phil
There has been some really great stuff added to this thread recently. As always, I also encourage you all to keep it coming.
I have been counting up just how much stuff we have put on here (and on its sister thread, Poetry Shared) since Susy started the tmain hread in December and am staggered. I really had not realised that there was so much already. I do agree that we are probably ready now to start putting it all together.
I have already indicated a long time ago, privately and publicly that I am ready to put my hands to the wheel. Susy and I have talked about this for a long time and it does now seem we have to put our money where our mouths are. My hand is now up! (No comments from you, Susy!)
I do disagree about copyright and who owns the material, but that should not be an issue if contributors agree anyway and I, for one, would not like to do this without the specific agreement of every individual contributor. This is, after all, our own publication.
Alan
x
feel free to use any of my poems xxx
MY FRIEND
It was a long time ago
when we first met I trusted you
I thought you were a friend
you needed me i needed you
you were a friend
a friend i could trust
then you treated me bad
I never thought you would
when I needed you you turned your back
why did you do that
I will never know
I needed a friend
You were gone
my life turned grey
my friend blue
wasnt there
I tried to live without you
but I just could not breathe
I needed you
you was my only friend
all I can say
is my friend blue
dont turn your
back on me
I NEED YOU MY FRIEND
always and forever
xxxx
Copyright Thoughts
If you think you have the right
To take a poem what I wrote
And publish by moonlight
Somewhere foreign or remote
Think again and let’s be clear
Who owns my mind and heart?
Is it really you my dear?
Or is copying your art?
To copy poems from this thread for some unendorsed venture is like taking sweets from a sweet shop. It’s almost forgivable but not quite. Even if the shop keeper’s landlord says it’s OK, you won’t get far without the blessing of the shop keeper! But a shop keeper may wish to keep a landlord sweet! Bon Bon!
Personally I do feel that AUK may assume a copyright to these poems, but only with proper agreement with each contributor.
It remains for me to say that if my scant few were to add to the possibility of funds for AUK I would be delighted!
I have not composed this, it was composed by my daughter,before she passed away from a collection she wrote during one,of her many occasions in the hospital.
Our Link
There is this place in cyber space
That I came across one day
We all have a common link
A place were we all are the same
But different in some ways,
Each day we struggle to come to terms with our link
Some struggle and life is never the same
Breathing easy is our aim
We get advice and rant a lot
About how this IS IN ours life’s.
People asking about the meds they take, how, where and when,
About Peak flows are they right or wrong. ABOUT BAD TIMES, THEY HAVE HAD.
A place to feel not so alone when things are going wrong
A place to talk laugh and cry
A Place where we all try to get along.
A place Friendships forever formed,
Advice is given and facts obtained,
All people from different walks of life have a common link
This link is, in our lungs, breathing for life is its aim
Asthma is its name
Our lungs just do not work, some mild, unstable and BRITTLE!
Some find it harder, than others, struggling each day,
For razor, sharp air is rushing in, but getting it out is harder.
By day and night it stays the same, and nothing makes it better.
You learn to live with it, and the board makes it easier.
To cope when things go wrong, and you are not alone
Helping each other day by day and not judging when we are not all the same.
When asthma is going right, it has this habit of taken control of life again
Even when you fight it sometimes, it SEEMS JUST FAR TOO strong,
Your control taken away, and your life has to stop
Decisions that you cannot make, are then made for you by another man,
Then mechanical help is required, sometimes,
Therefore, you just fight to keep your breath alive.
They come, prod, and say things but you cannot communicate, not able to have a voice or choice of any kind.
Watching everything go by,
Just like time had stood still.
Time stands still while others are trying to help,
Seeing and hearing things that some how do not seem right, but we all try to fight this link we have its name we all know and hate.
Then when all the fight has gone and we have finally won,
We come to our cyber home
Where we have made some friends
Friends whom have similar thoughts and feelings and some have seen your pain.
Some have been where I have been, understanding my pain.
In addition, it helps to share the pain sometimes. This link we have inside of us.
Feels like it will never end
People called moderators who we do not know too well,
They are here to pick up the pieces that someone leaves behind. They support, encourage, and give advice for us all to learn.
Moreover, to halt the forum form becoming a war zone, sometimes.
They are people whom dedicate time and effort, to help keep us safe
Yet thanks they do not ask for but we sometimes forget to say
That they do all this for us, with their own time and kindness
Well done ... as contradictory Poems go ... that one is the tops just hope it was not induced by secondary preds from a very good and close friend !!
Susy
xxx
Losing the Fight ---------- Warning... may upset !
Hi all... I wrote this poem a couple of days ago when it all was getting a bit too much to cope with after been given even more meds to take and dosages of previous ones increased (to max everything!!!)... Well anyhow... please do not read on if you are feeling low do not want to get ""Moderated"" again!!!(wink wink ...hehehe !)
Wow Twizzle ... (Mr N.H! at his best!!!!!!) well done ... well worth the wait P! ... now you know what am going to ask you again ... don't you? ... So...
Keep them coming !!!
""The Shopping Trolley Man"" is truly a wonderful example and praise to rhyme !!!
Susy
A Little poem for my little man
My little man,
My pride and joy,
My everything,my little boy.
My little man what would i do,if you lost me and i lost you.
This terrible illness called asthma.......how can it be so cruel.
Why do you try and take my little man away,worry,anxiety every day.
Can you be kind just for once and give him health in abundance.
My little man i love you more everyday.
Hes so loving and so kind im so blessed that he is mine.
Thankyou little man for always fighting and growing stronger,hopefully this terrible illness wont have a hold on us much longer,
me and my little manx
Inspired by susy and twizzle a little.
Dear Lisa .... Beautifully said.... Your poem as all that stem from the heart... touch and bring new emotions to the front, to all our souls and minds !
Well done ... keep it up .... as I said... There is a POET in all of us !
Susy
Learning to read
As I learned to read
Running from the kindergarten to the library in my house
And as the pages turned
I climbed the rocky slopes and raised my eyes in wonder
Spread my wings out wide, sore in the crests of the currents
Swimming with seals and dolphins I discovered
That WORDS are, indeed a world filled with wonder
Like shimmering sands and oceans wide
Sunsets, crescent moons and forests green
Words have always carried me to faraway lands
Running like clouds in my head they soothed and fed
My dreams and mind
I have travelled the earth and the skies
In rivers of molten lava I’ve swam
Have walked and died in frozen lands
And sank my feet and toes in dunes of sand
Have seen every race and met all mankind
I first discovered “A†could not rest until I got to “Zâ€
The blurry lines took shape, with my eyes I ate the page
I swallowed the words I read. My thirst finally quenched
By the words that made the lines turning into paragraphs
Filling the page and book and opening my world and mind
It is so... I learned to read... I learned to write
Each new word found, sending me to
New realms and distant lands
Started revolutions, died a thousand times
Born and lived a million lives and times
Discovered poetry and rhyme
Never having once to leave the sanctuary
Of my family, my home nor my land
I fell in love; I killed, I lived, I died
I raise the flag up high and defeated I bled my veins dry
I was there with Johann Gutenberg when
The words were down in print for the very first time
Became the predator chasing the frighten beast
Lay dying as Scott wrote down his last words goodbye
I was the scientist, the poet, the soldier and the prophet
I was the girl first in hiding and then in a prison camp
I have watched millions die and
I was there at the birth on mankind
And when our galaxy was defined
It was thus I learned the history, the geography
My first passions and desires, my believes and dislikes
I learn to live and grow with each new page I turned
A reminder to us all that such headlines are real and significant memories to many. A reminder that the whole world needs to learn so many lessons. Why can we not all live in peace and harmony? Why cannot love conquer all?
My date is 7/7 and I know both of these bring some strong emotions with them. Thank you for sharing your date and your feelings with us. At least this little corner of the world can share your day with you; help you; support you; love you.
Alan
x
Thank you Alan and ... My dearest friend from now on when you read... my
""Nine Eleven"" read ""Nine Eleven - July the Seventh"" - (same thing just a differnt date!)
Thank you for all the PMs and Emails... Thank you all !
Love, Hugs and Kisses (x88 times) from the Windy Orkney Isles
Susy
x
My Friend
My Friend
Coughing and in Pain
Gasping for a breath
My friend asking for my help
... Breathe gentle, stay calm
Take your meds, is what I said
Breathe with me, gently breathe
... My friend did what I said
I will watch, keep you safe
I will stay and help you breathe
My friend took a puff of me
Quickly followed by one more intake of me
Holding me in the breath and trying not to cough again
... Just wait another minute more
Gently breathe I said
My friend waited while hurting
... You are doing well I said, I will wait until you are well again
My throat is sore
My back and ribs hurt, I ache all over
I feel so tired and cannot sleep, my friend said to me
... Just wait one minute more
And take another breath of me
My friend waited and then took two more puffs of me
Breathing was not the struggle it had been
Friend smiling back at me
... Now you must go to bed and rest I will be with you my friend
So with me in one hand we walked side by side
And off to bed we went
Up the stairs we climbed
And I watched until peaceful, gentle sleep
Overtook my friend at last
I watched as my friend slept
I snuggled up as close as I could be
Happy now to wait until my friend calls for me again
dont you worry though theres still some fight in me
Please feel free to delete if offended by this poem take care all xxxx
Thank you Kerry Anne for allowing us into your life, with the poetry you write ... and as always giving us new insights, I know I speak for all your friends and buddies when I say...
""You WILL win this fight""
Love, hugs from your Buddy in the Orkney Isles
Susy
The Storm
The storm rages on
Power loss and darkness falls
Covering the land and the skies
Candles flickering in every room
Do not want to go to hospital
Just because I need to nebulise
Sheets of lightning fill the sky
Like angry lions roars the thunder by
As the storm passes over us
Lungs are getting tired... Starting to gasp by now
I do not want to go to hospital just to nebulise
The charge in my little life's companion is nearly done
Darkness filling the land and my lungs
No electricity to re-charge
Gusts of wind wheeze on pass
Remembering the adaptor I smile
I will not go to hospital, just to nebulise
The wheezing gusts rush by outside
Starts the engine in the car
For the nebuliser go back to the house
Wrapped up in my quilt I sit in the car
I will not have to go to hospital just to nebulise
I am breathing easier as the car dances with every increasing gust
A flash of light hits the ground, the thunder replies in kind
I hold on tightly to the quilt and continue
With each hiss and splat to nebulise
Explosions of light and noise covering the skies
Flickering stars pierce the rolling clouds
My eyes turn to the dark island hills
I face south and smile listening and humming
The lyrics like the thunder making my skin dance
Happy that I do not have to go to hospital
... I have been “Nebulisedâ€, as my breathing eases
I watch and enjoy the battle in the sky
There is not a light to be seen on the land
Every house and farm asleep in the dark
But the explosions in the sky and
The whistling wind and the roaring thunder
Seem to argue and battle with each other
I listen and watch with calmed lungs
The magic and the wonder of the colours and the drama
I only write poetry about wierd emotional things i go thro never tried writin bout my asthma b4. U hav inspired me to hav a go! Watch this space!! Thanx 4 the poetry n the inspiration. Hope the snow has calmed down and ur warm and well.
Love n hugs from south yorkshire!
Lv kat Xx
Expressive Writing
Hello all ... most of you would have received by now the November issue of the “Asthma Magazineâ€.
In page 34 of which the idea of “Expressive Writing†is dealt with ... so being the bossy boots some of you say I am (you know who you are... will not mention any names P ..aka T50) .
I thought this would be the ideal time to “ENCOURAGE†all would be Poets new and old to express themselves in Poetry and maybe then we will have enough Poems to go into print in the new year and raise funds for AUK...
So please don’t be shy... and put down and add to this thread “A†line or eighty eight!
Look forward to being amazed, impressed, overwhelmed and generally swept away by the number of verses and closet poets here in AUK, so go on make my day!
Love, Hugs and wheezy kisses from the Orkney isles
Susy
Poems Book
Hello all would be Poets... I have received several emails from new members suggesting an AUK Poems Book!! ...
So with that in mind I would like to ask you / remind all ""New and Old AUK Poets"" to put fingers to keyboard and .... Inspire / help / move and or educate ! by sharing / contributing a Poem or three !!
Lets make 2009 the year that the AUK Poems book goes to PRINT !!!! so help us raise awareness and funds for Asthma UK !!!
Thanks a million ....
Susy
ps.. I am away from my house and pc at the mo...so hope to be pleasantly surprised next time am online and maybe find some new poems and poets in this thread !!!
My first is in airway but not in mere
My second is in steroid and sometimes in fear(s)
My third is in treatment, should always comply
My fourth is in tight but NOT (?) in goodbye
My fifth is in management - less of a ‘wheeze’
Thank you Mia for your contribution... it was very nice to return home and find a new ""posting"" ... Keep it up... The more poems posted the quicker we can start thinking about publishing !
Thanks again and well done, we are looking forward to many more!
Love and hugs from the Orkney Isles
Susy
That time of year is nearly here
the time the whole family dread
the time we talk about you
as if you are here
I know its only january
but my heart still aches for you
I look at your photo
and kiss you good morning and good nite
I tell you things and hope you hear me
I bring you flowers but wish it was toys
My heart aches as I type this
I did the same last year
I want to talk about you now
as april the 8th is to painful
we remember you on that day
and everyday now and forever
I clasp my hands and pray to god
your happy and smiling up there with him
I look at your photo and try to picture how you would be now
but it hurts so bad I always shed a tear
Dont you worry though my little man
we love you so much
when we do meet up
it will be like you were never taken
so be good my big man
your now nearly 6
and one day we will meet
but till that day
I will always kiss my photo
I know your being looked after
but still doesnt stop the ache in my heart for you
Listen to the words of tracy chapmans song ""THE PROMISE
My dearest Kerry Anne..
Many times its the poems that flow out and through us like waterfalls that are the most memorable ones...
As your most heart felt poem is... Timeless and beautiful... Because it comes from a heart that knows how to love!
Thank you again for sharing your poems with us
Susy
Thank you Susy for your kind words love KA xxxx
2009
2009
New Year has began, new hope for all mankind
Making a toast a wish that there are...
No new nothings that will make our breathing bad
And to have the time to be with those we love
A year without “A†attacks
A good year for everyone
2009 has began, time for us to have happy lungs
My New Years wish, my solemn oath is to stick around
And see 2010 and the ones that will follow there on...
wanted to post this earlier... but my lungs were playing up!
Wow Susy you never fail to impress me I think your poem is brilliant we must be getting close to getting this poem thread turned into a book of poems what you think Susy take care massive amounts of luv KA xx
Thank you KA and to all those that wrote direct to my email.
RE: The AUK book of Poems... I had a thought...
Do any of the AUK members know famous (or infamous people) in the public eye (that we could write to)... and that could be willing to write a little ditty/poem/limerick or rhyme if we asked.
My thought being that in this era of ""A"" to the rest of the alphabet (hehehe) celebrity watching... this may add an extra dimension to our book?
Maybe famous asthmatics in all fields from Acting to Xylophone player or Zoo Ownership!! (a bit tenuous I know but could not think of another X or Z)
Well... that was it... Please let me know what you think of the idea or if you have other suggestions please let me know and as always ...
Keep the POEMS coming PLEASE
Susy
Warning... This Poem May Potentially Upset - Sensitive subject - (Death)
I lost a friend yesterday
Tired of being unwell
He went away
He went away to rest
He went away to be happy
To be free of medicines and pain
He asked me to read out loud
At the final gathering
And to press play... to hear
The music he wanted to be
His last song and dance
My friend went away
To be at peace and fly across galaxies
And watch over me
I miss the laughter we shared
The memories and dreams
I know he is not alone and walks by my side this moment
Goodness ... I am away recovering/recuperating for a day yet again ... and I come back to such wonderful, beautifully written Poems.. WOW - a better medicine could not be found
MIA ... words fail to describe the depth, emotion and my praise of your POEM. Wonderful does hardly do it justice... and like Alan, I concur... Please keep them coming
Alan ... Your poems always touch me to the core and again another 88, ta !
Susy
Thanks for your kind words Susy and Alan. Both of you and others who have contributed to this thread are inspirational in prompting me to write about how asthma affects our daily lives.
Creative writing is both reflective and therapeutic.
If we can raise awareness and even money in all sorts of ways to further research and education into how asthma can be better understood and treated then this is the creative writing one!
‘The pen is mightier than the sword’ …
me again
I look at my watch and see the time
is it that time again or is it just me again
I watch the second hand and hope and pray
you go away as fast as you came
I do know its just me again
I cannot control you
I look again and again and again
You seem to know me and i know you
I tell myself i can do this
ignore this its just me again
you have this hold on me a hold so tight
but really i could let go
because its just me again
holding on not letting go
making things worse as time goes so slow
I look at my watch tick tock tick tock
but the time goes nowere but in my mind
its just me again
stop holding onto the past
dont worry about yesterday or the yesterday before that
wow i see ive made wonderful friends Alan Susy Katina KitKat whezzer1 plummie and the rest of you guys on AUK what would I do without you all alot of you have helped me in my hour of needs so again thankyou all hugs xxxxxxxx
Susy, what lovely poems. Husband was right to say to post.
Friends
Hello Kerry Anne ... and ... ""That's what friends are for"".. Take care of YOU
Alan ..I know I have said it before ... but as always... I love your sense of prose and rhyme
Thank you GrannyMo its always nice to have new people here in this Poem's thread...
We are always looking for more contributions of Poems, Rhymes, Odes,so .. I will say it again...
Please do not be shy .. and go ahead and POST a Poem or four !!
Susy
Reach
I felt alone but did not cry
there were to many tears that i wouldnt stop
if I startet
I reached my hand out to my friends
they grabbed my hand and hugged me
they reached out again to tell me im safe
reached out to tell me there always there
I reached to my friends when I was so low
low enough for them not to let go
They reached out to me hugged me tight
and said my friend im here for you tonite
Im here always for you my friend
That reach is still there for me off my friends
I will never let go because i need my friends
my friends help me in dark times and talk when its light
Im glad you all reached for me and have never let go
thankyou my friends and love you all for your help
Just wanted to thank everyone who helps me Susy Alanj Wheezer1 and Kat and Katina thankyou all from the bottom of my heart xxxxxx
Kerry Anne, THANK YOU for another Beautiful Poem... Keep writing your thoughts down and Keep the poems coming.
Take care of Yourself and Hope to see you posting here in this thread for a very long time... Remember we have a book to publish!!!
Love and warm hugs from the Orkney isles
Susy
I just thought I would put the poem Jack Tweed read at Jade Goody's funeral today. I'm not a big fan of either of them, but this poem really moved me.
His poem read: ""If only I could stop the clock and turn back the hands of time,
""To a moment in a crowded room when your eyes looked into mine.
""If only I could walk once more on a sandy beach with you,
""Holding hands with Bob and Fred the way we used to do.
""If only I could lie again in the warmth of your embrace,
""To feel your tender kisses and breath upon my face.
""You were always there beside me through the laughter and the tears,
""You made me feel so special and soothed away my fears.
""I have asked God to give me strength to face the days alone,
""To help me heal my broken heart and mend my shattered soul.
""My life will never be the same without you by my side,
""Grief almost too much to bear, pain difficult to hide.
""But when we look into the sky for the brightest star above,
""Bobby, me and Freddie will send you all our love.
Thank you Alan... as always your poems are a delight and you always make the words dance with each new line you write
Keep it up ...
TA
Love and hugs from the Orkney Isles
Susy
Xxx
Publishing
Hello all
I have not been around for quite sometime... battling my lungs !!! but in the last week made contact with some people with connections in the publishing world and they seemed very interested in the idea of a Asthma Poems Book...
So if any budding Poets have not put font and keypad to ""words""....
This would be the time to do so
Also ... would all those who have kindly contributed to the ""A Poem"" thread... get in touch with me ... most of you already have my email... as there are some ideas to ""tweak""
I hope to be fit to email all the Poets soon but please PM me or email me if you can
Hoping you are keeping well... and lets try to have a big push ... and get this wonderful AUK poem book idea finally out into the world !!!
Love Hugs and kisses from the Sunny Os...
Susy
xxx
heart ache
what I did today could change
I let them know all this is silly
all this she did he did
its not fair
Its not fair on me
its not fair on them
its not fair on the family
who i may never see again
I told them I was sorry
but they should be to
all this arguing is not good for you
When will things calm
when will we talk
it may be never
it may be tonight
I only said what was in my heart
and my brother didnt like it
his wife has to follow him
all the way throuhj this fight
I never ment to hurt noone
all I do is cry
for I may never see there kids again
i think id rather die
This is a poem from the heart
a heart that feels broken
I only wish I never said what I said
but it had to be said
I would never feel right again
if the truth was never spoken
but I love you bro and always will
lots of love and tears
your heart broken sister
Dear Kerry Anne
As Always KA ... your poetry touches the our hearts and soul.
Take care and be good to yourself
Love and Hugs from the Os
Susy
good news we all made up yipeeeeeeee xxx
One of my adult (?) aged children has asthma, smokes, and believes that his non smoking asthmatic mum worries too much...!
I am so sorry I have not been well enough to check this thread and comment on your wonderful contribution..
I hope I am back now with a vengeance !!!!.. and Mia ...please...
Please keep it up ... your poem is wonderful and obviously comes from the heart !
Love and hugs from the Orkney Isles
Susy S
Xxx
Hope you are OK Susy xxx
Another poem from the heart and thanks Susy for cajoling and encouraging everyone to write ‘from the heart’ and to keep writing and posting on this excellent thread.
This is my anxious - in - advance sort of poem, if that makes sense, of training for an event and hoping to raise some money for asthma research before any sort of displacement activity occurs BEFORE the event!
FOUR STICKS AND A ROLLS ROYCE ENGINE
Air and pollen is drawn in deep breath
Running along, step after step
Smelling the scent that’s known so well
Racing downhill and staying ahead
On we go keep driving along
Flying uphill, making ascent
Gasping in air, pulling in breath
Going along, still feeling strong
Waking the heart, moving ahead
Reaching the top, lungs are charged
Still in the lead going to succeed
Runner is engine and led by deep breath
Mechanically sound and muscular strength
Rolls Royce heart pumping arms and legs
(Borrowed deep breaths, borrowed deep breaths.)
Coasting sea air length after length
Silence is heard, an eagle appears,
Green melts blue light, yellow corn is here
Lost to reverie, past lives disappear,
Hand ripple of rye, ripple of eye
The scene is so green, earth meets the sky,
And still flies the eagle on tidal air,
Proud, independent, the bird wheels high
It swoops and protects a savage lair
The engine is strong and needs no favours
A glance in the sky admiringly high
But head bent down for continuing strength
Not needing air but a wary aware
This is a race, asthma v breath
Racing along feeling so strong
Mechanically sound and muscular strength
The lungs and heart running the length
Who will win, why should it matter?
Corn cobs approach run picking and laughter
Try strawberry field too near to home
Mental note to self the earth is loam
Hurdling stiles downhill a scary outcome?
Brushing ferns to the side notice a thorn underside
Poems are beautifull.a great way of putting into words how you feel.Well done keep the poems coming x
Wow good poem. Tells us how you feel. Sme people will feel the same.
Thank you Mia
Again... I am overwhelmed by your poetry .. your prose and style
Please please keep it up
- I continue fighting my lungs... seems that chest infections and pneumonia ... like me too much !!
Love hugs and wheezy kissed from the Orkney Isles
Susy
Xxx
A Poem I heard when small and put it up in my nans room in her care home.
We pray thee lord this home to bless,
with every joy and hapiness,
within these walls may thy peace dwell
and every member loves you well.
Give us lord thy grace to shere
thy peace and thy loving care,
when dark days come
and come they may
we pray the lord
will light the way.
might havefew sps
Buy A Poppy?
Will you buy a poppy, sir?
Will you wear it well?
For you will hear a band, sir,
Not a screaming shell.
It’s good to hear you’re well, sir,
And feeling in the pink,
Two minutes isn’t very long
To close your eyes and think.
When I was small, I’d say: “Oh my
I think that man is going to cryâ€.
Will you buy a poppy, sir?
Will you wear it proud?
For you will hear the children sing,
Not orders barked out loud.
“Fix those bayonets, off you go,
And if you don’t come back
there’s plenty more to follow you,
Bob and Bill and Jack.â€
Full-grown men begin to cry,
I often used to wonder why?
Anon
LOLO
LOLO
AQIC
I82Q
B4IP
Anon
Hush, hush, whisper who dares,
little boy stands at the top of the stairs.
Blood on his fingers, fur on the mat,
Christopher Robin's castrated the cat.
A Soldiers Prayer
Look God: I have never spoken to You,
but now I want to say, ""How do You do.""
You see God, they told me You did not exist;
and, like a fool, I believed all of this.
Last night from a shell hole I saw Your sky;
I figured right then they had told me a lie.
Had I taken the time to see the things You made,
I would know they weren't calling a spade a spade.
I wonder, God, if You would shake my hand;
somehow, I feel that You will understand.
Strange, I had to come to this hellish place
before I had time to see Your face.
Well, I guess there isn't much more to say,
but I am sure glad, God, I met You today.
I guess the zero hour will soon be here,
but I am not afraid since I know You are near.
The signal - well, God, I will have to go;
I love you lots, this I want you to know.
Looks like this will be a horrible fight;
who knows, I may come to your house tonight.
Though I wasn't friendly with you before,
I wonder, God, if you would wait at the door.
Look, I am crying, me shedding tears!
I wish I had known you these many years.
Well, I will have to go now, God. Goodbye!
Strange, since I met you, I am not afraid to die.
~ Author Unknown ~
Final Inspection
The Soldier stood and faced God,
which must always come to pass.
He hoped his shoes were shining,
just as bright as his brass.
Step forward you Soldier,
how shall I deal with you?
Have you always turned the other cheek?
To My Church have you been true?
The Solider squared his shoulders and said
No, Lord, I guess I ain't,
because those of us who carry guns
can't always be a saint.
I've had to work on Sundays
and at times my talk was tough,
and sometimes I've been violent,
because the world is awfully rough.
But, I never took a penny
that wasn't mine to keep.
Though I worked a lot of overtime,
when the bills got just too steep.
And I never passed a cry for help,
though at times I shook with fear,
and sometimes, God forgive me,
I've wept unmanly tears.
I know I don't deserve a place
among the people here.
They never wanted me around,
except to calm their fears.
If you've a place for me here, Lord,
it needn't be so grand,
I never expected or had too much,
but if you don't, I'll understand.
There was silence all around the throne
where the saints had often trod,
as the Soldier waited quietly,
for the judgement of his God.
Step forward now, you Soldier,
you've borne your burden well.
Walk peacefully on Heaven's streets,
you've done your time in Hell.
- Author Unknown -
A poem I wrote a while back
Waiting Room
Tick, tock. Tick, tock.
Slow motion picture scene
Heavy eyes and weighed down limbs
Memories flicker...of what has been
Tick, tock. Tick, tock.
Another minute. Another check
Lights fade and sound is no more
No mercy mission can save this wreck
Tick, tock. Tick, tock.
Statue of stone in the coming dawn
Others return to the land of the living
Lights put out and the curtain is drawn
Assembly
As the hand grasps for twelve
A slice of moonlight
Pierces the calm, cold glass
Through which the stars speak nightly
Discussion group for one
Purple,black, white
Colours blend as it sounds midnight
Orange, yellow, red
The night gone. The group dead.
Await the burning and the falling
Dropping of the day
My friends will reappear
I can think and be
PamPam , Nice poems,told you once you put one on the rest will follow.
We take language for granted,but when we take a step back and read poems,its beautiful how words come alive and full of meaning xxx
Thanks
Thank you PamPam...both poems are great, Thank you for contributing your poems to the ""A Poem"" thread... Please keep writing ... keep the good work up !
Love and Hugs from The Orkney Isles
To all the AUK Poets..well done and Hurrah!..Please ,please keep it up
Susy
Autumn
The leaves sway
Back and forth. Side to side
Each grappling for a friend. Some comfort
As the water pellets fall
Killing and maiming the mind
In an empty, barren field
The leaves
Do they make a sound?
For there is no ear to listen. Witness
Does the tree exist at all?
Are the leaves imaginary?
Each a separate worry, thought, feeling....
One by one, they fall
Dancing as they find their partners
In a slowly moving zig-zag. Weaving
To the ground.
its almost here
Its almost here that time of year
The time most love best
They time when purses are empited
And dads sit down and rest
Its almost here that time again
That time when most of us laugh
But Spare a thought for those alone sat in a flat
Sat thinking that they did this and that
Its almost here were did the year go
doesnt it go so fast
so raise a glass and give a cheer
for mums slaving over the dinner
Its almost here
when old saint nick checks his list twice
to see whose naughty and nice
I hope you all have a gift under your tree
this asthma family either big and small
we dont really care aslon as were all at home
sorry bit early lol xxxxxxxx
Hi Susy,a lovely poem have missed you and your poems love Glynis xxx
Thank you
Thank you Kerry Anne... your poem as always touch and convey so much, with each line.. each word you brings us closer to your heart and soul
and the same goes for you PamPam...Beautifully said making Pictures dance in my mind. Thank you and please keep it up
Sorry I have not been around much ... I have been having ""words"" with my lungs for a while .. but I think I am winning the argument at long last !
Thank you to all who read and WRITE their poems here in this thread.
I know from experience and by the emails I get just what help they are to those who are touched by the POEMS, The words, the Rhymes and the Odes
Take care of all of you and Please keep your POEMS coming ...
and Glynis ...I will try and be back here waxing lyrical very soon too.
Love Hugs and WHEEZY Kisses from the Orkney Isles
Susy
to those who are not here WARNING TALKS OF DEATH
To those who arnt here
To those up in the sky
in heaven above
looking after us all
I have to talk about my spencer
who is now 7 year old angel
I still kiss your photo everyday
To those who have love and lost
My heart is thinking of you
to those who only got to say hello
Before you said goodbye
I know how much your heart aches
Lets give a thought to each other
lets all have a hug
and think of those we love and loved
Poems
Thank you KerryAnne for another poem straight like an arrow from your heart ... to mine and others too
Love and hugs from the Orkney Isles
Susy
NUQ DAQ YUJ DA'POL?
there have been so many beautiful and moving poems here recently that I felt the need to be ... silly, so ...
Missing Chocolate
Is nearly carol and jingle time again
Is nearly time for trimmings, bobbles and the fairy-lights AGAIN
Peace on earth and same old movies on TV to see
And pine trees shedding their bits
Time for sore arms... oh no ... is also flu jab time!
Scarves and gloves... winter boots and runny noses
Reindeers’ flying fast... Santa’s HO Ho ho-ing!
And now on top of everything! ... another jab is prodding...
We have “swine†to look out for
Another year nearly over
Another one creeping up.., getting ever closer
To 2012 deadline and Oh my oh my ...
Keeping everything cross and hoping ...
That the Mayan’s were wrong
So that Zefram Cochrane may boldly warp into 2063...
And that we may prosper and live longer
Showing my true colours now and...
So my friends if you know what I’m saying
If you know what this is all about...
QA TLHO' (pronounced KAHTLOE' ) , and Qapla' batlh je (KAHPLAH BATL JEH)
My oh my … who is the clever one, or is it nerdy one ?
Or if my Best and truest friend is to be believed…
One more SADDO posting silly poems !!!
MajQa' !
Now being totally serious and asking those that know…
And in keeping with the seasons' spirit…and going with the flow
Maybe the fact that I got the latest ""Hotel Chocolate"" catalogue in the post and a day nebulizing watching Trekkie movies.... Can I use that as an excuse ? Yes / No? ... Any way ... LIVE LONG & PROSPER !
I know it does not rhyme .. but like a good joke...the story had to be told reality really IS stranger than fiction at times !.. I mean.. you could not make it up !!
Disclaimer...Names Times and Places may have been changed to protect the ""Innocent?"" ... (sorry in a silly happy mood now!)
that is an impressive story, although as a skinny blonde (although in my defence i eat constantly and care very little about how i look, my skinny blonde-ness is a result of genetics and a variety of medical conditions that lots of people i know are jealous of until they realise how hard it is) i would love to be able to come up with a good retort but i would fail so i will gracefully admit it was a good poem and made me smile x
I wish I could feel my lungs gently fill with air,
And then slowly breathe out forgetting any despair.
As each breath passes by,
I just wish I knew why?
Why was it me that God chose?
Was it to see how much I would grow?
Or was it to get me to appreciate life?
And think more about others feelings and strife?
I would not wish this on anyone,
Not even for a joke or a bit of fun.
But my aim in life is to keep on going,
Just follow the direction of the wind blowing.
Whatever is thrown at me I will prove I am strong,
I can do anything and prove everyone wrong.
I love my life and appreciate everything I CAN do,
And to be honest I probably could not do it if it were not for you!
You all stick by me when I am in ill,
And fill me in with all the gossip and thrill.
And the special times I do spend with you,
I feel like I can do anything I want to.
i wrote this for all my friends that have stuck by me through the last 2 years of various diognoses that cant be cured, including asthma but i have had that since i was born. hope u like it!!! xxxxxx
Thank You ""Backawayslol"" I am so glad that you were not offended !!! and thanks for the PM ! and the reply is I am home and although I still have achy ribs... This could be much much worse... I still could be .... hehehehe sorry could not resist it !!
Chloe Thank you for your beautiful Poem.. and I do hope you are feeling so much better now a days ... Please keep your spirits high, good times will come!
Alan .. My dearest and AUK magazine February 2010 ""Pin Up"" Friend !... thank you for EVERYTHING and I am I love your poem... Keeping everything cross that the preds do their thing. ta always
And to all AUK new and ""Old"" please PLEASE keep them coming ... The happy ones inspire us all .. the ""sad"" or angry ones tell us we are not the only ones and put shape to our feelings and thoughts.
Thank you .. one and all ... and There is always rooms for MORE more more
Love and hugs from the Orkney Isles
Susy
Old friend
Okay....I've been on the boards quite a while and feeling brave have decided to add my mite to the poetry. I wrote this aged 14 (a very long time ago!) about my golden labrador......a real old friend.
You can hear the tapping of an old dog's claws as it wanders down the hall,
You can hear him softly murmur as he bumps into the wall
For the eyes that were once lively now are dull and without light
And the limbs that were once springing now are creaking through the night.
Soon he will look no more on a world ever changing
He will go into the haven,
the place of all his dreams.
I wish that I could follow and keep him with me, by my side,
but know that that is selfish and I cannot be his guide.
The bonds of friendship last forever, no matter where we go,
This friend who I have loved and who loved me in return,
stays in my heart forever, a fire that will always burn.
Thank you
Thank you Fee Jay your poem it's beautiful even more so as it was written in your teens... Please do not be shy and do write and post ""A Poem"" again !
Wow Alan as always your poems paint pictures, as you make the words come alive and dance.
Thank you and please never stop putting your thoughts into words
TA very much
Love and hugs from the Starry Orkney Isles
Susy
Hi SUSY,hope you are a little better nice see you about.thanks for emails and pms,take care and lookforward to your next poem from your loving fan and friend Glynis xxx
computer user’s reboot
computer user’s reboot
Don’t you wish when life is bad
and things just don’t compute,
That all we really had to do
was stop and hit reboot?
Things would all turn out ok,
life could be so sweet
If we had those special keys
Ctrl, Alt, and Delete
Your boss is mad, your bills not paid,
your wife, well she’s just mute
Just stop and hit those wonderful keys
that make it all reboot
You’d like to have another job
but you fear living in the street?
You solve it all and start a new,
Ctrl, Alt, and Delete
I've loved this poem since I was little. My mum used to read it to me. The poem is from The Verse Book of a Homely Woman by Fay Inchfawn.
The Naughty Day
I've had a naughty day to-day.
I scrunched a biscuit in my hair,
And dipped my feeder in the milk,
And spread my rusk upon a chair.
When mother put me in my bath,
I tossed the water all about,
And popped the soap upon my head,
And threw the sponge and flannel out.
I wouldn't let her put my hand
Inside the arm-hole of my vest;
I held the sleeve until she said
I really never SHOULD be dressed.
And while she made the beds, I found
Her tidy, and took out the hairs;
And then I got the water-can
And tipped it headlong down the stairs.
I crawled along the kitchen floor,
And got some coal out of the box,
And drew black pictures on the walls,
And wiped my fingers on my socks.
Oh, this HAS been a naughty day!
That's why they've put me off to bed.
""He CAN'T get into mischief there,
Perhaps we'll have some peace,"" they
said.
They put the net across my cot,
Or else downstairs again I'd creep.
But, see, I'll suck the counterpane
To PULP before I go to sleep!
lovely Poem nana and woody-som
2011
Glistening white, covers the land
Jewels twinkle in the skies
One more layer of clothes and mittens on
Loads of gifts and things lost in the post
They say food in the markets running low
But never mind all that
This is my Christmas wish to you
That when you look back in this year past
And are counting back all the joyful laughter days
And the number of nights sad or low
That Joy and smiles outweigh the tears shed
And wheezy days were far and few
I wish you time with friends and family
And to remember to take all your meds
And who knows maybe... this New Year now
Your deepest hopes come true
That you too are loved and cherished
Full of season’s hope and cheer
But always remember that Christmas and New Year
Are just two days... Not a full year
So resolute to have not just those two
But a very full happy safe healthy loving year
Keep warm and toasty
Snuggle up tight
Take a puff of the inhaler and Raise a glass
And make today the first day of a gloriously
Magnificent, healthier, brighter and full New Year
Susy
Happy New year to all at AUK, I am a bit late posting this as I have been a little under the weather,memory is going... and I have been a little under the weather.... ooh dear... anyway... Happy New Year !
SUSY,
Happy New Year.
Lovely poem Susy,hope you are feeling a little better and lovely
see you back on AUK XXXX
I thought I would bump this thread as I remembered it from a long time ago. More especially as some of it may be of some help or comfort to those who are struggling right now.
Hugs and healing thoughts to all
Fee
That was really lovely susy
this means a lot to me right now....
beautifully worded and so meaningful, straight from the heart
x x x
Susys poems are lovely.Shes not been on for a while .Will send her a email xxx
wow Susy it is wonderful your writing, so true she gets me away for classes today
Thank you
Thank you ALL for your lovely comments, I have not been here for a while... Trying to get myself better (long story..)
I hope to get round to writing a little more soon but PLEASE any would be and already are ""Poets "".. Please do add your Asthma poems here. Remember a poem does not have to rhyme..
A Poem is the gift our Soul gives to the world... and paints your heart with words
Love and hugs
Susy
Take a moment
Stop.
Take a moment.
Breathe.
Stop.
Take a moment.
Listen.
If I had the space and time I’d really try to show.
How very hard this is to do, how much you need to know.
My life is ruled it seems to me,
By rules you do not ken
I do not have the life I want
Or only now and then
This asthma is a tiger, it tries to conquer me
It will not win, I will not rest, determined I will not flee
Before it’s teeth and snarling ways
I stand always defiant
And with your help and listening I will be triumphant.
Please doctor, nurse
Don’t look away
Don’t look to books and numbers
Look at me and understand
Just……..
Stop.
Take a moment.
Listen
Stop.
Take a moment.
Very moved by your poem, FeeJay.
If you don't mind, I'd like to copy it and put it in my medical folder so that I can show my doctors. Would that be ok?
Thanks for expressing things so eloquently!
Wishes
Thanks Wishes.
Please feel free to put it in your folder
Light Keeper
Sleep eludes,
I sit and stare out at the silent, shaded street.
Reflections,
Time to think, time to see.
Dark thoughts,
Suffocating, extinguish the light.
Muffled,
Whirling, kaleidoscope collisions.
Suddenly,
A light, banishes the dark.
Bearer of the light, guardian
Saviour, Friend.
Soldier Man
The soldier stood, alone,
Head bowed, torn and battered.
A strong man.
But in this place, here,
Bloodied, scarred, broken.
Alone.
Out of the darkness, slowly
But with gathering speed and strength.
A light.
A candle flame, flickering,
Gaining strength the closer it came.
A multitude of candles, glowing.
Bringing light, strength and warmth.
And friends.
The soldier stood, surrounded,
By the light and strength of friends.
A strong man.
Thanks Feejay for bumping up not sure I'd read this before. Woody-som, love your computer user’s reboot
What happened next is a story that went on for another week and ended with a far from routine OP appointment at RBH.
I have moved from the noise and dirt of Kensington out to the clean air at the edge of the South Downs National Park, seven miles north of Brighton. This was my first call for urgent help since moving there last summer. With a 23-minute wait, thank heavens it was not my last. I was used to three.
AlanJ
Hello AlanJ, long time no see!
Thanks for the poem thus bumping this thread back up.
Hope you're doing ok now. I await the next instalment of your story.
I'm in the RBH soon.
Here's a poem - not mine - that I have always liked.
W.B. Yeats: He Wishes For The Cloths Of Heaven (1899)
Life has been a bit different. How do we chat offline these days, now that private messaging seems to have gone from here?
Not doing too well right now. Been talking to RBH today and I have promised that I will get myself costa-fied if I continue like this. I think I may well be keeping that promise tomorrow. Subject to being on the outside next Wednesday, will be back at RBH on Wednesday afternoon for clinic.
Public thanks to Dr Alina Dimitru at RBH on AMG's team. She has been and continues to be so very, very supportive.
AlanJ
x
Hello,
Well as you have seen things have changed with the new forum resulting from IT contracts ending. Private Messaging is the only non working feature of the board with new ones such as thanks, watching topics, moderator ability to move posts to correct places etc. It is currently disabled because PM moderating tools on the old board are not available plus problems with emails. With unmoderated private messaging and safeguarding issues Asthma UK has to comply with the Charities Commission that minors can access.
Anyway enough of the brief summary of changes. Offline chat is not available so email, facebook ... are the way forward. Unfortunately, exchanging such details is rather difficult considering the boards are open for all to read.
Sorry to hear you are not doing so well but good to hear RBH are looking after you so well. As an aside, speaking from experience, thanks can make a health professional's day especially if busy, politics ... I am in the RBH most of the week after next, are you are around then?
Thanks for the explanation, TJ. I am so glad I have given up IT for a living.
I hope it's OK to say send me across a Facebook friend request and we can chat there, but you have to guess my Facebook name. There is a big clue somewhere here.
RBH the week after next is unknown at the moment. Right now, I can turn up without an appointment, which is what I am doing this coming Wednesday afternoon. I am feeling somewhat stir crazy right now, not being able to move far from my new home without getting exhausted, so, if I can get out the week after next, the trip up will give me a good escape with a purpose. I am sure I will be OK by then, even if I do get ""self-costafied"" tomorrow. I will be coming up from near Brighton.
Alan J Johns
x
No problem re the explanation. Yes that's fine - you may want to edit the post unless you're ok with leaving the clue for all to see - but can I find at this moment? Will try again once back on the full site rather than than the app.
Good you can drop in, is that MG clinic - not surprised it ran behind when I was there. Take it more likely than not you'll be costa'ed?
Take care of yourself
TJ
AlanJ, no luck searching for you. How are doing this week? Good luck with the RBH clinic tomorrow.
in regards to facebook requests with the absence of the private messaging system, this has been discussed. Details could be posted here on the forum e.g. link to page or username etc to search. Could be duely edited in the event one would rather these do not remain in the public eye.
Managed to stay on the outside - just, but I'm still all over the place.
If anyone you know (and has your contact details) sees me at the afternoon (AMG) clinic tomorrow (Wednesday) and I have not passed out in a heap on the floor (I will have my bright yellow ""HEAD"" bag, packed for NHS stay), perhaps they could pass on email addresses.
I like the idea of linking in the Facebook usernames. I am happy to include mine in my posts, but will not do so yet as I do not want to set a trend before others agree. The same applies to my LinkedIn profile, which is also very much in use.
Good luck tomorrow, think there are a few there but in the morning clinic. Have you seen the General forum » RBH next week?
There is a similar discussion there. I may add my details for a limited time only. I have discussed with the other moderators and the webeditor is aware. It is ok to use facebook usernames etcI like the idea of linking in the Facebook usernames. I am happy to include mine in my posts, but will not do so yet as I do not want to set a trend before others agree. The same applies to my LinkedIn profile, which is also very much in use.
Are your privacy settings on facebook open for people to search and find you?
The bright yellow bag is a new & good idea for ways of spotting people though - needed in that massive waiting room. If anyone you know (and has your contact details) sees me at the afternoon (AMG) clinic tomorrow (Wednesday) and I have not passed out in a heap on the floor (I will have my bright yellow ""HEAD"" bag, packed for NHS stay), perhaps they could pass on email addresses.
AMG gave me a huge lecture on playing with my own life! After that, he sent me immediately across to my local costa, Princess Royal, Haywards Heath, where they were expecting me. I am back home now, very tired, a bit emotional and looking forward to 3 months recuperation from pneumonia.
Try: facebook.com/AlanJJohns. You should be able to find me with that. My privacy settings should allow. I'll tell you more there. When I have got my head clear again about all that happened, I will tell everyone. I am very lucky and I have learnt some very serious lessons.
AlanJ
x
Oh no, that does not sound great then. Good he was looking after you even if there was a telling off, sounds like it may have been needed.
That fb has worked too.
Take care of yourself, ostrich/hibernate for a while if it helps to get your head around all the events
AlanJ, not seen you on here for a while, sounds like things have been eventful! As you may have gathered from reading other threads, I was in Lind last week (6th-9th) - shame no overlap, though sounds like you might not have been in a position to talk. I hope you start doing better soon and recovering.
I remember you saying Dr MG was great and really lovely - you were right, regardless of how severe you are - or not - and they don't just tell you to go away, but seem to be aware that you exist even when not sitting in front of them.
I will be there again, so maybe I'll see you another time - hopefully not one when you're about to be captured and given a ticking-off!
Seems like I have missed a number of people just in the last few weeks. One of the things I have lost moving away from Kensington last year is RBH being local and giving me the opportunity to pop by easily to meet up. Oh well, At least (or so I thought) my lungs are much better off down here in the Sussex countryside.
I have total respect, admiration and praise for AMG and the team. My (needed) lecture does not change that. It probabaly strengthens it. It also showed just how passionate he is about people. My asthma was totally turned around with their help. I even have 724 recorded as a best PF (although the Piko meter later turned out to be faulty and my best was really about 640, which is still pretty amazing). Nothing was ignored. Everything was listened to and questioned. I have learnt never to worry about talking to a member of the team I have never met before as they learn it all. They may not have met you, but they know you inside out.
My one stay in Lind was for a acid reflux overnight test and that had never ever been questioned until I got to RBH. It turned out to be significant and is now managed well.
As we do not have messaging here, I am very happy for you to look me up on FB. TJ has just found me with facebook.com/AlanJJohns, so I know that will work.
I will look to meeting up when I am slightly more with it and a little less emotional. I am sure I will post a poem here soon related to all this before my emotions leave it all behind (which they need to do).
I have not been able to find a clear guide to O2 levels. I did not ignore them, but I did not take enough notice of the threat to life, especially when combined with other signals. I am lucky. I offer this as a warning to others not to do as I did. I hope I have now got these right, but will refine/correct them if required.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
I really like it! Very well said!
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Something still not right…. Advice anyone? 🙏🏽
Query asthma- advice needed 
