A Poem

I have writen Poetry since childhood.

I wrote this about 6 month ago and came across it whilst doing a clear out... Was going to Put away but I was nagged into posting it I wanted to amend it/improve it but husband would not let me.

What do you think....


B.A.t 1

I have this companion

The one I love to hate

She follows my every move

With me wherever I go

Will not let me be

This “mate”

I love to hate

She is all over my face

Following my every step

Keeping me indoors

Keeping me oppressed

Always keeps me company

Running “My” life around her needs

Ruling my home, my nest, my days

She keeps my friends and the world

At bay and far from me

I call her B.A.T 1

Sometimes I escape her hold on me

For an hour, or even once for a day

I managed to forget about her during that one glorious day

But then she always somehow finds me

And the hate begins again

BAT1 has taken over my days and

When a friend calls by unexpectedly

Or when I am trying to sleep

She arrives in oh so many ways and

Triggered by oh so many things

When she arrives ...is like a slap in the face

Like a kick in the guts

Like crushing lungs... pressing down hard on me

She takes my breath away

She makes me wheeze, cough and gasp

And those that love and care for me

Run to start the “NEB” once again

And as the vapours hiss and spit

Desperately trying to keep “her” under controlled and at bay

I think how much I hate her and how glorious

It would be to be free

Free of meds

Free of “her”

Free to visit...work and play

Free to be... Free and healthy again

I have a “friend” who lives with me

I call her ... B.A.T 1

I hate how she rules and runs my days and nights

And I hate the fact that

I can almost hear her mockingly say....

“I’ll be with you for the rest of your days

You cannot escape me nor get away


I’ll be with you till you draw your last breath”

And this is what I say to her

""That maybe so, my hurtful mate !...

But I still WILL fight you...

Because I am not on my own, no more

One day you and your type will be gone""

Leaving not just me but all those like me well ALONE.

© Susy

318 Replies

  • Wow, Susy, that says it all"" Well done you for being able to write so elequently about yoor unwelcome friend.


  • I agree,

    good job :) I really like it! Very well said!

  • Thank you

    Thank you to all that have sent me Messages regarding ""BAT1"" Just really sorry that there are so many of us with such a demanding unwelcome ""Guest"" in our lives.

    To those that have mentioned ""Publishing"" either in ""National Press"" or ""Publications"" (not quite sure what you mean) and I really would not know how to go about it nor very sure if that is something that would be suitable for the General Public as it were, not even mentioning the fact that ""it"" probably needs a lot of tweaking!!!.

    So ...to all of you that have your own pest ""Brittle asthma type 1 or 2"" Keep up the good fight and lets hope We and Asthma UK can find a way to conquer this annoying pest.

    Be good and take care of your lungs.

    Thanks again for the messages and DO keep in touch

  • Hi Susy,

    Excelent poem and Description of BAT1! I seem to have 2 BATS! But I keep a firm thumb on them where possible.

    You could send it into Asthma UK for publication in the Asthma News magazine with a brief description of Brittle asthma.

    I have written poetry in the past - but need to be in the right mood!


  • That was a great poem,

  • re poem

    has expressed all i have ever wanted to say about living with asthma for 25 years, and not being able to do so., wishing everyone a very happy xmas and all the best of health for 2008.


  • Does this make you BATGIRL, Susy??

  • Good Question !!! ....I can just see myself with the mask and cape...I wonder ...does BatGirl have any special powers/abilities ? and if not ....what would you pick/choose as her ""Special Powers""? ???

  • Thanks for the message Neil

  • Oh what emotions friends can bring

    They love you, they hate you, they do such strange things

    I am so lucky. I have a friend.

    One friend is orange. One friend is blue.

    I’m fonder of mine than it seems are you.

    I am so lucky. I have a friend.

    A laugh makes me wheezy, a cry makes it worse

    But my little blue friend is there like a nurse

    I am so lucky. I have a friend.

    One friend’s a writer, she writes on a site

    For people who breathe with all of their might

    I am so lucky. I have a friend.

    She offers me turkey when shop one is lost

    If I don’t mind the Orkneys – such a far post

    I am so lucky. I have a friend.

    Merry Christmas, friend


  • Christmas dinner

    Thank you AlanJ .

    Glad your Turkey is home!

    But remember not to gorge

    Raise a glass and think

    Of your friend

    Here...up north.

    I will raise my goblet

    To where you would have sat

    And I will toast your Health, your grace

    And your fine word command

    I send you a Christmas wish this night

    May your Blue and Orange nurses

    Always keep you safe and sound

    When tears and even laughter

    Make you wheeze, cough or splat !

    And more importantly my friend

    Have a lovely, lovely one!!!!

    © Susy

    Have a great Christmas Alan

    With love and hugs from Orkney

    Your friend


  • Water pouring over me, not having my finest hour

    A cheeky little number – she joined me in the shower

    I was red. She was blue. I squeezed her very tight.

    She made a hiss. The gentlest kiss. She hit the spot all right.

    Again I begged. Give me some more. I really was quite rough.

    She hissed. She kissed. This time I had enough.

    So short of breath, no words were said. She laid there by my side

    I dressed in peace with the calm my blue nurse did provide

    Onwards then came Christmas Day. The challenge of the day

    Make a feast for everyone – don’t force them all away

    With ovens filled and turkey stuffed as far as we could dare.

    A little late, upon our plate, we laid our finest fare

    The turkey was fine. The parsnips done. The sprouts were really dandy

    The Christmas pudding was set on fire. The sauce was lashed with Brandy.

    With finest wines, our glasses raised and pointed far away

    We gave our thoughts to new found friends on this special day.


  • A poem for 2008/ I am charging warrior

    I am charging warrior

    A Knight on his white horse

    The Atrovent , Zafirlukast and Seretide

    Plus all my other meds

    My shinny armour , good and true they are

    Ventolin the shield around my arm and command

    Prednisolone is the spear and the sword

    With which

    I go to fight the fire breathing dragon

    The devil and the troll

    I carry Antibiotics and a Nebuliser

    To sustain me on the road

    Whist I go hunting

    Dragons the demons and trolls

    The battle is continuous

    Perilous in its force

    The enemy sometimes grabs me

    And for ransom I am held

    It’s then my shining armour

    And the weapons in my hands

    Cripple, wound or hurt the dragon

    Breaking through his grasp

    My lung may be pierced

    My ribs about to crack

    But I go fighting dragons

    Until my quest is done

    I battle for my freedom

    I fight for my life

    I Sabotage the dragon’s plans

    Running circles around his camp

    Always building “resistance” forces

    We go on with the good fight

    There are many in our army

    Who are fighting just as hard!

    Like the Knights of the Round Table

    We each have a quest

    Our own holy grail to find

    I am a fighting warrior

    I am fighting for my life

    The dragon sometimes beats me

    But I know we’ll win this fight

    The dragon fights dirty

    Does not follow rules nor commands

    The dragon seems invincible at times

    Even and specially at night

    As he fights us with all his might

    It keeps us from sleeping

    It tries to wear us out

    But our knights in shining armour

    Keep going on and on with the good fight

    The dragon will not beat us

    Although we may be tire or even sometimes lose our lives

    We go on fighting for all those yet to come

    We are fighting warriors

    We fight with and for our Lungs

    We fight for quality of life

    Each and every one of us has promised

    To go on fighting until

    This battle and war is won!

    We are fighting warriors

    Hear our battle cry

    “We are hunting fire breathing dragons we are fighting the good fight”

    © Susy

  • just wanted to say how wonderful your poetry is, and although i do not have brittle asthma, i can relate to them.

    hope you're okay


  • My Dream For Friends

    With special thanks to Susy for her encouragement and inspiration, I also offer the following:-

    My Dream For Friends In 2008

    Oh warriors strong, the fight, the war

    Is sent to give much fear

    Though never in its reckoning

    Did it count on the New Year.

    The dragon breathing is a myth

    Its fire is but a dream

    It cannot burn. It cannot steal

    The oxygen of life.

    A spirit, a will, a positive embrace

    Of future there to behold

    Has struck the legend down from heights

    Its venom all now splat.

    Those very lungs whose air is short

    Now shout with so much pride

    A battle plan to celebrate

    The enemy expired.

    For friends far North, far East, far West

    Far South and further still

    This dream I bring for all

    A hope, a life, a cure.


  • “When AUK is feeling down”

    This one's inspired by CathBear.

    My dream world today has no clouds and the sky has been airbrushed the purest of blue.

    My dream world today has no roads and under my feet is a never-ending sandpit of sparkling bright white.

    My dream world today is so warm. The air is warm. The sea is warm. There is peace in the waves.

    My dream world today does not shout. It does not moan. It does not groan.

    My dream world today is a duvet for my brain, a pillow for my ears, a blanket for my heart.

    My dream world today has no phones, no wires, no plugs and no webs.

    My dream world today looks after my friends, we talk and we hear.

    My dream world today shares time for each other.

    My dream world today has no doors – please come in.


  • Oh my, I have a poem! Second only to just seeing John Barrowman live, you've just made my day! Thanks, Alan. I *LOVE* the line ""duvet for my brain"". That just sounds exactly what I need at times.

  • The Enemy at my side

    He lays’ with me

    Under my very skin

    The air that I breathe

    The very thing I need to live

    My love and life

    My soul and death

    With each one of his kisses

    He takes my breath away

    When laying over me

    Overwhelming my every sense

    Again he takes my breath away

    And with it the air that I need

    I carry him inside me

    And he lingers on my skin

    For all the world to see

    He kisses me

    Whist robbing me of the air that I breathe

    With the hunger, passion and

    Lust of each deadly kiss

    He lingers and presses on my lungs

    Until I cannot breathe

    He loves me and I fight him

    Whist always awaiting his next embrace and kiss

    He craves and longs to have

    The very thing I need to live

    And I patiently prepare to be

    Lost forever in his desperate Hug and kiss

    My mate and companion

    The one that lives with me

    His grasp and hold on me

    Will never, ever let me be

    The one that keeps me

    The one that robs me

    Of the very air I need to live

    He beats, hurts and bruises me

    Loves to kick me when I am down

    He is the bully

    The enemy at my side

    The bully in my life and bed

    With each lingering kiss

    Keeps me on my knees

    Until I lose my senses

    Until I cannot breathe

    My day to day companion

    The one that steals from me

    Wraps himself around me

    And keeps me from my sleep

    He laughs at my discomfort

    And then he stops to give

    Another tender loving kiss

    Knowing I’ll never escape him

    Knowing I will never again be free

    I braise myself

    And patiently await his next

    Final, lingering and fatal kiss

    © Susy

    (as you can tell I was going through another battle with BA when I wrote this... and although fighting ""him"" still... in a better mood now, thanks to my new friends - you know who you are !!)

  • groovy chicks

    hi its groovy chick here really love your poems i do poetry you want here it

    here we go

    we are so cool

    and we are so great

    that not many people appriciate

    that having asthma is no joke as we sit and stand there as we begin to choke like a really old bloke

    and nobody just sit and stair that you all need to realy care

    some folks just do not see that asthma maybe in you and definately in me.

    by groovy chick who is asthmatic herself she is 29. i did this poem as i have had real problems with people in the past taking the mickey and they still do i hate bullying and its not nice i didn`t or we choose to be asthmatic.

  • Thank you groovy chick

    Really loved your poem. Hope you are keeping well.

    Would love to read more if you have them... the more POETS the better I say.

    Love, hugs and wheezy kisses from a very cold and whitish Orkney isles


  • Ode to my NEBS

    You must name your Nebs

    An AUK friend call KateMoss did say

    So I huffed and puffed

    And I scratched my head

    Whilst looking at my Nebs

    What should I call both of you?

    I asked you out loud this day...

    But my hissing mates did not comply

    No suggestion came back from them

    So much time is spent with you...

    Depending on your gentle touch

    You are a soul mates, now

    Woven into the tapestry

    That is my curious life

    So who do I fancy...?

    To give so much of my time

    Suddenly and unexpectedly

    Two names leapt and danced in my mind

    So I call one “Robert Redford”

    My very first childhood LOVE

    And now he keeps company

    And gives me life...specially and even more so

    When I watch the movies in which he acts


    The other one’s name is a secret....

    Held tight in my heart

    And with every whispering hiss

    I now close my eyes and

    I wickedly remember and smile !

    © Susy

  • tired

    feeling tired from this pain

    i cannot name it oh whats it again

    its a thing they call asthma not no fun and such delight

    as were are breathing to try and keep up the fight.

    but having understanding friends on asthma uk to say the least is a sight of relief as we keep on dreaming to oh what to shuch belief.

    the blue brown red and green can be really gross

    to the things that we depend we live on the most

    from groovy chick

  • smoking


    Everyone who has a smoke

    it makes us cough and wheeze

    oh i wish they would stop smoking oh please oh please oh please.

    out comes the inhaler

    with every single puff

    no one stopped and cared

    i wish theyd stop smoking i dont care if they went off in a huff

    then we would be able to breathe without a cough and or a wheeze.

    Here we sit and here we stand waiting for this some what healthy land

    of what is left of it

    people treat it as a dumping pit.

    from groovy chick

  • inhalers

    inhalers come in different types one called dry powder

    you dont want it anything even in a dish called chowder

    it helps us breathe through a wheeze it even stops you from a cough.

    when we drink from a broth.

    from groovy chick

  • inhalers no 2

    inhalers come in spray form in a sort of mist

    dont get in the way it will come out hiss.

    we breathe it in when we need

    we feel great

    we begin to love it even wed thought wed hate

    its better feeling this


    we will often say

    no wheeze today no time for delay

    i want to have some fantastic fun and go out for a longer one.

    before the magic ends

    for my fantastic wonderful inhaler type friend.

    from groovy chick

    anyone else gonna have a go id like to see if your as good as me.

  • feeling tight

    i wish this tight feeling of 10 people on my chest

    would go and play out one day to give us a rest.

    fom this big old heavy pest

    it feels so bad you cannot breathe

    all you cough and then you wheeze

    and then we sometime sneeze

    Out comes the inhaler oh what fun with glee is this the wonderful magic thing

    that they made for me. its blue and cool and good for you and we can breathe again oh what a sight oh what relief.

    from groovy chick

  • bugs

    catching bugs is a yucky thing

    why do people have to bring.

    we all stayed away but seemed to

    get that dreaded thing.

    we are feeling so ruff

    but we are really tough

    even though we sound a little bad

    we be rid of it

    and then we will be realy glad.

    even though the asthmas high

    we will live and not die

    and for the people that are unkind we will put up in a rocket

    and they all come down and fall into a plug socket.

    from groovy chick im not sure what this is like what do u lot think id like to know does it sound right anybody.

  • re poems

    did anyone think about getting poems published and raising funds for asthma research etc just a thought!!


  • Yes

    Hi Christina... Some of us have been talking about that, I would love to hear about any other would be POETS ...as the more of us , with very different prose styles but with ONE big thing in mind, may help make those that cannot express NOR understand what Asthma does to a person's life the better. So please if anyone can contribute and or HELP us set this up out there in WWW land. Please post here or get in touch

    I have received several messages regarding this very topic and there seems to be a real interest in actually DOING Something ....Advice welcome from one and all.

    Love, and wheezy kisses from the Orkney Isles


  • Once there was a young girl

    she ran about the house

    never any fear from getting tired out

    Now this girl feels old now asthma I here you shout

    no more running round the house

    always worrying about getting tired out

    Today there is an young woman with her best friend blue

    he goes with her everywere

    to help when shes tired out

    I tried first attempt ever at a poem xx

  • Well done Kerry anne

    Keep it up...It does get easier with time.

    Love and wheezy kisses and hugs


  • Hospital Neb

    I visited the hospital

    The doctors and nurses

    Smiled and shrugged

    As they ran and rolled their eyes

    Get the syringe, Ventalin and Atrovent

    A chamber filled with fluid, tubing and a green mask

    We need to take a reading...so go on

    Blow, blow hard

    Your Peak flow is not so good

    You’ll have to stay the night

    We’ll increase the rate of O

    And keep a check on you all night

    Here is the Predniselone carrying needle

    The pain, discomfort will pass

    I visited the hospital

    Went in their own white and flashing bus

    The men in bright green overalls

    Nodded and held my hand

    I am sorry I kept saying

    Please don’t make a fuss

    I always sound like this...

    I always hiss, cough, wheeze and splat

    I had to go to hospital

    But again I made out

    No need to call the men

    That always dress in black

    I made it out of hospital

    Glad to say...

    ""I am back""

    © Susy

  • peak flow


    using a peakflow meter

    just to check the wheeze

    moving the dial around before we sit right down making ourselves at eaze

    add more verses to this one the more the merrier for that poetry book and cd to raise money for asthma uk and kick asthma too.

    from groovy chick

  • feeling wheezy

    feeling ruff and wheezy

    i went to the doctors one day not feeling myself

    the doctor said come sit right here i take a look myself.

    he listened to my chest he says there is a wheeeze oh dont panic just sit there and wait a moment please

    he wrote a note on some paper just for an inaler just take those for a minute because your looking paler

    you will look brighter still just take that inhaler.

    we went back to the docs

    because im feeling brighter

    i took the inhalers still because im a fighter

    even though the taste is grim

    id rather be able to breathe

    without a cough or a tight chested wheeze.

    inhalers are cool and great they are my best mate.

    and would`nt want to live without.

    with a laugh and with a scream

    i am wondering yes just wondering

    is it all just a dream.

    no its no laugh and joke as we sit and begin to choke

    we cough and wheeze

    use blue inhaler with great eaze

    from that terrible tight chest it gives us a well earned rest.

    from groovy chick

  • feeling wheezy

    feeling ruff and wheezy

    i went to the doctors one day not feeling myself

    the doctor said come sit right here i take a look myself.

    he listened to my chest he says there is a wheeeze oh dont panic just sit there and wait a moment please

    he wrote a note on some paper just for an inaler just take those for a minute because your looking paler

    you will look brighter still just take that inhaler.

    take it away susy see what other verses u and alanj can come up with from groovy chick

  • the man

    i sit there waiting here we go again

    its time to see that man again

    the one who knows my fate

    I look around at everybody

    are they thinking the same

    all with our letters or cards

    with appointment times

    I hear peoples names being called

    joe bloggs to clinic 5

    I know it wont be long now

    till I see that man again

    the man who knows my fate

    I hear my name being called

    I sit there silent and still

    I stare at that man

    the man who knows my fate

    I sit there slightly shocked

    when the man says to me

    today your lungs are healthy

    healthier than they ever been

    I think of what I have done

    trying to be more healthy

    staying clear from all bad fumes

    that could irratate me

    if I keep this up i know

    what the outcome will be

    I can finally say

    its me that holds my fate


  • cough

    i hate coughing it horrid to me

    my chest all ratterly

    as it gets all crackerly

    what awful thing

    to be.

    you keep coughing till the yucky phlem comes

    then you take your little blue one and to a sigh of relief

    i can breathe a better one

    name of faith

    or my mum

    i go drinking glass of rum.

    then go playing on a drum.

    by groovy chick

  • There is something deep inside side me

    Something I wish to hide

    It never used to be there

    But now it’s always by my side

    I don’t want to admit it

    Or say its name out loud

    I always feel ashamed

    Can never be proud

    It makes me feel so lonely

    Sometimes it’s just me and it

    It keeps me on the side lines

    Not able to wear my kit

    Ducking under table

    In fear to be seen

    Taking my dose of magic

    Hoping it will stop it been mean

    Sometimes I just carry on

    In a dream that it’s not there

    Pretending to be my old good self

    But then it decides to scare

    But I am determined

    To give it a good fight

    No it’s not that easy

    But together we’ll find the light

    There is something deep inside side me

    Something I wish to hide

    It never used to be there

    But now it’s always by my side

    My first ever atemp at writing a ""propperpoem"" i no its nnot great will try 2 improve it in the furture =)


  • ashamed


    i feel so ashamed i know not how

    its with me everytime even when i bow.

    when people look at me every time i take a puff. oh why oh why they do it or go of in a huff.

    i feeling so mad

    i know its not my fault

    people make asumpsions that puts me on a holt.

    here i stand with my blue friend asking reasons why i am thinking to myself am i going to cry.

    no i am going to be happy

    believing its true asking others just like me or maybe even you.

    i dont feel ashamed no not anymore as i have loads more friends more than i ever did before.

    by groovy chick

  • Duckie...That was fine, more than fine in-fact. Well done you !!

    Do keep it up...you will find Poetry and rhyme a very rewarding way of expressing all kinds of feelings, loves and hates alike.


  • caring


    I have got these three carers

    this it was they say to me

    when your feeling asthmary

    there are three things id like to be.

    a cake decorater a miricle maker and last thing just me.

    When i have thee puff of my magic friend

    They who care will just be right round the bend .

    because they are

    my new found friends.

    i am so happy that they believe in me we can do anything just u wait and see.

    They really understand and care i am so happy now that they are just their when im feeling upset now they give me a cheer.

    They say you can do it

    just don`t stand and stare.

    And now when im with them i laugh with glee as they really care and understand me.

    When im feeling so wheezy this is what they say to me

    take your inhaler a minute and then wait and see.

    The magic thing has worked so well

    i can laugh jump speak and spell

    i am so happy now can`t you even tell

    Now when i go out

    i can scream and i can shout

    Whats this asthma all about

    it `s this thing that makes you wheeze dont make fun of us please.

    We are like you honist we are

    we can do all these things even drive a car.

    from groovy chick is it good

  • There is one thing in this life,

    I wish I didn’t know.

    It is with me every hour of everyday.

    It sits on my shoulder,

    looking over me,

    telling me what I can and can’t do.

    It lives in my pocket,

    That L-shaped Bulge.

    That small large problem.

    Even though there is ways to beat it,

    sometimes I want to give up.

    But then it has beaten me

    and I won’t let that happen.

    First poem. Does it work?

    © Vicky


  • I had a balloon when I was little

    It made it seem ok

    This asthma thing was just a game

    Not something here to stay.

    They gave a balloon when I was little

    To make my breathing strong

    And I was proud of my red balloon

    Thought my asthma would soon be gone.

    I remember standing at the back

    And I'm taking my blue spray

    And counting up to ten

    Knowing my cough'll go away

    But now I'm sixteen it's still here,

    And I cough a lot more too

    Sometimes I feel so lonely

    And I don't know what to do.

    It's tiring with my lodger

    Always sitting in my chest

    And those people in PE

    Don't know I try my best.

    I had a balloon when I was little

    It made it seem ok

    This asthma thing was just a game

    But now it won't go away.

  • wow Becca, That is amazing. Brought a tear to my eye.

    keep it up!


  • angel


    An Angel came down from heaven sent

    Just to here me wheeze

    and just magic around another inhaler please.

    It popped in my pocket i had just to see if it was not a rocket their as id thought it might be.

    Out it popped just to say hello i had 2 puffs of blue i feel better now not clogged up like glue.

    Inhalers are good like that just u wait and see there is nothing better than that just than having three.

    I am hansome i am great now i can aprechiate having asthma is really cule

    and we don`t have a rule.

    Im not bothered what people say

    who wants to be like them anyway!

    They can stomp scream and shout as they dont see what its all about.

    Asthma in you and i

    some folks live and some folks die.

    it is so sad it dont have to get that bad

    If you dont play the right rules it will totally really affect you

    so take your inhalers with care as you always should.

    never forget to take them you will soon love that bit of magic puff just feel the eaze

    i feel so glad now not to here me wheeze.

    from groovy chick

    im not sure bout this one please susy or alanj are you out their need your help

  • Becca1 - Amaxing , lovely, sad and honest.

    Please keep it up

    Love, hugs and huge cuddles and kisses all the way from the Orkney Isles


  • Excellent Becca that was lovely xx

  • Thank you

    I really like all the poems that have been posted, they're all really good :)


  • these poems are all brill. Yes Elephant it does work. The poems are all so deeply touching and even though I am not as severely affected as some they really touch a nerve. How asthma is always there, separate but a part of us we can only do what we want with its permission and by complying with its strict drug regime. Over the years I have come to only tolerate really comfy shoes - to the horror of one of my friends (non asthmatic) who calls them 'man shoes'. The reason is that when my chest is good and lets me rush around as i love to do I refuse to be hampered by heels and thin soled shoes. However, sometimes when i think my chest is going downhill I will put on slightly high shoes to prevent me from rushing around and trying to do too much!

    Sorry - this is not a poem - may get brave and try one.

    I love all the descriptions and it is just how I feel at times, the being held back and not being able to be how i think i really am because of it.

    Sandi x

  • embarressed poem 2008

    embarressed and shy

    I am so really shy

    wonder with glee

    dreaming to myself

    oh what i want to be.

    Then all of a sudden i cough and cough and cough till the blue things out the people look about

    then i often come right out.

    getting red cheeks

    really quite bright

    i wish i was in bed all snugged up warm tonight

    i feeing so very bad i want not to be very shy

    at people staring down at me.

    Or towards the sky

    Just cant help it as you know you do

    i would like to be happy as and where or who.

    Going to take inhaler in front of friends it dont matter where it all ends

    as we know we do

    we find them as special just like me or you.

    i dont have red cheeks oh not anymore as i have come wise to it more than i ever did before.

    Im feeling quite proud of myself

    not shy anymore

    Im not bothered about people gazing at the door

    If they don`t know what asthma is i do not care

    as i have other friends and they know and share.

    I know who to ask now when im feelin low

    to come on the internet and to have a go

    I am so happy when i have a chat

    when my lungs are stroppy and that is just that

    And I can sleep at night

    knowing im gonna be alright as I have been chatting on this message board every hour of the day

    I am feeling calmer and everythings ok

    Everyone on this message board is so nice to me as everybody is in the same boat and understands so easily.

    We are the same as everyone

    We are number one

    Although We have asthma we can still have fun

    Now You people out their

    Yes i mean you

    Thoes wierdo geeks who

    laugh and joke then turn away.

    your not nice people

    Just you wait and see

    That this could happen to you one day

    and where will you be

    by the one and only groovy chick.

  • Steroids tablets


    Taking thoes pink tablets always seem to stink

    Which is why i take them so what do you think

    Had a bad attack you know as you do had to take them to see the whole day through

    My peakflow getting higher from one hundred to four if i blow much harder ill be turining blue so have to have inhaler before i beat you

    Taking thoes tablets isnt that bad you say

    Keep on taking them before i melt away

    Eventhough they taste yucky youll be on the mend you be often wise and things that you can depend.

    Im feeling great today

    Thoes steriod tablets worked.

    The pain has gone away im so glad in every way are the best magic tablets i ever had

  • really sleepy and worn out

    I am really sleepy after the night before

    i told them to stop being silly.

    and i said no more.

    the excitement got too much it drove me insaine

    Had to take magic stuff it never worked the same

    Then all of a sudden i had such reilef the magic began to work.

    and it got calm again as i was all worn out

    feeling really sleepy now

    yawning all the day

    I wished i had it done my own way

    i am not noisy i am just quiet half asleep

    just trying very hard just not to go to sleep

    Trying to stay awake

    it is very hard

    i just feel so very limp

    it feels funny it feels strange this same wiered thing has just come on again.

    by groovy chick

    hope this on sounds ok i had a bad night last night which is why i did this poem

  • mean demons

    I hate thoes mean demons

    that came out the night before leaving me all battered and bruized

    and feeling really quite sore.

    Had to have moments piece of not saying more

    wanted it to be like as it was before.

    Then the magic faries came with some magic stuff.

    Whispered to me go on and have a puff.

    Then the demons went off in a puff of smoke.

    They will be back again before we have a choke.

    Next time when the demons come to play the faries magic will blow all the demons away.

    by groovy chick

  • my poem

    (ive not written poetry since school but thought id have a go!!)

    I have a disease it makes me wheeze and sometimes sneeze

    the doctors they listen and say that's not good it needs to be relieved

    I know i say its getting rather hard to breath

    I pant and puff with all my mite sometimes it's a fright

    the drugs they help relieve my lungs

    the nebulisers the tablets and the inhalers

    sometimes i wish this disease would give me a reprieve

    to go away and never come back

    oh how i wish i had such luck

    instead everyday it lets me know its there

    I shout and swear give me some air

    but oh how it dosnt listen

    so i silence it into submission

    with the nebulisers the tablets and the inhalers

    these give me some relief

    but oh how i have a belief that someday

    there will be a cure

    so I wont have to suffer from this disease asthma no more

  • Hang on to that belief, Clare, and keep expressing it.


  • My Friend

    It shouldn’t be. What has she done to me?

    I laugh - She’s there.

    I cry - She’s there.

    She gets deep inside me.

    She is the air I breathe.

    She is my saviour.

    She is my friend, my life, my nurse.

    She rests with me.

    She sees me play.

    She watches everything I do.

    She guards me in my sleep.

    She is my friend, my life, my nurse.

    What did I do? What has she done to me?

    She hides in my pocket.

    She hides in my bag.

    She lies beside me in my bed.

    She is with me when I shower.

    She shares my very space.

    She is my friend, my life, my nurse.

    I gasp for air

    She sees my pain

    She beckons me to her

    She shares her very soul

    She is my friend, my life, my nurse.

    Damn her? What has she done to me?

    My body shakes

    Where is she?

    I need to breathe

    I need to feel her at my lips

    To squeeze her

    She is my friend, my life, my nurse.

    My love

    My lungs

    She is all to me

    She makes me feel good

    She is my friend, my life, my nurse.

    Damn it! What has she done to me?

    I need her now

    I need her at my lips

    I need to squeeze her gently

    Not once, but twice and more

    I need to feel her reaching deep inside

    She is my friend, my life, my nurse.

    My friend is blue. I need her.


    sleep weery sleep

    I think about it

    yet can not do it

    sleep weery sleep

    my eyes are dropping

    my body is so weak

    all because of

    sleep weery sleep

    I look at my cieling

    Ive tried counting sheep

    but nothing will help

    sleep weery sleep

    Why do we do this

    other nights so quick

    we fall into our beds

    and fall deep into sleep

    Its not even that friend of mine

    keeping me awake blues under my pillow

    fast fast asleep

    but for me

    its sleep weery sleep

    going to have another go

    and fall back to bed

    please god 5 mins will do

    I need some sleep.


  • LOST

    She is always there

    I reach out to touch her. She is there.

    I’m feeling bad. She’s there.

    I reach out……. But, where is she?

    I look here. I look there. I look in all the places.

    I cannot find her. She has gone. Where is she?

    Oh, I need her. I need her in me.

    I’m getting frantic now. Where is she?

    My breathe is short.

    She’s is not by my side. She is missing. Oh, where can she be?


    I miss her. I need her…... I..

    I look again.

    Oh, what’s this? You’re there. I have found you.

    Oh, how I have missed you.

    Everyone – I have found her. She has found me.

    She was there all the time

    Just a bit blue.


    That’s better.

    I know you’re blue, but please don’t hide again

    I need you.

  • i am not an alien

    I am not an alien with a tropical diease

    I don`t have 3 bobbly eyes and a big wide mouth to sneeze.

    We are humans after all havent you forgot

    The magic blue contraption helps us alot

    it is not infectious what we have got so we are not an alien or perhaps you forgot.

    So we want to be included in everything we do with everyone now we know we are just like you.

    by groovy chick

  • thank you

    just to say thank u for this thread as writing a poem as really help me and given me something new 2 do.

    my nosey teacher found my poem 2day and was taker a back by it lol and is now getting me 2 enter it into the schools eistedfod potery competion, this year theme is isperation, which i would never of entered b4

    also is there any news with whats going on with book? it would b realy kwel if it does acutally go ahead.

    thanks again


  • coughing alone in the night

    I wrote this poem some time ago, and it's not originally in English - in the original language, words ""cough"" and ""alone"" form a nice pair. I guess the translation will still convey the feeling.

    Here I'm coughing

    alone in the night

    covered by silence

    surrounded by darkness..

    ...ticking of the clock

    measures running of the time...

    My head is heavy, my eyes even more

    my chest is tight and the lungs are sore

    The sweetest dreams

    are calling me to follow...

    but here I'm coughing


    in the night

  • Clo

    Eistedfodd, eh? That is terrific news. Hey, nosey teachers must be a lot better than they used to be. I'm so pleased for you and so pleased that you are encouraged by this.

    The response seems to be growing and growing. Like yourself, there are a number giving poetry their first try (or first since school). I think we have to let that happen more before we actually start compiling the book. It seems that we will have lots to include.

    What do you think, Susy?

    We now have to give time for translations into english too. Interesting idea I've had, Niccia - If it works well in the original language, maybe we should see both. Like listening to foreign language opera - retains all of the original passion, whether love, hate, anger, sorrow - all are in the sound. Like ""Nessun Dorma"" - ""None shall sleep tonight"" just does not come across with the same soul.


  • Hospital Food

    I wrote this poem while costified and fed up with them not being able to cater for my allergies. The nurses gave it to the catering manager and since then things have improved. ( Slightly?!)

    Wouldn't it be nice to have a plate of rice?

    This is what i wish oh for a piece of fish

    A chicken leg i beg, please i dont mean to nag

    Green beans and peas, im down on bended knees

    Something on a plate or you'll hear my stomach grate

    I've got lots of allergies, hospital food makes me wheeze

    Cough and swell up, i think the drs are busy enough

    Anaphylaxsis isn't fun and a major pain in the bum

    All i want is food that is dairy free, has no nuts, eggs or celery

    I dont want to make a fuss, but my stomach's empty and needs filling up

    Baked potato and tuna's very nice, but i wish you would follow dietary advice

    Providing it for every meal means im lacking on the nutrition deal

    Please take heed and hear my cries

    All i wish is for a piece of fish, peas and a bowl of rice

  • Yes totally...AlanJ, I am sure there are far more Poets that have not had a chance to contribute or have not found their muse or inspiration as of yet.

    So I would ask those reading this to pass the word to your AUK buddies to put their pen to paper or even keyboard tabs to ""Memory"" and so perhaps this time next year we'll be published and on very high demand, raising money for AUK and making others understand that Asthma is no joke... but asthmatics can be fun !!!


  • I agree, Susy - others do need to understand that Asthma is not a joke... but asthmatics definitely can be lots of fun and have lots of fun!!! This site is a very good example of that.

    I think Susy may have just set us a target. Let's have some more. Bring it on you poets!


  • The one that gives me life

    I had to go away

    Leaving my friend behind

    Panicked and frantic

    Because I could not reach him

    Nor feel his gentle touch

    I could not hold him in my hands

    The doctors and the nurses

    A substitute tried to find

    But all I needed to feel better

    Was the calming burning fire

    Of the Neb that shares my nights

    So unhappily I resigned

    To spend a distant lonely night

    From the one that shares my dreams

    My needs, hopes and loves

    They ignored my mournful pleas

    As I begged and kept on saying

    I do not need to be in here

    I do not like nor want these ones!!

    And you are all just making

    So much unnecessary fuss !

    I have a Neb at home

    That keeps me safe and sound

    I know his moods and needs

    As he knows all of mine

    We together work in tandem

    Filling lungs with life giving love

    All I need to keep me going...

    Is his gentle touch and promise

    To be for me there always

    To be my medicine and doctor

    My companion through this life

    And I will always be to him

    The nurse and surreptitious friend

    That keeps him safe and sound

    Like a contract and assurance

    That distance, time nor others

    Could ever force apart

    We keep each other healthy

    As we both wheeze, hiss and gasp

    © Susy

  • I don't like you.

    I don't like you.

    24 hours...

    24 hours, that's what was said,

    As i lay on my (non electric) bed,

    I don't like you you know?

    Inhalers nebs and a random tab,

    'I'm sure she wants another stab'

    'Send those bloods off to the lab'

    I really don't like you you know?

    ABG...She wants 3

    Don't forget the hcg,

    AND get her onto 16B

    I really really don'tlike you you know?

    BP at 6, Breakfast at 7, Be dressed by 8

    GOD don't be late

    In they stroll at half past 10

    I hear him sigh not her again.

    My lungs sound bad but hey whats new?

    My o2 sats are ninety two,

    I guess i'm not going home today...

    I think im in for A long stay

    24 hours...24 hours they said...

    I don't like you... I HATE YOU.

    There's my little addition :-s .

    Emma x

  • Snow and ice

    one day there was snow and ice on the ground that made the cruching fluffy sound.

    Then i made a snowman much to my surprise he came alive and danced upon the snow and ice.

    All of a sudden i lost my magic blue friend that i needed a puff of it and he found it again

    Snowie had a puff of it which he was round the bend because he had od on my magic blue friend.

    I wasn`t so happy i was not laughing with glee then all of a sudden their were folks sitting with me.

    I got up i was feeling great then all of a sudden snowie began to brake i got runnning after snowie and laughed till i shake a little bit more then i slipped over and looked at my bum and it was red roar from being on the floor.

    Dreaming of being young again of the things we used to do not much has changed now if you belive its true.

    by groovy chick

  • the original version

    Here's the original version of the poem, AlanJ and others interested :) It isn't exactly the same as the translation I gave in English. (Language note for those interested: yskin = I-cough, yksin= alone, yössä = in-night) Anyone knows what language this is? ;)

    Täällä vain yskin

    yksin yössä

    hiljaisuus ylläni

    pimeyden sylissä…

    …kellon tikitys

    aikaa mittaa…

    Pääni on raskas, silmiä painaa

    keuhkoja sattuu, rintaa puristaa,

    kurkkua kuristaa…

    …korvissa kutsun

    unosen kuulen…

    vaan täälläpä




  • Is it russian?

  • Niccia : Sounds more like Polish to me ... Am I right ?

  • Good guesses, but the language isn't russia or polish. I'll give you couple of tips to help you in making a sivilized guess:

    1. the language is mostly written as it is spoken (unlike English ;))

    2. It has some 15 cases!

    More guesses, anyone? :)

  • It's not Finnish is it?

  • Becca1 WON!

    Good, Becca1, it IS Finnish :) Congratulations!

    What made you guess? The tips, the mere look of the text or what?

    -just being curious :)

  • hehe, yay!

    The 15 cases thing made me think Finnish, because it came up in a trivia thing we did in language day at school ages ago.


  • To whom it may concern

    Why do you look at me like that

    I dont have two heads

    thats not whisterling

    to whom it may concern

    Why do you think im standing here

    its not for the good of my health

    this holding onto a fence

    to whom it may concern

    I would love to get home

    no I said its not whisterling

    its just my stupid chest

    I wish I was sat with blue

    my bestest friend in the world

    sat on my cossy settee

    to whom it may concern

    Instead im stud by this fence

    bearly able to breathe

    why you all staring

    its just my friend blue I need

    to whom it may concern

    someone do the 9s

    I have to go in now

    back to ward no 9

    To whom it may concern

    soon I will be back on the mend

    so noone will stare for a while

    until im back holding a fence


  • WHY

    I did not ask for this

    so why are you here

    I did nothing wrong

    so again why are you here

    you treat me like scum

    but ive done nothing wrong

    you follow me all over

    i cannot escape from you

    you hold me to tight

    you make turn blue

    you make me scream and shout

    what the hell av i done to you

    why do you treat me like im muck

    ive done nothing to you

    yet you still want to hurt me

    i just dont understand

    please leave me alone

    just for a while

    let me hangout with my friends

    without you by my side

    what have i done to you

    to make you so angry

    please for 24hrs

    please just let me breathe


  • Here are my offerings. I came up with them last night while I was having a horrible time with the asthma that meant I had no sleep last night and very nearly called the little green men. Anyway, thinking about coming up with limmericks on the subject of asthma took my mind off the worst bits of it. I've posted them on my blog and thought some here might enjoy them too. Here goes:

    A Prayer

    Lord, I ask for a gentle reminder.

    A poke in the ribs would be kinder

    When my lungs are in doubt

    How to breathe in and out,

    Than stuffing me whole through a grinder.


    I think that I've mastered the art.

    I've learnt the rhythm by heart -

    Breathe out and breathe in ...

    And repeat it again ...

    Oh damn! I've forgotten the start!


  • Shaking

    The magic blue friend came out today i was feeling fine.

    Then a few moments later i was shaking from top to toe wishing this feeling would just up and go. And then we wont feel low.

    Im feeling very well

    The shakes has gone now can you tell because im feeling strong like a giant now there is no more feeling vilant as now the shakes have gone silent and faded away till another day.

    We can only tell the way how we feel no one else can say that when we need a puff today then we can shout hooray.

    by groovy chick

  • BeckyG ... Oh my god !

    What a wonderful poem, well done you.

    Love, hugs and kisses from this far away piece of land


  • One Day and a Night

    She is my breath

    She reached for my heart

    She found my soul

    In an island

    Lost and wandering

    Unable to breathe

    Who is this?

    What does she do?

    She is my breath.

    I gasped deep inside

    She touched my lips.

    I gasped.

    She gave

    I breathed her air.

    She stopped not there

    She reached for my heart.

    I savour her air

    She is my wind

    My heart is on fire

    My life returned

    I need her now

    She found my soul.

    She is my breath

    She reached for my heart

    She found my soul

    My blue nurse. One day and a night.



  • AlanJ - Oh my goodness ...what a sense of prose and style !!

    Love your poem and your passion it's trully a pleasure full of delights !


  • Becky G love your poem - I've often wondered just how do we suddenly forget hoew to breathe (or spell apparently!) and have to think about it when usually we just do it. Bit jumbled I know but just - great poem concise but brilliant.


  • Forgive me

    I know who I am

    do you

    I dont know were you came from

    do you

    In my wildest dreams

    I never thought we would fight

    Please forgive

    leave me alone tonight

    You sometimes stay so silent

    I dont even know that your there

    but then I get a reminder

    I hear a whistle in the air

    Please forgive me I hate your guts

    but your still here

    no matter what

    sometimes you are good to me

    but I cant forget the past

    you have left me gasping

    why I have to ask

    I know im not perfect

    but hey who is please forgive me

    I dont need you as a friend

    I wish to let go of you

    your not here no more

    please please forgive me

    and let me close the door

    I know your always going to be near

    never far away

    but please forive me

    id rather you stay away

    Theres only my friend blue

    who really understands

    he takes a hold of me

    he says let me take your hand

    He helps me through a battle sometimes

    really bad

    we both end up in costa a feel really bad

    So please forgive me

    If you were a friend you would know

    dont shut off my airways I really need them so

    Im asking nice and friendly please leave me alone

    And please forgive me

    your not a friend nomore


  • Kerry-Anne ...That is a really good one ! Straight from the heart or is it lungs !


  • ignored

    I hate being ignored i know not why

    having asthma is sucks im sure to cry. Going to be happy all the day through wishing i had lots of friends and even you

    Feeling very lonely no one to speak to. just hearing my blue friend hiss the same old thing again helping me through the stressfull patch and hoping not a striking match.

    i am so lonley wish i just matched with everyone on message board just like a chord.

    the only friend i seem to know is just my magic mate blue has anyone got a clue as to why we are being ignored.

    Ignored is not nice or sliding upon the ice i dont like it. having asthma is cool but being ignored is a nasty rule so don`t just ignore us we are here and we are great and we do not retaliate.

    by rainbow fairy anybody out their to reply to it to see what you think to it


    hey you yeah you

    dont look at me that way

    just cause im different

    so you say anyway

    Do I look different

    I didnt know I had two heads

    or three eyes

    walk like a crab up the stairs

    Sometimes I find it hard to talk

    or maybe hard to breath

    even hard to walk

    dont ask me to run

    3ks or even 3 steps sometimes

    Who says were any different

    were just the same you and I

    if only you could walk in my shoes

    if only for just 1 day

    I am no different to you

    just because sometimes i can not breath

    I do not need people feeling sorry for me

    But then again I would not wish anyone

    in my shoes why would I

    who would want to live

    there life breathing and sometimes living and breathing

    through a straw


    Da.da Wee



    Da.da Wee




    Da.da Weee




    Da.Da Weee


















































    A nice cheery one


  • Blue Friend

    My friend is hurting

    My friend is not well

    Head throbbing, ribs and lungs hurt

    My friend is hurting

    My friend is not well

    Taking all the meds...

    Still not managing to get well

    The one that gives me purpose

    The one I am here to help

    Is hurting and not keeping at all well

    So I ask my dear friend

    To breathe me in gently

    To take me in, to take me in all the way

    That I will make “it” go away

    My duty and life’s pleasure

    Is to make my friend feel well

    Sharing all I have to give

    To keep my friend from being unwell

    So very frustrated when the best I have

    Does not make my friend feel well

    So I keep on trying

    Giving all I can and have to give

    To make my friend breathe easy

    To make my friend feel well

    So I will keep on trying

    Until my friends lung, ribs and head

    No longer hurt

    And so that we can share

    Every single second

    And every night and day

    ..... XX ......

    (Susy's meds) aka ...

    © Susy

  • I new this girl once

    this girl I used to trust

    I trusted her with everything

    until this girl grew up

    sometimes I find it hard

    sometimes I wonder why

    WERE still the same person

    but not the same inside

    The girl I used to trust took pride

    always wnted the best

    she didnt know what was inside

    As this girl grew up she new in her heart

    I and she was different

    The girl I used to rely on

    was gone and in the distance

    Now the woman I am today

    sometimes wonders why

    alothough I fell the same

    my health I cannot hide

    I wish I could trust that girl again

    but she has gone to hide

    and left me with these feeling

    I know I cannot abide

    But in my heart I know

    me and this girl is just me

    but al always have this feeling

    she was a different part of me

    for now im a bit older

    and health is a little bit bad

    I will always long for those feeling

    when I was a little lass

  • My goodness Kery-Anne ... What words would do justice to that poem ?! Except ... Oh My God and Wow !

    All my love and hugs, from these distant Islands, your friend....


  • Why me

    Why me I scream

    why not you says my heart

    but why always me

    My heart replies my dear look around you

    the world is full of hurt

    But why do I suffer and cannot breathe

    why not you

    my heart replies

    Why do I live my life in fear

    always wondering if a ambulance will apear

    why not you

    my heart replies

    when I sit and think

    why me

    my heart always has a good answer

    why not me

    so someone else dont suffer


  • No words needed to say how heart felt your poem is !



  • Everyone well almost everyone says why me but inlight why not me there is people who suffer everday and dont understand why i suppose where here for a reason and when we go meet him in the sky then we can ask why me but i bet the answer is still why not you xxxxxxxxxxxxxx

  • A burnt offering in response to a worthy thread!

    Pushing the boat out

    I can’t go to bed tonight because DAMM

    Something wicked this way comes. Trust my thumbs.

    Sliding doors, broken bones. Yes I forgot

    Too late. Oblivion is better. Numb.

    Loved one cares. Tired. “Don’t worry I’m here”

    (She’s late in bed tonight because of fright)

    He’s here. Earth won’t darken. Earth is life.

    All’s quiet on the western front. All’s bright?

    Something black swirls and lurks deep- down Lethe there.

    Like under the stairs, feels cold. dark and stark.

    This place? (Curled chest and shoulders) Where’s the boat?

    Hope that ferryman’s afraid of the dark.

    Café terrace on the place du forum

    See the stars and hear the people. Tables.

    all beckoning all comforting. I’m there.

    Parallel universe Full of fables.

    Night painting without black he said. River-light.

    A yellow lantern casts life like sons and daughters

    Starlit sky, people like I want to be

    Paving stones lead on, but not to water.

    Woken by the ferryman. Dreams, no thanks..

    Was told you know how to push the boat out?

    Not me. NOT me. You are confused. Misled

    Sleep of forgetfulness!. “ I win,” she shouts

    A night painting without black is needed

    NOW. A single candle lit. Not enough.

    Sulfur sun. Stuff of nightmares. (Soon white light)

    Crystal air, skies, clear water, slight breeze. Tough

    Another try. Illuminated sky.

    Wind skinned pink and light as a kite on air

    Earth holds everything together with grace

    Rain moves in, renews life and finds a home

    The ferryman wakes me. “Not you again”

    Out of breath. now. Can’t talk, can’t swim, can’t win

    Lend me a paddle? .No no no he laughs.

    “You REALLY know how to push the boat out”

    © 2008 by Mia All rights reserved.

  • Mia ... Oh my !!! That is truly WONDERFUL !!



  • Ive got this dilema

    not big and not to small

    I always wonder do you have this dilema

    no matter how small

    I often have a dilema

    wondering what i should do

    wont someone please tell me

    do you feel this dilema to

    Somtimes I try to forget my dilema

    but it holds me deep inside

    I know I cannot hide this

    my dilema deep inside

    I think all my loved ones

    and my dilema still its here

    still i have to question

    why why my dear

    I have this big dilema

    to you I cannot hide

    do I keep struggeling

    or should I do the 9s


  • AUK

    Someone said...

    There is a cure

    Someone said...

    There is no cure yet

    Some folks shout

    Scream and curse

    Others quietly

    Wheeze and gasp

    Some of us take all our meds

    Others prefer “to play roulette”

    We all have good days and some bad ones

    And nights when we lay awake

    Dreaming of sleepy time

    Or dialling for the flashing lights

    We come from all over the land

    We are big ones and some small ones

    Shy ones amongst us

    Just read and smile or cry

    Some of us are always here

    Giving or receiving advice

    We share secrets, hopes and dreams

    We share all we can

    When we message our ""Buddies""

    Or “Post” a Query, a Game or a Reply

    And like in every family...

    There are a few bossy and pushy ones

    There are others that try to

    Keep us on the right track

    And moderate our lines!

    One thing we have in common

    One word in all our mouths

    The word that comes before UK

    The word that brought us to this site

    We all breathe in the same air

    And do the best we can

    We are all much more than the thing

    That brought us to this helpful site

    We are living with the “A” word

    When we look into our children’s eyes

    When we comfort a friend or relative

    Or when we look at the reflecting face

    Starring back at us

    When we are tired or just fed up

    We are here for each other

    We are here to make a stand

    We are all LIVING with Asthma

    But more importantly than that...

    WE ARE... AUK... Each and every one of us !

    © Susy


  • Susy, I love your poem. It beautifully reflects the diversity in this community.

  • Hear, hear.

    Susy, I love you for that.

    Beautifully said.



  • Susy,

    Thanks for keeping us sane!

    How are the Orkneys? Any less windy?

    I found some of my old poems the other day - may get round to tapping them in sometime!!

    Love & hugs



  • To my dearest friend AlanJ thank you for being there when I need a friend and thank you so much for saying that these quickly thought-out written words ...were good enough to post and encouraging me to do so!

    Kate Moss... now you definitely will have to post one of your poems... as my curiosity has been Sparked!

    Hoping to have lots more contributions from other AUK Poets... there are lots of you out there... maybe all you need is a little nudge.. so a Challenge has been issued... I promise is not hard!!!!

  • Nice one Susy!

    Your poem seems to balance out another thread I have just read rather nicely!

    ..and I see myself in one or two of your lines....!!


  • *deep breath*

    *being brave*

    Please be gentle - my first effort in the poetry stakes for about fifteen-twenty years. Thank you Susy for your gentle persuasion...!

    (With thanks and apologies to Cole Porter, I borrowed his first line)

    In the still of the night

    Someone came to my room, spent a moment

    Crept into my lungs, made them tight

    Sprinkled some starch, faint scatterings

    All around, so that when I woke

    As dawn placed its fingers over the edge of the earth

    I felt a gasp, that familiar choke

    A cough, a rasp

    A mist like the dawn's own

    Dissolving bronchospasm's starchy grasp.

  • Cathbear.... well done! You are too modest... will now expect a lot more Poems from you!

    Hugs and thanks to all... Please keep poems coming ... They are for a good cause!!!


  • A Shortened Parody

    Sorry, Mr Shakespeare.

    To cross-trainer, or not to cross-trainer

    That is the question

    Whether 'tis nobler in the lungs

    To suffer the wheeze and gasp

    Of strenuous exercise

    Or to vegetate on the couch,

    Watch Torchwood

    And post on Asthma UK?

  • Like your style Cathbear ! ... Have not changed my mind ... regarding your new Tittle, which made you... SHY ?... But I can assure you, No need to be

    So a Torchwood fan are we !

    Hugs from the Os


  • Susy - I too accept your challenge. This is probably the first poem I've written since high school, but I do a bit of lyric writing and composing so I've almost kept my hand in, so to speak!

    Not being asthmatic my poem is suitably off-topic.


    ""They Said""

    They said, “One day we’ll all drive flying cars”,

    But it was not to be.

    They said, “One day, we’ll take day-trips to Mars”.

    To Mars? That’s not for me.

    There’s plenty of places on Earth I’ve not seen,

    Postcards I haven’t sent.

    Of deserts of gold, and valleys of green;

    Heck, I’ve not even been to Kent!

    Is life now so frantic, so hectic, so rushed

    That a holiday must be so stunning

    It can only be talked of in tones that are hushed?

    “Hurry up, dear, the meter’s running”.

    Let’s drop down a gear, and open our eyes

    To the gentler pursuits of our elders,

    When a day out to Rhyl was the height of élan

    To a family of cleaners and welders!

    We surely are missing the quieter times

    When there wasn’t the pressure or care.

    When a telephone’s ring was an exciting noise

    And not just an ad for timeshare.

    What did we do before e-mail and texts?

    We sat down and wrote a proper letter!

    And what did we give to our children at Christmas?

    An iTunes gift card? No, a sweater!

    Before the Internet how did we find out

    Of others whom we’d never met?

    Before there was Facebook, and MySpace, and Bebo

    We’d pen friends and… well, that’s about it!

    Without all this progress, this research, this “tech”

    Would the world hold a much better space?

    You know, on reflection, I don’t think it would.

    Well, I guess that’s put me in my place…!

    So don’t take my dishwasher, don’t take my laptop

    And don’t take my washing machine.

    And leave me my headphones and mp3 player,

    My Freeview and my TV screen.

    For life may be frantic, but it’s clear now to me

    We have much better ways to unwind.

    So, forget I started complaining at all!

    Back-skip. Eject. Rewind.

    They said, “Bird flu will bring life to an end”.

    We seem to all still be here!

    They said, “50/50, or ‘phone a friend”.

    No, wait, that was “Millionaire”…

  • Well... what can I say to that except... Amen and Well done a very Technified poem... so very, very up to date !!

    Hugs and Kisses from the Orkney Isles


    ps.. thanks for a job well done!

  • April 8th

    I cannot beleive its 5 years

    when we were supposed to say hello

    but before we got you we lost you

    life just felt so cold

    April the 8th is comming

    and i know that you are safe

    safe in gods sweet arms

    it still seems like yesterday

    But i cannot cry or be sad

    your up there for a reason

    smiling down at auntie kez

    and all the family near

    I hope your being a good boy

    my angle in the sky

    until we meet again spencer

    and my tears will finally dry

    Please tell me if this has upset anyone and i will delete it but i hope its ok. xxxx

  • Kerry-anne, that is too beautiful to delete.

    My heart is with you.



  • *no words*

    Hugs xx

  • Dear Kerry Anne...adding to what Cathbear and AlanJ have said... but since words fail me....will just have to say... ""Ditto, Ditto, Ditto !""

    Lots of Hugs


  • Thanks guys did not expect that it means alot xxxxxx

  • A Kate Poem!!

    I have dug this one out of the computer - I have lots on paper but only two have been computerised.................................

    Totally Non Asthma related!


    Rain at 3:30 p.m. !

    On pushing a bus out of Mount Elgon National Park in Kenya, August 1985.

    It came early.

    It would, wouldn’t it!

    Forty minutes to be exact.

    Olympics 85, race fifty-nine –

    Marathon through the rain forest.

    We are off.

    Sliding round the creepers.

    ‘Splat’ – Champion falls in elephant dung,

    Others stand well clear.

    Back to the bus,

    It’s stuck!

    In thick, red mud.

    Now here’s the fun.

    “Push, Push” people yell.

    The sixty seater wouldn’t budge.

    In the ditch and out the ditch,

    The bus slid.

    The thick, red, mud,

    Stuck to everything.

    People were plastered in it!

    “Everybody out” the driver cries AGAIN!

    We get out.

    Down the mountain,

    Through the forest,

    Passing villages,

    Laughing children.

    “Will it ever end” we think.

    At last we see it,

    A tarmac road.

    Ten kilometres we pushed that bus!

    Back to Eldoret in triumph,

    An unknown luxury greets us.


    But twenty minutes later,


    We stand there shivering.

    Then, NO WATER!

    The thick, red mud remains.

    Will it ever be conquered?

    CMH 6 – 10 – 1985

    (Written after a trip to Kenya, Africa.)

  • Kerry, that poem is so special!

    Brough a tear as it is my birthday!

    Cathy & Steve - great Poems!!



  • Love the poem Kate Moss.... Took me to the place that You so well described as only all good Poems can!

    More... More... More !



  • The Rainbow

    Wrote this when I was in school... a very long time ago !!! but none the less here it goes


    You say

    I am just one voice

    I am a particle of sand

    I am a drop in the ocean

    And just like

    One drop of rain cannot

    Quench the thirsty man

    It cannot irrigate the field

    Nor change the river’s path

    I cannot change the world

    I am just ONE

    I say... Yes … Yes I know...

    What can one raindrop do on its’ own?

    …but if that one drop is joined by

    One thousand more

    It will wet the parched dry lips

    If that one drop becomes a million...

    They could make the flower grow

    And its then that I remember...

    It only takes one raindrop

    Just one single drop of rain

    To be kissed by the rays of the sun

    And within its’ prism

    A rainbow will be made

    Bringing joy to the multitudes and millions

    With the colours in its arc!

    All it takes is but one voice to say...

    ""I am here by your side,

    You are not alone,

    I will bare witness

    I can help; I will stay by your side""

    And the once lost in despair

    Can be given hope and life

    So I say

    When I look at you

    I do not see “A” raindrop

    What I see is the shining prism and its arch

    Imagine what a world we would make

    If just half of us

    Turned together to face the rays of the sun

    And in unison shouted

    Here we make a stand

    I am aware of your plight

    I will be a witness

    I will lend a helping hand...

    Oh what a sight it would be..

    What wondrous colours

    Would fill and light the sky!

    And the one that oppresses us

    Would have no place to hide!



  • Shopping Trip

    The Naughty two

    The terrible twos

    They love to cause a mess

    Huff and puff

    Until they get their way

    They make a scene in public

    Every chance they get

    The horrible twos

    Are at it again!

    Passersby stop and shake their heads

    I do apologise is all I want to say

    Not always as bad as this...

    They usually behave

    Words again failing me

    Want to hide away!

    Crowd now gathers around me

    I am tired of all this in fighting

    The tiresome twos

    Are still fighting me

    Taking my breath away

    With all their silly arguing

    Someone takes from me

    The card that reads

    “Medical Alert”

    I close my eyes...

    Two men in Green kneel by my side

    A cylinder of “O”

    Hissing, doing its stuff

    Open my eyes.. I smile

    My little nebuliser

    Lying empty by my side

    A little white clip

    Pinches a digit in my hand

    As the men dressed in green

    Lead me to the waiting couch

    My tired but now sated

    Calmed pair of lungs

    Are again breathing easier now

    Breathing in and out

    In and Out


    In and Out




    Until the naughty two

    Decide to play up again!

    © Susy

  • Twizzle Twaddle!

    Having been coaxed with such steady subtleness by the very queen of rhyme herself, and mistress of ceremonies here, I finally lift this masterpiece (well she did give it a good mark!) from my blog and post it here. It's about my blog, my asthma - which was a great companion in my school days, and to some extent my enjoyment of idle chitter chatter and word games on AUK!

    Twizzle Twazzle

    Tiz Waz

    Blobber Log

    Twiddle Twaddle

    Flim Flam


    Sneazy Wheezy

    Click Clack

    Clugger lug

    Sniffy Snotty

    Niff Naff

    Snuffer plug

    Bizzy Lizzy

    Sick Sock

    Twizzle’s back!

    Bibble Babble

    Prittle Prattle

    Dizzle Dazzle

    Tittle Tattle

    Dibble Dabble

    Doodle Doddle

    Twiddle Twazzle

    Twizzle Twaddle

    Marks from Miss: 4 out of 5


    PS. At school I was often sufficiently drugged into a semi-state of droisiness to be unconcerned about my nickname, Twizzle. Fortunately my asthma sometimes kept me at home or at least out of PE if I was lucky so I didn’t have to hear it too much. Clearly, this had a serious impact upon my education – not least of which was my grasp of the English language!

    I chose twizzle as my ID for AUK because it reminds my my school days. You can guess what the 50 bit means!

  • Thank you for Posting... and well done, Twizzle (or is it Mr N H !) .. See it was not painful at all !


  • All my life

    All my life ive wondered

    were we all come from

    why were all here

    and for how long

    All my life ive wondered

    whats next round the corner

    is it good is it bad

    i often just wonder

    All my life ive wondered

    were do we go from here

    is there heaven is there hell

    All my life ive hoped

    someone somewere cares

    give me a kiss and cuddle

    and make me feel so cared


  • Well done Kerry-Anne ! up to your usual standards..So .. Well done again K A !

    Hugs from the Os



  • Ode to The Writer(s)

    Your sense of prose

    Your word command

    The way you make each letter dance

    Each phrase and sentence

    So well defined

    Eloquent and thoughtful

    You put the words to rhyme

    As you tweak and polish

    Adjust and glide

    Until each single space

    Mark, dot or hash

    Has filled all the gaps

    So the whole page dances

    With your sense of rhythm

    And your sense of fun

    The poet, the writer

    A master of their craft

    To you I give my ode

    A bow and a big loud hurrah

    And not forgetting...

    A big...Thanks !!!!

    © Susy


  • Thats Brilliant Susy very talented love K-A XX


    When the moon is full and it’s pull is strong

    When illogical feelings come along

    She’s there

    When black memories of bad times past

    Won’t go away and just last and last

    As crises come and crises go

    When just living makes you low

    She’s there

    When breathing’s hard and air is short

    And blues and twos and help are sought

    When the sun is out or the sky is wet

    Her presence is something requiring no bet

    When the wind is still or a storm is blowing

    When feeling stern or face is glowing

    She’s there

    Squeeze her tight. Is she really kissing

    Or is it her effect that you have been missing

    You know well by now that the thing you both share

    Is something for life – no other thoughts dare

    She’s with you for ever – no matter how long

    She looks after you. She makes you feel strong

    She is there



  • Alan...

    I love that poem... I think ... in fact I NOW definitely know , that the ""Ode to the Writer"" I posted previous... Was meant for YOU

    Wow... words fail...



  • Heed the fair warnings

    The flashing red hooter

    The dripping tap nose

    Warn ‘Get on your scooter,

    Before airways close!’

    The far away seagulls

    Sound of the wheeze

    Yelp with alarm bells:

    ‘It's heavy -this breeze!’

    Sprite specs in the air

    Mites with their fine dung,

    Pollen, perfume or hair

    All squeeze throat and lung.

    So heed the fair warnings

    Let triggers fire blanks!

    And when nights bleed to mornings

    Prize clean air with thanks!


  • Twizzle... As I suspected... a Poet in the making!

    Well done and ""hurrah!""


  • Baby steps

    Baby steps I take

    As in defiance I breathe again

    I take the world into my lungs

    As I inhale on my own

    Once again

    And with a smile I say

    I am back to myself again

    B.A.T 1 & 2 tried to beat me

    They could not...

    But they did try

    So very hard once more

    So gentle deep breaths I take

    As PF hits the magic target set

    Baby steps I take

    Breathing easier each and every day

    Still taking lots of meds

    But is a price

    I happily will pay

    As my baby steps

    Lead me back to

    My home, my family and my friends

    BAT 1 & 2 overwhelmed

    Conquered once again

    And I am so very happy just to say

    Breathing on my own again

    © Susy

  • WOW susy what can I say you always inpress with your poems



  • Thank you Kerry Anne, do you have another poem to add to this thread...

    Waiting for more contributions.... from YOU ALL .... and ...yes.... if you are reading this... that means YOU too !!!!

    Please....pretty please with bells and bows on !


  • Hi Susy,

    Loved your poem. Hope you are feeling better

    'Giant steps are what we take

    When clothed in baby small steps'


  • to my mum

    I tend to write poetry to deal with problems i have so sadly i cant post many here as they are probably to descriptive to be appropriate but this is one i felt i could share.

    I wrote this poem dedicated to my birth mum the week i was reunited with her after being adopted 29 yrs before.She has a laminated copy of it by her bed.

    I know its pretty basic but here goes.

    There was always something I had to do,

    Search the world far and wide for you.

    I looked in the mirror,who did I see?

    Your shadow there, a missing part of me.

    The absent piece of jigsaw, so far lost,

    Must be found whatever the cost.

    A certain loneliness always there,

    With you my ups and downs i wanted to share.

    At last I have found you my life now compete.

    An extended family I've yet still to meet.

    When I look in the mirror i know who i see:

    The shadow is gone, i see you and see me.

    The questions i have about me and my past,

    Like who do i look like are answered at last.

    My biggest dream has at last come true,

    That we be reunited,

    Yes Mum


  • hopalongkp... beautiful poem... as it obviously stems from the heart, Lovely, honest and true...well done.

    Welcomed and Thank you for the addition to A Poem Post!

    Hugs from the Orkney Isles and again... Well done you!


  • Friend

    Thank you my friend

    For staying on line

    When the bad wheezing

    Came back

    And staying with me

    Until my breath came back

    You heard my struggle

    And would not leave my side

    Until the liquid in the chamber

    Had done all its stuff

    Thank you my friend

    For holding my hand

    For making me smile

    When I’m feeling so bad

    For checking on me

    During the days and nights

    Thank you for caring for me

    So very much and promising to be

    Here with me

    Until infinity plus one

    Thank you for saving my life

    In more ways than one

    Thank you for being

    The now and always

    THE ONE...

    That looks out for me

    Thank you for being...

    My Dearest Friend

    Thank you, Thank you

    And again...Thank you

    For Always being here

    For me

    © Susy


  • When the Reaper calls for me

    Should the reaper call on by?

    Who will the one that mourns for me?

    Who will run through the lanes...

    Streets and gardens of my town... ?

    And knock on the doors

    While allowing tears to fall

    And sob... “She is... gone!”

    Who will be the friend at my bed?

    When the black robed man

    Comes to my door

    To carry me away

    To the land of no return

    Who will be the trusted friend that

    Raises his glass to toast my name

    And knowingly smiles

    And celebrates my life, my secrets

    My memories and my loves

    I wonder who sobbingly will read.

    The poems I have hid

    And shaking his head smile...

    At the secrets I have kept

    My regrets, mistakes and joys

    All my silliness and hopes

    Which of all the ones I’ve loved

    Will buy the flowers

    That will brighten up

    My earthy bed, the place where I will lay

    Who will kiss a single daisy...?

    Before laying it at my side

    Who will be the new owner of...

    My dreams, my house, my love

    What a wonder it would be

    To know who will sob and mourn for me

    Who will settle my affairs?

    Pay my bills and turn the key

    On the day I leave this world

    To sleep eternal peace

    If only I could know

    Who will feel himself die...

    A little bit with me?

    As the last dairy page

    Gets read and turned

    And then gets stored or thrown away

    As I go to my final place of rest

    Who will carry out my wishes?

    And is there at my side

    When I take my final gasp

    And quietly but not meekly

    Go into the night

    On the day I say goodbye



  • Hi Susy,

    Your latest poem is clearly very heartfelt and is very moving. A few people have messaged me saying that they find it very upsetting to read, so I have added a 'sensitive content' warning to the thread title, and added this post so that your poem is no longer at the top when the thread is clicked on, so that people can choose whether or not to read further.

    If one of the functions of poetry is to stir up emotion, I think you have succeeded there, but I do think we all have to be a bit careful that we are not upsetting people too much.

    I haven't removed the poem, but if anyone has concerns about it, please do message one of the mods so that we can review the issue. Susy, I hope you understand why I have to say this.

    Em H

    (Mod's hat on)

  • Hi EmilyH... I have removed the poem... sorry to any and all that were Upset by it.


  • Thank you Susy for removing it. Yet again we have one of those situations where there is a very fine line between allowing people a forum to express their feelings and emotions, and making sure that we don't upset people unduely.

    I don't think there can be any hard and fast rules in this situation, I would just ask that people consider very carefully what they are posting and the impact it may have on other people.

    Em H

  • Hi.. no problem... I actually thought the tittle would have been more than enough... well not to worry!

    Lesson learned


  • Susy. I also think the title would have been enough and am sorry that you have removed it.

    I think you are right about a lesson learned.



  • Guys, please don't be affronted...it's a great poem (yes, I read it) but for one reason and another it has come at the wrong time for some people, and we have to act on that. Please understand our position too, and Susy, please don't stop posting your poetry as I know it provides a lot of pleasure for many users on here.


  • The Rainbow

    You say

    I am just one voice

    I am a particle of sand

    I am a drop in the ocean

    And just like...

    One drop of rain cannot

    Quench the thirsty man...

    It cannot irrigate the field...

    Nor change the river’s path

    So with your bowed head you say

    I cannot change the world...

    I am just ONE

    I say... Yes …

    What can one raindrop do on its’ own?

    But I ask you to remember

    That if one drop is joined by

    One thousand more

    It will wet the parched dry lips

    If that one drop merges

    With a Billion drops more

    They could make the flower grow

    And its then that I remember...

    It only takes one raindrop

    Just one single drop of rain

    To be kissed by the rays of the sun

    And within its’ prism

    A rainbow will be made

    Bringing joy to the multitudes

    With the colours in its arc!

    All it takes is but one voice to say...

    I am here by your side,

    You are not alone,

    I will bare witness

    I can help...

    I will stay by your side

    And the once lost in despair

    Can be given hope and life

    So I say

    When I look at you

    I do not see just “A” drop of rain

    What I see is the shining prism and its arch

    Imagine what a world we would make

    If just half of us

    Turned together to face the sun

    And in unison shouted

    Here we make a stand !...

    I am aware of your plight...

    I will be a witness...

    I will lend a helping hand

    Oh what a sight it would be and

    What wondrous colours...

    Would Fill and Light the Sky!

    If we stood together

    Side by side...

    So that the one that oppresses us

    Would have no place to hide!

    © Susy

    I originally wrote this poem in Spanish at the age of twelve when my family was in hiding from the DINA (Military secret police) ... but on reading it when translated... I thought it could apply to Asthma... so... I hope you like it and that it does not offend anyone !

  • Susy- That poem is so beautiful and very powerful.


  • AUK Friends

    To say the word friends

    Is to say fun and games

    Is to say laughter, tears and mates

    Like birds

    Playing in the clouds

    Like you and I my friends

    To say the word friends

    It feels like what it's to say

    Music, lyrics, dance and rhyme

    The ones who share with you

    All the joys and hurts

    We give and receive during our lives

    To say... My Best Friend

    Means painting rainbows

    In your and my eyes

    Wrinkling your nose when you smile

    And feeling my soul dance

    When you say... Hi!

    When I say... My best friend

    All I need to say is...

    YOUR name out loud


    My dearest darling Friend

    © Susy

    You know who YOU are !

  • Hi Susy,

    Are you getting rain and sun today, hence the rainbows!? Where do all your poems come from? I wish I could write as many, and capture those thoughts.

    I think I will give the wisdom words a rest for a while, to let some others have a go as I seem to be on it too much - because I find it easier than writing poems!

    Hope you are OK

    Best Wishes,


  • I wrote this after watching a program about the children in Iraq and Afghanistan being injured and killed.

    Bad Dream

    You hear a bang in the distance,

    You run for shelter.

    Its another race against time

    Too late, it's started.

    You huddle down a hole,

    and cover over your ears,

    That sudden clatter of gunfire

    That ever present fear.

    It's getting closer now,

    You can see them coming.

    That loud whirring noise,

    As they come crashing down.

    All around you people scream,

    You don't know what to do.

    It's stopping now.

    You want to wake up,

    And hope it's a bad dream.

    © Vicky


  • Elephant2001 - Firstly ... sorry it has taken me so long to say (but I have been away from AUK for a few days)....Thank you for your beautiful Poem, if we all were able to express our emotions so clearly this world would be a better, brighter and more beautiful place !

    Love and Hugs from the Orkney isles


  • The Letter

    The letter came today

    I held my breath, frighten to open but

    Needing to know the results of the tests

    Wishing you were here with me

    I took a deep breath, another breath

    Expecting to get the worse news again

    I folded and tore at the line of dots

    Closed my eyes, holding my breath

    To the heavens, eyes raised

    Wishing you were here with me

    To share the news I got today

    Imagined reading the words again

    Sorry to say... Positive test ...

    Opened the ""PINK"" letter, eyes shut tight

    Wishing you were here with me, at my side

    Took a breath and read...

    “Please to inform you.... Negative test...”

    Read twice again and took a breath in

    Wishing you were at my side, here with me

    Stood up and had a cup of tea instead

    Wishing you were here with me

    To share the news I got today

    When the time came to say

    Got the results in the mail today

    You held your breath, then I saw the smile

    Tears flowing down our eyes

    Then you said as the happy salt water drops

    Ran down your face... and mine

    I've been so worried about you my love...

    I love you we said

    And the letter was filed and stored away

    Happy that... I got ...

    A pink letter in the post today!

    © Susy

  • High on a Kite

    (A Speed Poem by AlanJ)

    Triumphant she called and set a torrent raging through the fire

    As the toast grew and fondled the very essence of the jam

    He stroked it under a mellow pattern

    Clouds burst in little bubbles of rain

    Circulating like a pump

    In a train of marshes and goo

    Oh magic power

    Oh hateful Trojans of opacity

    How deal you with the peace of a surreal but restless religion

    In times of communication and umbrellas

    I radio the rain

    It pours over life

    Sprinkling the dust in a smother of chocolate and ice

    Undoing the years of neglect and a soul without vision

    He lurches and stumbles.. arms entangled

    In a recipe of life and function

    Trusting his heart to a meal of passion and delight

    He swallows the torte

  • AlanJ ... A Very cryptic... Speed Poems are such fun. I have also been known to write down what ever comes into mind...

    I wonder if any one else in AUK does Speed Poems as well... may be fun to read if so...

    Please keep it up.... Be it the thought out or speedy kind... Please more Poems PLEASE...


  • Hot Chocolate - speed poem

    AlanJ gave me the tittle - and this is what blurted out... so here it goes

    Hot Chocolate

    Diving into the dark, she swam

    Forgetting to breath she dived

    As waves of silky velvet


    And poured over her....

    She searched the forests of weeds,

    Of underwater life

    She found the realms of mare folks

    And she stayed to learn from them

    The secrets of the velvet silkiness they lived in

    Pools and waves of molten hot lava

    Was the food she ate

    As the creaminess and wealth of the essence

    Gave her nourishment and pleasure


    As the point of speed poetry is not to amend once written or said... will have to settle and be ""happy"" with this... but how I wish I could change or add


  • I Slept

    I slept

    I slept sound

    I slept three...

    Nearly four last night!

    It was not the Preds

    It was not the Nebs

    Nor any of my other meds

    But I slept last night

    Slept safe, slept sound

    I slept gentle and calmed

    I slept nearly four... last night

    Keeping the “A” word from hurting me

    And the ""remembering"" well behind me

    I breathed easy

    I slept knowing you were there for me

    Knowing you too were safe and by my side

    I slept almost four hours last night

    Wrapped in your smile

    I slept safe and sound last night

    I dreamt of life without wheezing

    For hours I dreamt of life before

    ""The accident” and the car that...

    Nearly took my son from those he loves!

    I dreamt ... of us

    I dreamt of Infinity and I dreamt of love

    I dreamt of working lungs for all of us!

    I dreamt of family and friends

    I slept more than a hundred and eighty minutes

    I slept safe and sound last night

    © Susy

  • Calling all Poets !

    ""Would like to remind all AUK members and already Poets in this site ... to continue with their contributions so that we may soon have enough Poems for The First ""AUK Poems Book"" and so raise money and awareness about AUK and Asthma as a whole !""

    So please do not be shy.... A short, long, happy, sad, angry, fed up, matter of fact and even Crazy Poems and Rhymes! ..... will be much appreciated !

    So come on ... go on and .... put a few words down !! Pretty please with bows attached ! -


    Hope you are all keeping well or at least ....like me .... on the mend !!


  • OK Susy, another shortburnt offering in the hope that asthma research will focus upon ‘pragmatic, real world and effectiveness’ drug trials rather than ’efficacy’ trials…

    …""Ladies and gentlemen (and children of all ages,) the most amazing, the most spectacular, the most dangerous…”


    Freefalling with a parachute whilst a

    safety net loops a wide angled clause and

    courts a trapeze artist though rarely calls

    on the myriad times and falls. Safe choice?

    Switchback rides surprises laugh back finale.

    Dizzy. Lets start again, lets start again.

    Golden cage rolls and rocks with steely bars

    Though all hearts clamped with lockable keys

    Iron, stone, wood. No difference to what

    one lion step, or baby step makes when

    confined to all singing ringmaster rules.

    Clown face mask suppresses tears and fears, so

    Giant steps are what we take when clothed in

    Baby clown St Paul steps. Almost there? Nope.

    A circle of arms negates all fears. Hope?

    For some not all. Freefall parachuting

    beckons. The softest breeze of tumbledown

    foggy edges calls Circe island wise

    Distance traveled is no guarantee gainst

    Love, statistics and probability

    Free fall without a safety net is fear

    With a parachute is within grasp. Hears

    music rides a magic colour carousel,

    The smells and fears are cloaked in sweat and tears

    Whistling down the wind is all around, can

    hear the sound within her chest like tadpoles

    struggling for air. Sometimes soft, gentling song.

    Mostly lion proud in desperation.

    “Mr Sandman, bring us a dream”… a long

    fuelled parlour ice cream, a stolen life scene

    Roll up, roll up, roll up, all risk takers!

    Kindness? No kindness. No kindness ever.

    © 2008 by Mia All rights reserved.

  • Thank you for your poem.This is my first time i have used the forum and it was great to find people that understand how hard asthma can be to live with.I have been very unwell for 4 month.So thanks. Denise

  • Moderator Message

    I understand there have been enquiries regarding publishing some of the poems on this thread.

    This is a plan that was mooted some months ago from some of the thread originators and contributors. I think the general feeling was that if such a book were to be published, it shall be done with the full permission of all the contributers to the thread and with all proceeds going towards Asthma UK.

    There has been a recent resurgence of interest in this project from a newer member and I wonder if we can use this impetus to start taking the project forwards.

    Having had a chat with someone ""in the know"" today, it is worth bearing in mind that Asthma UK themselves hold the copyright to these works as they have now been ""published"" effectively in this forum. I think therefore the next step forwards may be to contact AUK themselves if we wish to progress this.

    Can we please have a public ""show of hands"" regarding this, and suggestions for the best way of moving forwards with this.

    Many Thanks,


  • Mia.... All am going to say about your amazing poems is .....Well done ... and I am ... Rolling Up and hope that many more Roll Up ... Roll Up too !


  • Denise... welcome to AUK.... and thank you so much for your comment .... just sorry that you are having such a rotten time of it !

    As you may have seen... most of us have a Love / Hate relationship with our Asthma and Meds !!!.... The most important thing is to...

    Look after yourself and Keep well

    hope to hear more from you soon !



    Thank you Cathbear and the ""one in the know"" for clarifying .... and ....

    To all those that have written or chatted to me about this thread over the past few days ... I will second Cathbear's point and say ....

    If we are going to make this work..... a SHOW of hands and more Poems Please !!!

    If any current AUK or would be Poets in this site ... that would like or needs more information on where we are at ... please message me or AlanJ

    Keep well, keep writing Poetry, and lets get the AUK Poem Book into print.... It is up to YOU all now !

    Susy & AlanJ

  • I am me

    If my life were different

    If others didnt treat me different

    would I be happy

    would I be free

    If my life were different

    would I be the person I am today

    would others not look down at me

    if I were the same as them

    In my life try so hard to be the same as you

    I cannot be i am me and theres nothing i can do

    So I stand strong and proud

    and say I am me

    I wouldnt change the way I am

    and dont look down at me

    I am the same as everyone

    although sometimes its hard to breathe

    I am what I am today

    and am happy as can be

  • Thank you Kerry Anne, beautiful as always ! - I have not qualms in saying ... YOU are a poet... NO doubt .... so do not doubt your talent !!!

    More, more, more !



    Fag dash Lill from Livingstone Hill

    Would sit forlorn at the check-out till

    Bish bash bosh she’d moan until

    She’d clocked off posh for boyfriend Bill

    Space consuming boyfriend Bill

    Hunky dory with time to kill

    With muscles to die for was always ill

    Yet he kept his Lill, now there was a skill

    Night life dazzled with drinks to spill

    But day time frazzled with forms to fill

    Job applications -such a chill

    But their dream remained to escape the Hill

    Living in sin was such a thrill

    Until along came tiny pity pot Phil

    With breaths and wheezes and sounds so shrill

    Life just got harder without the pill!

    Young at heart with dreams to fulfill

    House husband Bill saw his basin fill

    He’d preach hygiene to his fag ash Lill

    With a ‘No Smoking’ sign on the mantle sill!

    Heart break, arguments and tears until

    Mid-night and beyond and beyond until

    Intelligent chat was brought to nil

    By the cries and love for the child so ill





    In the tug-of-love tunnel he went through the mill

    Through the allergy funnel his breathing took skill

    But inhaler or homework flinched not the young Phil

    And to one lucky lady he was Prince of the Hill!





    Cashed strapped Lill from Johnson Hill

    Sits like a queen at the check-out till

    Bish bash bosh she pleases until

    She’s clocked off proud for grown-up Phil

    And good for Bill, he escaped the Hill

    Hitched with gran Gill, but visits still

    To see son Phil and marvel with Lill

    How bounding like Bombadil,

    He's kicked asthma right over the hill!

    © Twizzle

    All rights reserved


    Why when your a child

    did I get the blame

    it wasnt me it was him

    you feel ashamed

    you cannot tell

    I will get the blame

    you say stop

    but your whispers go unheard

    noone there to guide you

    Noone listens when you try and tell

    people walk by me

    noone knows my shame

    I built up the courage

    my screams were heard

    someone listend to my pain

    He has gone now

    but never forgotton

    he was the one to blame

    my life is better

    my dreams I can face

    no more knightmares

    im happy again

    I dont know if this may be to sensitive feel free to delete if not appropriate

  • Twizzle ..........No.... ! Do not edit ... leave as is ..... PLEASE !!!!!

    Bravo, hurrah and well done ha ha !


  • Kerry Anne ......... as in private message .... but this time for all to see ....

    ""When it comes from an honest heart .... and kind soul, Poetry cannot help but move""

    A tittle for that poem would be nice !


    Additional : Thank you for the tittle KA

  • Lifes strange battle

    Who new at the start

    lives strange battles

    a day good a day bad

    o2 at the ready

    where did it come from

    where did it start

    lives strange battles

    A day in my I never new

    that you would come

    take over my life as you have done

    lives strange battles

    with my friend blue

    it takes hold of my lungs

    hugs them so tight

    I scream to let go

    sometimes it does

    but with life strange battles

    sometimes it doesnt

    I will keep up this battle

    today and tommorow

    ad never give up

    these life strange battles

  • Again Kerry Anne ... thank you for more than the words. Thank you for the depth of sentiment, that your poetry evokes !


  • Hello Denise,

    Hope you are getting better…

    “whose sadness seems in sympathy with mine”



  • There has been some really great stuff added to this thread recently. As always, I also encourage you all to keep it coming.

    I have been counting up just how much stuff we have put on here (and on its sister thread, Poetry Shared) since Susy started the tmain hread in December and am staggered. I really had not realised that there was so much already. I do agree that we are probably ready now to start putting it all together.

    I have already indicated a long time ago, privately and publicly that I am ready to put my hands to the wheel. Susy and I have talked about this for a long time and it does now seem we have to put our money where our mouths are. My hand is now up! (No comments from you, Susy!)

    I do disagree about copyright and who owns the material, but that should not be an issue if contributors agree anyway and I, for one, would not like to do this without the specific agreement of every individual contributor. This is, after all, our own publication.



  • feel free to use any of my poems xxx


    It was a long time ago

    when we first met I trusted you

    I thought you were a friend

    you needed me i needed you

    you were a friend

    a friend i could trust

    then you treated me bad

    I never thought you would

    when I needed you you turned your back

    why did you do that

    I will never know

    I needed a friend

    You were gone

    my life turned grey

    my friend blue

    wasnt there

    I tried to live without you

    but I just could not breathe

    I needed you

    you was my only friend

    all I can say

    is my friend blue

    dont turn your

    back on me


    always and forever


  • Copyright Thoughts

    If you think you have the right

    To take a poem what I wrote

    And publish by moonlight

    Somewhere foreign or remote

    Think again and let’s be clear

    Who owns my mind and heart?

    Is it really you my dear?

    Or is copying your art?

    To copy poems from this thread for some unendorsed venture is like taking sweets from a sweet shop. It’s almost forgivable but not quite. Even if the shop keeper’s landlord says it’s OK, you won’t get far without the blessing of the shop keeper! But a shop keeper may wish to keep a landlord sweet! Bon Bon!

    Personally I do feel that AUK may assume a copyright to these poems, but only with proper agreement with each contributor.

    It remains for me to say that if my scant few were to add to the possibility of funds for AUK I would be delighted!

    © Twizzle

    All rights reserved!

  • I have not composed this, it was composed by my daughter,before she passed away from a collection she wrote during one,of her many occasions in the hospital.

    Our Link

    There is this place in cyber space

    That I came across one day

    We all have a common link

    A place were we all are the same

    But different in some ways,

    Each day we struggle to come to terms with our link

    Some struggle and life is never the same

    Breathing easy is our aim

    We get advice and rant a lot

    About how this IS IN ours life’s.

    People asking about the meds they take, how, where and when,

    About Peak flows are they right or wrong. ABOUT BAD TIMES, THEY HAVE HAD.

    A place to feel not so alone when things are going wrong

    A place to talk laugh and cry

    A Place where we all try to get along.

    A place Friendships forever formed,

    Advice is given and facts obtained,

    All people from different walks of life have a common link

    This link is, in our lungs, breathing for life is its aim

    Asthma is its name

    Our lungs just do not work, some mild, unstable and BRITTLE!

    Some find it harder, than others, struggling each day,

    For razor, sharp air is rushing in, but getting it out is harder.

    By day and night it stays the same, and nothing makes it better.

    You learn to live with it, and the board makes it easier.

    To cope when things go wrong, and you are not alone

    Helping each other day by day and not judging when we are not all the same.

    When asthma is going right, it has this habit of taken control of life again

    Even when you fight it sometimes, it SEEMS JUST FAR TOO strong,

    Your control taken away, and your life has to stop

    Decisions that you cannot make, are then made for you by another man,

    Then mechanical help is required, sometimes,

    Therefore, you just fight to keep your breath alive.

    They come, prod, and say things but you cannot communicate, not able to have a voice or choice of any kind.

    Watching everything go by,

    Just like time had stood still.

    Time stands still while others are trying to help,

    Seeing and hearing things that some how do not seem right, but we all try to fight this link we have its name we all know and hate.

    Then when all the fight has gone and we have finally won,

    We come to our cyber home

    Where we have made some friends

    Friends whom have similar thoughts and feelings and some have seen your pain.

    Some have been where I have been, understanding my pain.

    In addition, it helps to share the pain sometimes. This link we have inside of us.

    Feels like it will never end

    People called moderators who we do not know too well,

    They are here to pick up the pieces that someone leaves behind. They support, encourage, and give advice for us all to learn.

    Moreover, to halt the forum form becoming a war zone, sometimes.

    They are people whom dedicate time and effort, to help keep us safe

    Yet thanks they do not ask for but we sometimes forget to say

    That they do all this for us, with their own time and kindness

    They are the unsung heroes of or our cyber home.

    Without them, we would not feel at home.

    Without them our link would not be our own.

    Without them nothing would be the same

    they make us laugh they make us listen

    they are our helpers and help to keep us safe,

    help educating newcomers

    and keep us a little sane

    without them there would be trouble.

    Thank you

    © H.C. Benn

  • Thank you so very much .... Coffeenut for sharing your daughters lovely poem with us.......

    All my deepest and most sincere thanks


  • “A” came into my life

    “A” came into my life, suddenly, unexpectedly...

    “A” broke through all the barriers all the obstacles

    “A” surpassed them like melting ice cubes in the sun

    “A” became the greater part of me

    When “A” entered my life, it overwhelmed and frightened me

    With the hold and power that “A” surrounded me with

    “A” and the letters that make the name are forever now it seems...

    Inside my ribs, under my skin, in the very air that I breathe

    ""A"" lives inside me, is with me ....grows within....

    Flowing through my veins like cascading waterfalls

    And I know that “A” will never leave nor lose the grip

    Nor the hold “A” has over me, my body and my soul

    I have tried... from time to time

    To fight the power that “A” has over me

    But “A” always wins, “A” lives inside of me

    “A” is part of me, and it seems now that...always will be

    And now, when I awake, sleep, write or speak...

    “A” is always the first thought, the most vivid dream

    Every word that I put down or say...

    “A” is always there, in the pools of my eyes

    Behind every smile and every tear that I shed

    ""A"" came into my life unexpectedly and

    “A” Is... And always and forever will be

    Part of me

    © Susy


    The sun pours down, soaking the sky with droplets of dry rain

    While under it, the pond is a sea of calm with waves the height of Vesuvius

    Like motionless fidgets, they sail down valleys of mirrors, seeing through all the reflections.

    Swimming in solid rock, they fly high into the depths, stepping up as they go down

    Falling towards the peak of the valley of the mountains.

    In a storm of innocent guilt, their kisses fight and they catch each other with open arms.

    They hold each other apart for warmth as the bare leaves shed their trees in a frenzy of peace

    They lay their heads on stone-filled pillows and gaze into the ground – the air as clean and clear as dust.

    Gliding like stones alone in a crowd of filled holes, they stand still, their tears floating in a sky of fluffy stars.

    Deliriously sad in the soothing pain of a turmoil of rest, they scream their silent vows

    While insane and crazy in love, the desert snows fall on them like a blanket of hot, sultry ice

    Grasping the air as they empty their lungs, they run motionless until they reach the very edge of the middle of the ice-cold flames.

    Imprisoned by their own liberty, they search for the very souls they have found

    With the soothing pain of violent tenderness, defeated by the triumph of their own love in a barren, fertile land

    They scramble in turn, faster than the speed of rocks, to reach the closed pages of the mis-spelt dictionary.

    As slow as light, they find the missing brilliant black words in the shadows of white

    With tears of happiness, they glue back apart the missing pages. They paint back the front cover in water so clear.

    No more tripping up real life. No longer those sad laughs. They shake themselves still. The chaos is now calm.

    © A

  • Well ... AlanJ ... or should I say ... © A ? (hehehe!)

    Well done ... as contradictory Poems go ... that one is the tops just hope it was not induced by secondary preds from a very good and close friend !!



  • Losing the Fight ---------- Warning... may upset !

    Hi all... I wrote this poem a couple of days ago when it all was getting a bit too much to cope with after been given even more meds to take and dosages of previous ones increased (to max everything!!!)... Well anyhow... please do not read on if you are feeling low do not want to get ""Moderated"" again!!!(wink wink ...hehehe !)

    Losing the fight

    I have to say, I must confess

    That this Asthma thing

    Has beaten me

    I sit and watch the world go by

    As salt water drops escape my eyes

    I take a hurtful breath that pain my ribs

    In silent screams I feel me die

    No one sees the pain I hide

    And this Asthma thing

    I think has got the better of me

    And won the fight

    I am alone and feeling down

    This asthma thing has got me beat

    Someone calls or writes “Hello”

    And I fake a smile and say am fine

    I make pretend with a smile as I hide my eyes

    That I am strong and tough enough

    To fight and even beat this asthma thing of mine

    But all along deep down I know

    This Asthma thing has got me beat

    I wipe the tears from by face

    And say ... “Hello again my friend”

    As my lungs, my strength and dreams

    Fold and fade away, I again pretend that am OK

    And that this Asthma thing is not beating me

    And that I still have more to give

    I long for sleep, peaceful rest

    The type that dawn cannot break

    I want to rest and not wake up

    This asthma thing has won the fight

    I must concede and raise the flag that's white

    And maybe then this asthma thing

    Will let me sleep until infinity is done

    This asthma thing has won the fight

    This battle it has won

    And I watch the world pass on by

    Nothing left in me but the dreams I once had

    The Asthma thing has won this fight

    And all I want to do and to say is

    Goodbye my friend... I am done...

    I have no strength left in me

    I cannot win this fight

    Is time to say goodbye

    © Susy

    ps... feeling a bit better now, genuine smile coming back

  • The Shopping Trolley Man

    The faceless din of chasing cars

    Flash past the shopping trolley trim

    With worn plastic bags so organised

    For the variety of life so dull and dim

    The bus shelter’s home in pouring rain

    But the buses know his wait is a game

    Of staying alive and easing pain

    He’s the gnome of the road without a name

    He doesn’t do begging or badly sung songs

    He doesn’t sit bereft as though at death’s door

    He just stands with his trolley and gazes at cars

    And stands with his trolley gazing some more

    Intrigued I wonder how many have seen him?

    And ponder how life could fire such a blank?

    And how does he seem to always be there?

    Like a tree fixed and firm by the river bank....

    One day I must stop and pull alongside him

    And ask of his life if there’s a part I can play

    In some small way without knocking his pride

    Because if I had his trolley I’d not last a day

    His poverty hides a talent supreme

    The knack of survival; the knowing he can

    Outwit Mother Nature with a will so keen

    He’s a cool quiet marvel -this shopping trolley man.

    © Twizzle

  • Wow Twizzle ... (Mr N.H! at his best!!!!!!) well done ... well worth the wait P! ... now you know what am going to ask you again ... don't you? ... So...

    Keep them coming !!!

    ""The Shopping Trolley Man"" is truly a wonderful example and praise to rhyme !!!


  • A Little poem for my little man

    My little man,

    My pride and joy,

    My everything,my little boy.

    My little man what would i do,if you lost me and i lost you.

    This terrible illness called asthma.......how can it be so cruel.

    Why do you try and take my little man away,worry,anxiety every day.

    Can you be kind just for once and give him health in abundance.

    My little man i love you more everyday.

    Hes so loving and so kind im so blessed that he is mine.

    Thankyou little man for always fighting and growing stronger,hopefully this terrible illness wont have a hold on us much longer,

    me and my little manx

    Inspired by susy and twizzle a little.

  • Dear Lisa .... Beautifully said.... Your poem as all that stem from the heart... touch and bring new emotions to the front, to all our souls and minds !

    Well done ... keep it up .... as I said... There is a POET in all of us !


  • Learning to read

    As I learned to read

    Running from the kindergarten to the library in my house

    And as the pages turned

    I climbed the rocky slopes and raised my eyes in wonder

    Spread my wings out wide, sore in the crests of the currents

    Swimming with seals and dolphins I discovered

    That WORDS are, indeed a world filled with wonder

    Like shimmering sands and oceans wide

    Sunsets, crescent moons and forests green

    Words have always carried me to faraway lands

    Running like clouds in my head they soothed and fed

    My dreams and mind

    I have travelled the earth and the skies

    In rivers of molten lava I’ve swam

    Have walked and died in frozen lands

    And sank my feet and toes in dunes of sand

    Have seen every race and met all mankind

    I first discovered “A” could not rest until I got to “Z”

    The blurry lines took shape, with my eyes I ate the page

    I swallowed the words I read. My thirst finally quenched

    By the words that made the lines turning into paragraphs

    Filling the page and book and opening my world and mind

    It is so... I learned to read... I learned to write

    Each new word found, sending me to

    New realms and distant lands

    Started revolutions, died a thousand times

    Born and lived a million lives and times

    Discovered poetry and rhyme

    Never having once to leave the sanctuary

    Of my family, my home nor my land

    I fell in love; I killed, I lived, I died

    I raise the flag up high and defeated I bled my veins dry

    I was there with Johann Gutenberg when

    The words were down in print for the very first time

    Became the predator chasing the frighten beast

    Lay dying as Scott wrote down his last words goodbye

    I was the scientist, the poet, the soldier and the prophet

    I was the girl first in hiding and then in a prison camp

    I have watched millions die and

    I was there at the birth on mankind

    And when our galaxy was defined

    It was thus I learned the history, the geography

    My first passions and desires, my believes and dislikes

    I learn to live and grow with each new page I turned

    With each new word brought to life

    It was then and only then that I discovered

    Just how terribly cruel we are and

    The glory and the possible amazing beauty

    In You and I

    © Susy

  • Voices in my head

    Were in my heart did I notice you

    you were there but I did not care

    I never listened at first

    I heard your cries

    I felt ashamed

    this should not be happening

    You talked to me

    I could not see you

    but felt your presence

    You scared me

    I needed to tell someone

    but who would belive

    about these voices i could not see

    I kept it quiet for a while

    woundering who I could trust

    who to turn to

    these voices that I hear

    I told a friend I needed help

    she helped me all the way

    I know your there

    these voices that I hear

    I am getting help

    I pop there pills

    to make the voices disapear.

    If people are offended by this poem please feel free to delete xx

  • kerry anne

    wow hope u feel better now u got thet off ur chest.

  • Dear Kerry Anne as I've said before ... Thank you, your honesty and truth is POETRY indeed !

    and as before... you know where I am


  • Poem or prayer

    Stressed out yet again,why? all the mental pain.

    Why wont you take the pressures of me,ive had enough cant you see?

    This mental block inside my head,sometimes i think id be better off dead.

    I just wish my mind would give me a break,ease my pressusres for heavens sake.

    Stress and pain everywhere ,no one knows no one cares.

    Is it just me,am i pittying myself.

    nothing that couldnt be cured by fortune and health.

    Sorry if this seems so drab and dreary,im just feeling so very weary.

    I feel like your love is no longer near me.

  • Lisa Thank you for your Poem... (and Prayer) it is always moving to hear a plea that comes from the soul and heart.

    and in a more personal level I have to say... that even when the dark clouds come... they are always... sooner or later broken and dispersed by light!


  • More than ....

    More than... Asthma

    This is not all I am, this not all of me

    I am more than just the word

    So much more than this “Asthma” thing

    I hate the pigeon hole;

    You keep trying to put me in

    I am aware that I wheeze

    That I cannot go very far

    From my hissing machine

    But I have to let you know

    That I am so much more than this...

    so much more than this Brittle Asthma THING

    I am woman, I am wife, and I am a mother

    I am your Friend... I am the lover

    I am a Painter and a Writer, even dance in my mind

    When my body is feeling weak

    I am still more than this Brittle Asthma thing

    I am ME... I am ...Me, Myself and I...

    I am more than this Asthma thing

    I am still all of ALL of me !

    Yes am an Asthmatic

    A brittle one at that

    But am still all I ever was

    I am still ALL of me... even...

    when wheezing or cannot breath...

    I am so much more than this Asthma thing

    © Susy

  • hi susy

    wow! wot a speech ,go girlx

  • Nine Eleven - Warning may potentially upset !

    Nine eleven...

    Nine eleven... 2001

    Nine eleven 1973 is my personal...

    Eleventh of the ninth

    The day the world changed

    The day the world turned black

    The nine eleven that makes me cry

    The date that is edged forever in my mind

    Nine eleven, the day I had to grow up

    The day innocence died

    The day of the ""Coup d'é tat""

    Nine eleven 1973

    The day childhood was swept away

    Under the barrel of the tanks and the guns

    The day the soldiers came

    The day the hurt began

    Nine eleven... The day the world cried

    The date when fear again took hold

    The day... when we cried and gasped

    Nine eleven, sent me back to when...

    As a ten year old I cried

    When the flickering box again as I sat and watched...

    Turned the world upside down

    Nine eleven 2001

    The two towers fell, and again I cried

    Buildings and planes came down

    Nine eleven 1973 and 2001

    When so many lives were lost at the hand of man

    So many lives changed. So many people cried

    Nine eleven... September the eleventh

    Whichever way it is said...

    A date that makes the heart ache.

    The dates that “...In the avenues of history... we shall overcome”

    The eleventh of September

    Forever edged and etched in my and your heart

    © Susy

  • So poignant, Susy.

    A reminder to us all that such headlines are real and significant memories to many. A reminder that the whole world needs to learn so many lessons. Why can we not all live in peace and harmony? Why cannot love conquer all?

    My date is 7/7 and I know both of these bring some strong emotions with them. Thank you for sharing your date and your feelings with us. At least this little corner of the world can share your day with you; help you; support you; love you.



  • Thank you Alan and ... My dearest friend from now on when you read... my

    ""Nine Eleven"" read ""Nine Eleven - July the Seventh"" - (same thing just a differnt date!)

    Thank you for all the PMs and Emails... Thank you all !

    Love, Hugs and Kisses (x88 times) from the Windy Orkney Isles



  • My Friend

    My Friend

    Coughing and in Pain

    Gasping for a breath

    My friend asking for my help

    ... Breathe gentle, stay calm

    Take your meds, is what I said

    Breathe with me, gently breathe

    ... My friend did what I said

    I will watch, keep you safe

    I will stay and help you breathe

    My friend took a puff of me

    Quickly followed by one more intake of me

    Holding me in the breath and trying not to cough again

    ... Just wait another minute more

    Gently breathe I said

    My friend waited while hurting

    ... You are doing well I said, I will wait until you are well again

    My throat is sore

    My back and ribs hurt, I ache all over

    I feel so tired and cannot sleep, my friend said to me

    ... Just wait one minute more

    And take another breath of me

    My friend waited and then took two more puffs of me

    Breathing was not the struggle it had been

    Friend smiling back at me

    ... Now you must go to bed and rest I will be with you my friend

    So with me in one hand we walked side by side

    And off to bed we went

    Up the stairs we climbed

    And I watched until peaceful, gentle sleep

    Overtook my friend at last

    I watched as my friend slept

    I snuggled up as close as I could be

    Happy now to wait until my friend calls for me again

    But as always hoping not to be needed

    ... This way again

    Ventolin (© Susy)

  • Wow.

    Thank you so much, Susy.

    What a very special friend to have.

    I am on the stairs now.



  • your back

    I thought I was safe from you

    I never thought you would return

    I thought you had gone for good

    never to return

    I close my eyes so tightly

    and wish that you would go

    but you just torment me

    I cant run from you

    I think that I am dreaming

    I curse you

    I scream to the top of my lungs

    please just leave me alone

    I block my ears and close my eyes

    but your still there these voices

    I cant hide

    I took the tablets you gave me

    for a while I felt free

    but your back to haunt me

    I just want to be free

    I see dark shadows and hear voices

    sometimes they are so bad

    I just cry in bed

    noone can free me

    from these voices in my head

    I will fight on and try to ignore you

    that is really hard for me

    I cant hide from the hallucinations or the voices

    I will probbably get put on more drugs

    to help me feel free

    but for now YOUR back

    I just want to be free

    please let your hold release me

    and let me be me again

    your back in my head

    dont you worry though theres still some fight in me

    Please feel free to delete if offended by this poem take care all xxxx

  • Thank you Kerry Anne for allowing us into your life, with the poetry you write ... and as always giving us new insights, I know I speak for all your friends and buddies when I say...

    ""You WILL win this fight""

    Love, hugs from your Buddy in the Orkney Isles


  • The Storm

    The storm rages on

    Power loss and darkness falls

    Covering the land and the skies

    Candles flickering in every room

    Do not want to go to hospital

    Just because I need to nebulise

    Sheets of lightning fill the sky

    Like angry lions roars the thunder by

    As the storm passes over us

    Lungs are getting tired... Starting to gasp by now

    I do not want to go to hospital just to nebulise

    The charge in my little life's companion is nearly done

    Darkness filling the land and my lungs

    No electricity to re-charge

    Gusts of wind wheeze on pass

    Remembering the adaptor I smile

    I will not go to hospital, just to nebulise

    The wheezing gusts rush by outside

    Starts the engine in the car

    For the nebuliser go back to the house

    Wrapped up in my quilt I sit in the car

    I will not have to go to hospital just to nebulise

    I am breathing easier as the car dances with every increasing gust

    A flash of light hits the ground, the thunder replies in kind

    I hold on tightly to the quilt and continue

    With each hiss and splat to nebulise

    Explosions of light and noise covering the skies

    Flickering stars pierce the rolling clouds

    My eyes turn to the dark island hills

    I face south and smile listening and humming

    The lyrics like the thunder making my skin dance

    Happy that I do not have to go to hospital

    ... I have been “Nebulised”, as my breathing eases

    I watch and enjoy the battle in the sky

    There is not a light to be seen on the land

    Every house and farm asleep in the dark

    But the explosions in the sky and

    The whistling wind and the roaring thunder

    Seem to argue and battle with each other

    I listen and watch with calmed lungs

    The magic and the wonder of the colours and the drama

    Of the storm unfold and unwind!

    © Susy

  • you write good poetry susy!

    I only write poetry about wierd emotional things i go thro never tried writin bout my asthma b4. U hav inspired me to hav a go! Watch this space!! Thanx 4 the poetry n the inspiration. Hope the snow has calmed down and ur warm and well.

    Love n hugs from south yorkshire!

    Lv kat Xx

  • Expressive Writing

    Hello all ... most of you would have received by now the November issue of the “Asthma Magazine”.

    In page 34 of which the idea of “Expressive Writing” is dealt with ... so being the bossy boots some of you say I am (you know who you are... will not mention any names P ..aka T50) .

    I thought this would be the ideal time to “ENCOURAGE” all would be Poets new and old to express themselves in Poetry and maybe then we will have enough Poems to go into print in the new year and raise funds for AUK...

    So please don’t be shy... and put down and add to this thread “A” line or eighty eight!

    Look forward to being amazed, impressed, overwhelmed and generally swept away by the number of verses and closet poets here in AUK, so go on make my day!

    Love, Hugs and wheezy kisses from the Orkney isles


  • Poems Book

    Hello all would be Poets... I have received several emails from new members suggesting an AUK Poems Book!! ...

    So with that in mind I would like to ask you / remind all ""New and Old AUK Poets"" to put fingers to keyboard and .... Inspire / help / move and or educate ! by sharing / contributing a Poem or three !!

    Lets make 2009 the year that the AUK Poems book goes to PRINT !!!! so help us raise awareness and funds for Asthma UK !!!

    Thanks a million ....


    ps.. I am away from my house and pc at the mo...so hope to be pleasantly surprised next time am online and maybe find some new poems and poets in this thread !!!

  • My first is in airway but not in mere

    My second is in steroid and sometimes in fear(s)

    My third is in treatment, should always comply

    My fourth is in tight but NOT (?) in goodbye

    My fifth is in management - less of a ‘wheeze’

    My last is inflammation. So what can I be?

    I’m there in your lungs. Take care of me!

    © 2008 by Mia All rights reserved.

  • Thank you Mia for your contribution... it was very nice to return home and find a new ""posting"" ... Keep it up... The more poems posted the quicker we can start thinking about publishing !

    Thanks again and well done, we are looking forward to many more!

    Love and hugs from the Orkney Isles


  • That time of year is nearly here

    the time the whole family dread

    the time we talk about you

    as if you are here

    I know its only january

    but my heart still aches for you

    I look at your photo

    and kiss you good morning and good nite

    I tell you things and hope you hear me

    I bring you flowers but wish it was toys

    My heart aches as I type this

    I did the same last year

    I want to talk about you now

    as april the 8th is to painful

    we remember you on that day

    and everyday now and forever

    I clasp my hands and pray to god

    your happy and smiling up there with him

    I look at your photo and try to picture how you would be now

    but it hurts so bad I always shed a tear

    Dont you worry though my little man

    we love you so much

    when we do meet up

    it will be like you were never taken

    so be good my big man

    your now nearly 6

    and one day we will meet

    but till that day

    I will always kiss my photo

    I know your being looked after

    but still doesnt stop the ache in my heart for you

    Listen to the words of tracy chapmans song ""THE PROMISE

  • My dearest Kerry Anne..

    Many times its the poems that flow out and through us like waterfalls that are the most memorable ones...

    As your most heart felt poem is... Timeless and beautiful... Because it comes from a heart that knows how to love!

    Thank you again for sharing your poems with us


  • Thank you Susy for your kind words love KA xxxx

  • 2009


    New Year has began, new hope for all mankind

    Making a toast a wish that there are...

    No new nothings that will make our breathing bad

    And to have the time to be with those we love

    A year without “A” attacks

    A good year for everyone

    2009 has began, time for us to have happy lungs

    My New Years wish, my solemn oath is to stick around

    And see 2010 and the ones that will follow there on...

    To keep well, to keep safe

    Not to give in to the ""A""

    To have the time to be with you

    To see and do all we want to do

    My wish for you is that your dreams come true

    That you keep well and keep your spirits high

    Maybe even to sing and dance

    Or better still...

    To print a book and raise some funds!!!!

    © Susy

    wanted to post this earlier... but my lungs were playing up!

  • Wow Susy you never fail to impress me I think your poem is brilliant we must be getting close to getting this poem thread turned into a book of poems what you think Susy take care massive amounts of luv KA xx

  • Thank you KA and to all those that wrote direct to my email.

    RE: The AUK book of Poems... I had a thought...

    Do any of the AUK members know famous (or infamous people) in the public eye (that we could write to)... and that could be willing to write a little ditty/poem/limerick or rhyme if we asked.

    My thought being that in this era of ""A"" to the rest of the alphabet (hehehe) celebrity watching... this may add an extra dimension to our book?

    Maybe famous asthmatics in all fields from Acting to Xylophone player or Zoo Ownership!! (a bit tenuous I know but could not think of another X or Z)

    Well... that was it... Please let me know what you think of the idea or if you have other suggestions please let me know and as always ...

    Keep the POEMS coming PLEASE


  • Warning... This Poem May Potentially Upset - Sensitive subject - (Death)

    I lost a friend yesterday

    Tired of being unwell

    He went away

    He went away to rest

    He went away to be happy

    To be free of medicines and pain

    He asked me to read out loud

    At the final gathering

    And to press play... to hear

    The music he wanted to be

    His last song and dance

    My friend went away

    To be at peace and fly across galaxies

    And watch over me

    I miss the laughter we shared

    The memories and dreams

    I know he is not alone and walks by my side this moment

    But I miss his laughter

    I will selfishly... miss him

    Until the day or night

    When he takes my hand

    And together we fly around star dust

    A time when will we watch our loved ones

    Sleep, play, laugh and love

    As we once did when sore bones or brittle lungs

    Were not in our minds

    And we were young in heart and mind

    My friend went away

    To trek across the stars

    © Susy

    I most sincerely hope I have not upset anyone.

  • Susy your poem was beautiful really brought a tear to my eyes thinking of you tons of lv and hugs KA xxx

  • my mind

    Its hard somtimes

    its hard to breath

    its hard to live

    with this disease

    I find myself asking

    why pick on me

    why not someone else

    but who would I wish it on

    noone my heart says to me

    My mind asks to be let go

    dont think of me

    dont think of my asthma

    stop trying to be free

    Your who you are for a reason

    a reason noone knows

    your put on this planet for a purpose

    I scream why tho

    I look around and what do I see

    lots of things but I dont see me

    I am there somewere lost in the crowd

    lost in my own mind

    no im not proud

    Not proud of this obsession

    the obsession that is me

    the obsession of not knowing

    who and why me

    I can only keep asking

    and the answers never there

    but I will keep on searching

    and one day it will all be there

    the answers to my mind


  • Kerry Anne... You never fail to move and overwhelm... Your poetry like you is wonderful honest and true.

    Always in my thoughts and heart

    Your friend always


  • When Life was Less Complicated

    I remember the grass in the garden,

    And the washing line with the concrete posts,

    And the crazy paving that said “I may be crazy, but I can sure make a straight path”.

    I remember the washing blowing in the breeze,

    And the gooseberries that no-one saw us eat.

    I remember the big bike.

    No wonder I fell off -

    Its wheels were bigger than my head.

    I remember the green outside and the Close over the road,

    Games we could lose ourselves in for hours,

    But be near the door and not miss any food that was going.

    I remember playing with the birds as they swooped,

    Diving again for a soaking, again and again, in a summer of heat and fun.

    I remember my cat Sandy.

    She saved the budgie from down the road when some escaped from their aviary.

    She didn’t see his lost partner, though, and the budgie died from a broken heart.

    I remember playing real games -

    Running, falling, laughing.

    Crowds that were friends. No demands. Just friends

    I remember my first day at school,

    As I screamed and cried,

    Not knowing how soon young love would arrive.

    No agenda. Just love.

    I remember the raindrops on my calendar -

    Big long dashes of heavy rain.

    The teacher made me do it again. No taste, some people.

    I remember the bully, the fights, the lies

    He went away, but I can tell you his name

    I beat him once – got my own back – he wasn’t a bully after that.

    I remember the joys of discovery –

    Worms, brown sauce, kissing,

    Flicking balls of mud so far from garden canes.

    I remember the smashing noise. Ooops

    I remember running.

    I remember playing.

    I remember breathing.

    Where did that go?

    © Alan

  • Wow Alan wonderfully written and so profound !

    I am so glad you are writing poetry again and I just want to say ..... Please....

    MORE ... MORE ... MORE !!!!!

    Love, hugs and kisses from the Orkney Isles



  • Little Red Tablets

    My Prednisolone...

    Little red tablets, run in my veins

    Little red tablets, helping me breathe

    Keeping me safe and well

    Giving me time to inhale and exhale

    The little red angels easing my days

    Little red devils... ""Ooh goodness...

    ...I feel I need and want to nibble again !""

    My little red tablets giving me life

    Eight little red tablets easing my wheeze

    And easing my Lungs

    So terribly thankful I have YOU to take

    Am not being contrary

    Am not losing my mind

    But it’s those same little red tablets

    That make me thirst and keep me awake,

    The same little red tablets that I HATE to take

    Waiting impatiently for those eight little red devils

    Slowly, ever so slowly to turn to nil, to zero...

    To “none”... and to go away

    For a week ... or three... one whole month if am lucky

    Wouldn't it be lovely

    Not to have to take ever again

    Ooh how I love and hate those little red tablets

    My doctor gives me again and again

    But if I am being totally honest

    I rather take my eight little tablets

    Than have to... inject with preds once again!

    So grudgingly and happily I will swallow and take

    Whilst my little red tablets

    Continue to have an effect...

    And I will ... Always and forever...

    Continue to Love and to Hate...

    My Eight Little Friends !

    © Susy

  • Mother''s day

    My lungs are weary

    My brain turning to pulp

    You both give me flowers and a teddy

    And all together say

    A very happy day to you...Mum!

    I give a big smile and am kissed and hugged

    My bones are tired but I sit up

    Close the kitchen door and lunch I cook for all of us

    Nebs and chops and stirs and preps

    My tired shoulders resting on the cold speckled surface

    As the heat gets turned down to simmer

    Feeling so tired I could sleep awake

    You walk into the kitchen and raise my head up high

    I knew you were not well you say

    So by the hand you lead me back to my bed

    We will cook and prep ... after all it is your day!

    Mum needs to rest you shout...

    Are you ok the rest of the house comes to ask?

    So propped up by eight soft fluffy pillows

    And Bobby Redford kissing my lungs

    I wait for the heavy chest to pass

    You will need to up your preds again...

    Do we need to call for the flashing lights?

    I smile and shake my head

    Robert Redford runs in my mind and veins

    I would like to sleep a little ... but I know I can’t

    So instead I watch him and Paul Newman

    Pull out the perfect sting with big white beaming smiles!

    My son sits beside me on the bed...

    Happy mother’s day he says

    As I think how lucky I am to have

    Robert Redford in my lungs and on film today

    And of course not failing or forgetting to mention...

    My family at my side for all of this day

    Happy Mother’s Day...

    I am hugged and kissed again!

    © Susy

  • The Trickster

    You are tired and fed up

    The whispered trumpet

    Shouted quietly in my head

    You are tired of your medicines

    And tired of being brave

    The familiar spoken voice said again

    I know you are tired

    I know that you are fed up

    In the loud unspoken silences

    Said my other trusted gentle friend

    I am here until you are ready to cry

    And smile again my dear... my dear, dear friend

    I am tired and fed up

    I really do not want you here

    I just want to sleep and curl up

    So like a gentle lover, he leans over me

    And I began to fall asleep

    I drifted off as I slid under the cover and the quilt

    Wake up WAKE UP

    Came the pinging shout

    Wake up and open your eyes

    Take your meds... Take them NOW !!

    My sleep broken by the silent screams and shouts

    Lips fingers and toes tingling....

    I am so tired and fed up

    I said as he held me in his arms

    Wake up ... wake up ... open your eyes

    Came the friendly voice again

    My arms and hands were heavy

    As he held me in his grasp

    Slow tired old and spent air getting to my lungs

    I open my eyes and with heavy arms

    “On” I switched the hissing thing

    The life giving machine began to do its thing

    Am tired so very tired as I saw your face

    Scream in silent ... Don’t go... Wake up

    Air trickling in my veins

    I smile and say...

    Hello my darling friend

    Am OK again... he has left me alone

    Alone to be with you again

    Eyes wide open and smiling once again

    To the precipice he led me...

    You would not let go of my hand

    So... tired but contented I take my meds again

    And look into your smiling face

    As you say...

    Never... ever be happy to get so close to the edge

    Never let him trick you

    Do not believe the promise of peace and rest

    He is not your friend or lover

    He does not really care about you... like we do

    More medicines... more nebs and preds

    Will keep him away from you and me

    And make us feel well again

    Well again to work, live and play

    © Susy

  • Really moved by this one Suzy

  • WOW Susy what can I say but that was brilliant and a lot of people could relate to your poem. come one people keep them poems comming xxxxx

  • Waiting for a Smile (It's OK, Susy)

    Far away he wraps his arms.

    He kisses the tears away from those sad eyes.

    He is always there - holding your hand.

    The thought keeps you safe, away from that edge.

    He waits for your smile.

    © Alan


  • Thank you

    Wonderful Prose Alan... Wow what a beautiful surprise to find those lines waiting on my return. most definitely top marks ( 88 )

    Thank you to you and all my AUK friends for being here and for keeping in touch!

    Hope you all are keeping better now and ....

    To each and every Poet....

    More... more ... PLEASE more POEMS please

    Love, hugs and not so wheezy kisses from the Orkney Isles


  • Glad you are feeling better Susy xxx

    Another shortburnt offering - literally! ...

    Eighty percent of the lungs are made up of water, depend upon the heart and vice versa

    “Asthma, a matter of life and breath”


    It was a stream

    A simple glacial stream flowing

    from a small source in the abyss

    A single celled place

    It flowed and gathered speed

    Over the next years

    Flowing gently but gathering space

    Nothing to hide

    The stream flowed and gathered anew

    more water, to make a river

    A river continuing to grow

    Not a Thames but an Amazon

    How strong the Amazon grew

    Despite all obstacles in its path

    Like a Phoenix drenched of flame

    renewed on its ashes again

    Again and again tearing down trees

    Fallen to all needs except the wildest

    The widest fresh water

    Enriching the soil

    Solace came in many forms

    From barnacle splice and life too spiced

    Diverted to sedimentary flow

    Although a comfort so slow…

    …the river sea found itself in turmoil

    Sourced answers from rain forests

    Transported logs along the basin of life

    Bridging the gap using a thin bladed knife

    So sharp so clean so irrevocably unseen

    Underneath the water of life brought

    Flower oxygenated petals bright to storm

    the surface colour and leaves lies green

    Eventually tiring of false life

    Asked the question

    “Is this how it will always be?”

    Answer: to eternity

    All strong rivers make the sea

    Good seas flow into the ocean

    Breathing their destiny

    Crossing the border, crossing the border…

    © 2009 by Mia All rights reserved.

  • Wow, Mia.

    That certainly woke me up with the pictures it drew. What a wonderful artist you are with your words. Oh, do please keep painting.



  • Kissing the Moon

    See the moon sparkling

    Close your eyes

    Kiss the moon

    Open your eyes

    See the moon shimmering

    Close your eyes

    Catch a kiss

    Open your eyes

    See the moon smiling

    © Alan

  • Wonderful Poetry

    Goodness ... I am away recovering/recuperating for a day yet again ... and I come back to such wonderful, beautifully written Poems.. WOW - a better medicine could not be found

    MIA ... words fail to describe the depth, emotion and my praise of your POEM. Wonderful does hardly do it justice... and like Alan, I concur... Please keep them coming

    Alan ... Your poems always touch me to the core and again another 88, ta !


  • Thanks for your kind words Susy and Alan. Both of you and others who have contributed to this thread are inspirational in prompting me to write about how asthma affects our daily lives.

    Creative writing is both reflective and therapeutic.

    If we can raise awareness and even money in all sorts of ways to further research and education into how asthma can be better understood and treated then this is the creative writing one!

    ‘The pen is mightier than the sword’ …

  • me again

    I look at my watch and see the time

    is it that time again or is it just me again

    I watch the second hand and hope and pray

    you go away as fast as you came

    I do know its just me again

    I cannot control you

    I look again and again and again

    You seem to know me and i know you

    I tell myself i can do this

    ignore this its just me again

    you have this hold on me a hold so tight

    but really i could let go

    because its just me again

    holding on not letting go

    making things worse as time goes so slow

    I look at my watch tick tock tick tock

    but the time goes nowere but in my mind

    its just me again

    stop holding onto the past

    dont worry about yesterday or the yesterday before that

    I do try but again and again my mind says

    its just me again

    just me again who cant let go

    cant see why things happened to me

    why they got away with it

    but why should anyone be bothered

    its just me again

  • And This is ME

    This is ME

    I am bothered

    I care for friends

    I'm here for friends

    I am here




  • Not Alone

    for you my friend - KA

    You are not alone

    When the shadow and the doubt

    Fills the room, YOU are not alone

    I hold your hand and your heart

    You are my friend for life

    When hurtful words are blurted out

    When the loved one walks away nor understands

    You are not alone we are by your side

    Sharing the tears and the hurt

    The laughter and the joys

    With every single breath and every tic toc tac

    As the ticking hands stand still or mockingly move back

    As the screams are muted in the frozen ebbs’ of time

    I am there holding YOU in my arms

    Reminding, telling you not to forget...

    The precious, unique and wondrous

    Beautiful human that YOU are

    You are not alone, while we draw breath

    While we share and chat

    We will walk together in dunes of sand and time

    And you are much, very much cared for and loved

    YOU are not alone

    You have all of us ... Look...

    A queue forms to hold your hand.

    © Susy

  • wow i see ive made wonderful friends Alan Susy Katina KitKat whezzer1 plummie and the rest of you guys on AUK what would I do without you all alot of you have helped me in my hour of needs so again thankyou all hugs xxxxxxxx

  • Susy, what lovely poems. Husband was right to say to post.

  • Friends

    Hello Kerry Anne ... and ... ""That's what friends are for"".. Take care of YOU

    Alan ..I know I have said it before ... but as always... I love your sense of prose and rhyme

    Thank you GrannyMo its always nice to have new people here in this Poem's thread...

    We are always looking for more contributions of Poems, Rhymes, Odes,so .. I will say it again...

    Please do not be shy .. and go ahead and POST a Poem or four !!


  • Reach

    I felt alone but did not cry

    there were to many tears that i wouldnt stop

    if I startet

    I reached my hand out to my friends

    they grabbed my hand and hugged me

    they reached out again to tell me im safe

    reached out to tell me there always there

    I reached to my friends when I was so low

    low enough for them not to let go

    They reached out to me hugged me tight

    and said my friend im here for you tonite

    Im here always for you my friend

    That reach is still there for me off my friends

    I will never let go because i need my friends

    my friends help me in dark times and talk when its light

    Im glad you all reached for me and have never let go

    thankyou my friends and love you all for your help

    Just wanted to thank everyone who helps me Susy Alanj Wheezer1 and Kat and Katina thankyou all from the bottom of my heart xxxxxx

  • Kerry Anne, THANK YOU for another Beautiful Poem... Keep writing your thoughts down and Keep the poems coming.

    Take care of Yourself and Hope to see you posting here in this thread for a very long time... Remember we have a book to publish!!!

    Love and warm hugs from the Orkney isles


  • I just thought I would put the poem Jack Tweed read at Jade Goody's funeral today. I'm not a big fan of either of them, but this poem really moved me.

    His poem read: ""If only I could stop the clock and turn back the hands of time,

    ""To a moment in a crowded room when your eyes looked into mine.

    ""If only I could walk once more on a sandy beach with you,

    ""Holding hands with Bob and Fred the way we used to do.

    ""If only I could lie again in the warmth of your embrace,

    ""To feel your tender kisses and breath upon my face.

    ""You were always there beside me through the laughter and the tears,

    ""You made me feel so special and soothed away my fears.

    ""I have asked God to give me strength to face the days alone,

    ""To help me heal my broken heart and mend my shattered soul.

    ""My life will never be the same without you by my side,

    ""Grief almost too much to bear, pain difficult to hide.

    ""But when we look into the sky for the brightest star above,

    ""Bobby, me and Freddie will send you all our love.

  • When is a Dream?

    Bedtime for me.

    Walking into the place where the dream of my reality becomes the reality of my dreams.

    I close my eyes and my heart rests.

    My brain begins its daily tidy of memories and experience, the fears and the longings, the loves - oh, the loves - and the hates.

    Muscles rest and eyes flicker as the train leaves for the journey into the imagined.

    Down the tracks to where the past becomes the future now, where the shop that isn’t becomes the house that is.

    Where the search for somewhere becomes a never ending race to find the place that is not right.

    Finding the one who should not be there, who does not belong, but does.

    Finding the one who should be there, who does belong, and is somewhere else.

    A place of where it is safe to not be safe.

    A place where forbidden is allowed.

    A place where feelings are more intense than imagination, yet unbelieved when eyes are open and the sun rises at sunrise.

    Bedtime slumbers on

    Do I smile in my sleep? Do I laugh? Do I reach out?

    I shiver.

    Can I possibly feel the excitement of that touch, that skin, those lips, that body?

    Can I draw that beauty in my waking hours, and find again the place where my fantasy was my dream?

    I know where I am, but will I know when I wake? I know this place, but I cannot find it.

    How did I get here?

    I run, but I walk. I appear. My dream appears.

    I am not alone. How could I be when the dream of my dreams is in my dream?

    These people. I know these people and they know me, but will they be here when I wake?

    I wake from my dream in my dream. How do I know when I am truly awake?

    I want it to carry on, but not in my dream, for I know my dream cannot be real, even though it is.

    I stir.

    I hold my eyes so tight. I cannot let it go.

    I am awake, but my eyes are shut. I am holding that dream, but the fog, my mind, the distance....

    I want that feeling. I purr, but I know my dream is only my dream and I must not make the sound of my dream.

    I check my world lest I cannot split my dream from my body.

    Where am I? What am I doing? Who am I with? Must I stop? Must I start?

    Am I guilty? Am I pleased? Am I excited?

    I must seize reality and hold the dream.

    I wish I could hold my eyes shut forever.

    I open my eyes and I look for my dream.

    © Alan

  • Thank you Alan... as always your poems are a delight and you always make the words dance with each new line you write

    Keep it up ...


    Love and hugs from the Orkney Isles



  • Publishing

    Hello all

    I have not been around for quite sometime... battling my lungs !!! but in the last week made contact with some people with connections in the publishing world and they seemed very interested in the idea of a Asthma Poems Book...

    So if any budding Poets have not put font and keypad to ""words""....

    This would be the time to do so

    Also ... would all those who have kindly contributed to the ""A Poem"" thread... get in touch with me ... most of you already have my email... as there are some ideas to ""tweak""

    I hope to be fit to email all the Poets soon but please PM me or email me if you can

    Hoping you are keeping well... and lets try to have a big push ... and get this wonderful AUK poem book idea finally out into the world !!!

    Love Hugs and kisses from the Sunny Os...



  • heart ache

    what I did today could change

    I let them know all this is silly

    all this she did he did

    its not fair

    Its not fair on me

    its not fair on them

    its not fair on the family

    who i may never see again

    I told them I was sorry

    but they should be to

    all this arguing is not good for you

    When will things calm

    when will we talk

    it may be never

    it may be tonight

    I only said what was in my heart

    and my brother didnt like it

    his wife has to follow him

    all the way throuhj this fight

    I never ment to hurt noone

    all I do is cry

    for I may never see there kids again

    i think id rather die

    This is a poem from the heart

    a heart that feels broken

    I only wish I never said what I said

    but it had to be said

    I would never feel right again

    if the truth was never spoken

    but I love you bro and always will

    lots of love and tears

    your heart broken sister

  • Dear Kerry Anne

    As Always KA ... your poetry touches the our hearts and soul.

    Take care and be good to yourself

    Love and Hugs from the Os


  • good news we all made up yipeeeeeeee xxx

  • One of my adult (?) aged children has asthma, smokes, and believes that his non smoking asthmatic mum worries too much...!


    Come in unmatched meteoric doses.

    Just to confuse us. As for herding them.

    It’s like trying to herd wild cats in space

    They understand unconditional love?

    Parallel universe. Not my making

    (Aliens had nothing of this)

    Those atomitic minds expand with, well …

    stuff I don’t understand. The more I try

    the less we don’t agree

    Must admit a certain admiration

    carefully disguised through the pseudonym

    of, ‘THE PARENT’

    So they confidently explode with all

    the aplomb of a life’s atom bomb plus

    light c-o-n-f-e-t-t-i- not needing approval

    of that black- hole caring parent space.

    The confetti hurts far harder. Softly.

    Like being whipped with an ostrich feather

    in outer space.

    Down to Earth the most recalcitrant one

    is crowing ‘not me like you’ However

    we both subscribe to will full behaviour…

    ...and a shining beacon belief

    In vistas blue curtain velvet trip- up

    An asthma cure?

    Like the Stoics, it’s all GREEK, although those

    symbiotic twins in the sky conspire

    ‘gainst rules, especially the outstretched one.

    I’m captured between a star crossed parent.

    The hard rock of experience hurts most.

    © 2009 by Mia All rights reserved.

  • Thank you Mia

    I am so sorry I have not been well enough to check this thread and comment on your wonderful contribution..

    I hope I am back now with a vengeance !!!!.. and Mia ...please...

    Please keep it up ... your poem is wonderful and obviously comes from the heart !

    Love and hugs from the Orkney Isles

    Susy S


  • Hope you are OK Susy xxx

    Another poem from the heart and thanks Susy for cajoling and encouraging everyone to write ‘from the heart’ and to keep writing and posting on this excellent thread.

    This is my anxious - in - advance sort of poem, if that makes sense, of training for an event and hoping to raise some money for asthma research before any sort of displacement activity occurs BEFORE the event!


    Air and pollen is drawn in deep breath

    Running along, step after step

    Smelling the scent that’s known so well

    Racing downhill and staying ahead

    On we go keep driving along

    Flying uphill, making ascent

    Gasping in air, pulling in breath

    Going along, still feeling strong

    Waking the heart, moving ahead

    Reaching the top, lungs are charged

    Still in the lead going to succeed

    Runner is engine and led by deep breath

    Mechanically sound and muscular strength

    Rolls Royce heart pumping arms and legs

    (Borrowed deep breaths, borrowed deep breaths.)

    Coasting sea air length after length

    Silence is heard, an eagle appears,

    Green melts blue light, yellow corn is here

    Lost to reverie, past lives disappear,

    Hand ripple of rye, ripple of eye

    The scene is so green, earth meets the sky,

    And still flies the eagle on tidal air,

    Proud, independent, the bird wheels high

    It swoops and protects a savage lair

    The engine is strong and needs no favours

    A glance in the sky admiringly high

    But head bent down for continuing strength

    Not needing air but a wary aware

    This is a race, asthma v breath

    Racing along feeling so strong

    Mechanically sound and muscular strength

    The lungs and heart running the length

    Who will win, why should it matter?

    Corn cobs approach run picking and laughter

    Try strawberry field too near to home

    Mental note to self the earth is loam

    Hurdling stiles downhill a scary outcome?

    Brushing ferns to the side notice a thorn underside

    The engines all home all home and safe

    The chest shields all and the heart embraces…

    A Rolls Royce engine and sticky all fours

    Life and engine oiled by deep breath

    Like the eagle, life lifts, swoops and glides

    Punctured by fate but always soars…ALWAYS soars

    © 2009 by Mia All rights reserved.

  • Poems are beautifull.a great way of putting into words how you feel.Well done keep the poems coming x

  • Wow good poem. Tells us how you feel. Sme people will feel the same.

  • Thank you Mia

    Again... I am overwhelmed by your poetry .. your prose and style

    Please please keep it up

    - I continue fighting my lungs... seems that chest infections and pneumonia ... like me too much !!

    Love hugs and wheezy kissed from the Orkney Isles



  • A Poem I heard when small and put it up in my nans room in her care home.

    We pray thee lord this home to bless,

    with every joy and hapiness,

    within these walls may thy peace dwell

    and every member loves you well.

    Give us lord thy grace to shere

    thy peace and thy loving care,

    when dark days come

    and come they may

    we pray the lord

    will light the way.

    might havefew sps

  • Buy A Poppy?

    Will you buy a poppy, sir?

    Will you wear it well?

    For you will hear a band, sir,

    Not a screaming shell.

    It’s good to hear you’re well, sir,

    And feeling in the pink,

    Two minutes isn’t very long

    To close your eyes and think.

    When I was small, I’d say: “Oh my

    I think that man is going to cry”.

    Will you buy a poppy, sir?

    Will you wear it proud?

    For you will hear the children sing,

    Not orders barked out loud.

    “Fix those bayonets, off you go,

    And if you don’t come back

    there’s plenty more to follow you,

    Bob and Bill and Jack.”

    Full-grown men begin to cry,

    I often used to wonder why?


  • LOLO






  • Hush, hush, whisper who dares,

    little boy stands at the top of the stairs.

    Blood on his fingers, fur on the mat,

    Christopher Robin's castrated the cat.

  • A Soldiers Prayer

    Look God: I have never spoken to You,

    but now I want to say, ""How do You do.""

    You see God, they told me You did not exist;

    and, like a fool, I believed all of this.

    Last night from a shell hole I saw Your sky;

    I figured right then they had told me a lie.

    Had I taken the time to see the things You made,

    I would know they weren't calling a spade a spade.

    I wonder, God, if You would shake my hand;

    somehow, I feel that You will understand.

    Strange, I had to come to this hellish place

    before I had time to see Your face.

    Well, I guess there isn't much more to say,

    but I am sure glad, God, I met You today.

    I guess the zero hour will soon be here,

    but I am not afraid since I know You are near.

    The signal - well, God, I will have to go;

    I love you lots, this I want you to know.

    Looks like this will be a horrible fight;

    who knows, I may come to your house tonight.

    Though I wasn't friendly with you before,

    I wonder, God, if you would wait at the door.

    Look, I am crying, me shedding tears!

    I wish I had known you these many years.

    Well, I will have to go now, God. Goodbye!

    Strange, since I met you, I am not afraid to die.

    ~ Author Unknown ~

  • Final Inspection

    The Soldier stood and faced God,

    which must always come to pass.

    He hoped his shoes were shining,

    just as bright as his brass.

    Step forward you Soldier,

    how shall I deal with you?

    Have you always turned the other cheek?

    To My Church have you been true?

    The Solider squared his shoulders and said

    No, Lord, I guess I ain't,

    because those of us who carry guns

    can't always be a saint.

    I've had to work on Sundays

    and at times my talk was tough,

    and sometimes I've been violent,

    because the world is awfully rough.

    But, I never took a penny

    that wasn't mine to keep.

    Though I worked a lot of overtime,

    when the bills got just too steep.

    And I never passed a cry for help,

    though at times I shook with fear,

    and sometimes, God forgive me,

    I've wept unmanly tears.

    I know I don't deserve a place

    among the people here.

    They never wanted me around,

    except to calm their fears.

    If you've a place for me here, Lord,

    it needn't be so grand,

    I never expected or had too much,

    but if you don't, I'll understand.

    There was silence all around the throne

    where the saints had often trod,

    as the Soldier waited quietly,

    for the judgement of his God.

    Step forward now, you Soldier,

    you've borne your burden well.

    Walk peacefully on Heaven's streets,

    you've done your time in Hell.

    - Author Unknown -

  • A poem I wrote a while back

    Waiting Room

    Tick, tock. Tick, tock.

    Slow motion picture scene

    Heavy eyes and weighed down limbs

    Memories flicker...of what has been

    Tick, tock. Tick, tock.

    Another minute. Another check

    Lights fade and sound is no more

    No mercy mission can save this wreck

    Tick, tock. Tick, tock.

    Statue of stone in the coming dawn

    Others return to the land of the living

    Lights put out and the curtain is drawn

  • Assembly

    As the hand grasps for twelve

    A slice of moonlight

    Pierces the calm, cold glass

    Through which the stars speak nightly

    Discussion group for one

    Purple,black, white

    Colours blend as it sounds midnight

    Orange, yellow, red

    The night gone. The group dead.

    Await the burning and the falling

    Dropping of the day

    My friends will reappear

    I can think and be

  • PamPam , Nice poems,told you once you put one on the rest will follow.

    We take language for granted,but when we take a step back and read poems,its beautiful how words come alive and full of meaning xxx

  • Thanks

    Thank you PamPam...both poems are great, Thank you for contributing your poems to the ""A Poem"" thread... Please keep writing ... keep the good work up !

    Love and Hugs from The Orkney Isles

    To all the AUK Poets..well done and Hurrah!..Please ,please keep it up


  • Autumn

    The leaves sway

    Back and forth. Side to side

    Each grappling for a friend. Some comfort

    As the water pellets fall

    Killing and maiming the mind

    In an empty, barren field

    The leaves

    Do they make a sound?

    For there is no ear to listen. Witness

    Does the tree exist at all?

    Are the leaves imaginary?

    Each a separate worry, thought, feeling....

    One by one, they fall

    Dancing as they find their partners

    In a slowly moving zig-zag. Weaving

    To the ground.

  • its almost here

    Its almost here that time of year

    The time most love best

    They time when purses are empited

    And dads sit down and rest

    Its almost here that time again

    That time when most of us laugh

    But Spare a thought for those alone sat in a flat

    Sat thinking that they did this and that

    Its almost here were did the year go

    doesnt it go so fast

    so raise a glass and give a cheer

    for mums slaving over the dinner

    Its almost here

    when old saint nick checks his list twice

    to see whose naughty and nice

    I hope you all have a gift under your tree

    this asthma family either big and small

    we dont really care aslon as were all at home

    sorry bit early lol xxxxxxxx

  • Hi Susy,a lovely poem have missed you and your poems love Glynis xxx

  • Thank you

    Thank you Kerry Anne... your poem as always touch and convey so much, with each line.. each word you brings us closer to your heart and soul

    and the same goes for you PamPam...Beautifully said making Pictures dance in my mind. Thank you and please keep it up

    Sorry I have not been around much ... I have been having ""words"" with my lungs for a while .. but I think I am winning the argument at long last !

    Thank you to all who read and WRITE their poems here in this thread.

    I know from experience and by the emails I get just what help they are to those who are touched by the POEMS, The words, the Rhymes and the Odes

    Take care of all of you and Please keep your POEMS coming ...

    and Glynis ...I will try and be back here waxing lyrical very soon too.

    Love Hugs and WHEEZY Kisses from the Orkney Isles


  • to those who are not here WARNING TALKS OF DEATH

    To those who arnt here

    To those up in the sky

    in heaven above

    looking after us all

    I have to talk about my spencer

    who is now 7 year old angel

    I still kiss your photo everyday

    To those who have love and lost

    My heart is thinking of you

    to those who only got to say hello

    Before you said goodbye

    I know how much your heart aches

    Lets give a thought to each other

    lets all have a hug

    and think of those we love and loved

  • Poems

    Thank you KerryAnne for another poem straight like an arrow from your heart ... to mine and others too

    Love and hugs from the Orkney Isles



    there have been so many beautiful and moving poems here recently that I felt the need to be ... silly, so ...

    Missing Chocolate

    Is nearly carol and jingle time again

    Is nearly time for trimmings, bobbles and the fairy-lights AGAIN

    Peace on earth and same old movies on TV to see

    And pine trees shedding their bits

    Time for sore arms... oh no ... is also flu jab time!

    Scarves and gloves... winter boots and runny noses

    Reindeers’ flying fast... Santa’s HO Ho ho-ing!

    And now on top of everything! ... another jab is prodding...

    We have “swine” to look out for

    Another year nearly over

    Another one creeping up.., getting ever closer

    To 2012 deadline and Oh my oh my ...

    Keeping everything cross and hoping ...

    That the Mayan’s were wrong

    So that Zefram Cochrane may boldly warp into 2063...

    And that we may prosper and live longer

    Showing my true colours now and...

    So my friends if you know what I’m saying

    If you know what this is all about...

    QA TLHO' (pronounced KAHTLOE' ) , and Qapla' batlh je (KAHPLAH BATL JEH)

    My oh my … who is the clever one, or is it nerdy one ?

    Or if my Best and truest friend is to be believed…

    One more SADDO posting silly poems !!!

    MajQa' !

    Now being totally serious and asking those that know…

    And in keeping with the seasons' spirit…and going with the flow

    NUQ DAQ YUJ DA'POL ? … hehehe ! …no.. no really

    Where is the Chocolate? – if you know.. please let me know !

    Blaming this one on too much time in Hospital and O2,(or is it not enough ?!)

    Steroids, antibiotics… or could it be an age thing..?...no…No ..

    NO .. it is most definitely … the meds and the O2 thingy

    Making my mind melt!-

    Please let me know that ...I am not the only one…

    With this condition !

    QA TLHO' !!

    Boldly going now... to sleep I hope! - little padded room, bib and medication are now awaiting me !

    © Susy

    Maybe the fact that I got the latest ""Hotel Chocolate"" catalogue in the post and a day nebulizing watching Trekkie movies.... Can I use that as an excuse ? Yes / No? ... Any way ... LIVE LONG & PROSPER !

  • A Special World

    A special world for you and me

    A special bond one cannot see

    It wraps us up in its cocoon

    And holds us fiercely in its womb.

    Its fingers spread like fine spun gold

    Gently nestling us to the fold

    Like silken thread it holds us fast

    Bonds like this are meant to last.

    And though at times a thread may break

    A new one forms in its wake

    To bind us closer and keep us strong

    In a special world, where we belong.

  • Two so very different pieces.

    Woody - Your world does seem so very special. What wonderful use of english to paint that picture.

    Susy - I thnk we might have to have you locked away, but as I only know one word of Klingon, I will have to respond with that instead. Qabong!



  • Thank you

    Woody-som...Thank you That is a beautiful and profound Poem.They are more than just Special words... They are YOUR words . Please, please keep it up.

    Alan ..Yes indeed two more different Poems could hardly be found side to side even if you searched eighty eight places and times!

    so ... my dear friend ... Qaparha' right back to you

    Love hugs and kisses from the Orkney Isles


  • Christmas AUK

    Christmas AUK

    Here is a cheer... a toast and a plea

    May all your wheezing end

    All the coughing go away

    May you all have happy healthy lungs

    That you have plenty meds at hand

    And that there are no runny noses

    No tickles or rumbles in your chests

    And many parcels and cards from friends

    That your dinner goes smoothly

    Not raw or burnt...

    Raise a glass to all AUK friends

    And wishing all an amazing, healthy twenty ten

    Most of all I wish for you

    The love and joy of True and Cherished...

    Family and Friends

    © Susy

  • thats lovely susy,nice see you about.

    Will email you ,love Glynis xxxxxx

  • 'Twas the Day After Christmas

    'Twas the day after Christmas and all through the house

    Children sat slack-jawed, bored on the couch.

    Wrappings and toys littered the floor,

    An incredible mess that I did abhor.

    With Mom in her robe and I in my jeans,

    We waded in to get the place clean.

    When suddenly the doorbell: it started to clatter,

    I sprang to the Security-View to check out the matter.

    The new-fallen snow, now blackened with soot,

    Was trampled and icy and treacherous to foot.

    But suddenly in view, did I gasp and pant:

    An unhappy bill collector and eight tiny accountants.

    The door flew open and in they came,

    Stern-looking men with bills in my name.

    On Discover, on Visa, on American Express,

    On Mastercard too, I sadly confess.

    Right to my limits, then beyond my net worth,

    Over the top I had charged, in a frenzy of mirth.

    The black-suited men, so somber, so strict,

    I wondered why me that they had first picked.

    They stared at me with a look I couldn't miss,

    That said, ""Buddy, when are you paying for this?""

    I shrugged my shoulders, but then I grew bolder,

    Went to the cabinet and pulled out a folder.

    ""As you can see,"" I said with a smile,

    ""It's bankruptcy that I'll have to file!""

    And with a swoop of my arm, my middle digit extended

    I threw the bills in the fire: the matter had ended.

    The scent of burnt ash came to my nose,

    As up the chimney my credit-worthiness rose.

    Without another word they turned and walked out,

    Got into their limos, but one gave a shout:

    ""You may think that's the answer to all of your fears,

    But there's nothing you'll charge for at least seven years!

  • good one woody-som.

  • ... Skinny and Blond !!

    I was back in the Costa place when an up and rising

    Medical hotshot said... I do believe your problems stem...

    From the fact that... You are VERY overweight... “Let’s see if WE can get you right..

    By losing some of THE flab...!”

    I will get someone who can help... then contently walked away...

    Did not appear or want to hear a word I tried to say...

    Occupational therapist pops by...

    “Let us see if we can make you healthier... and

    Improve the QUALITY of YOUR life...”

    Probes attached to my chest, digit pinching clip fixed tight...

    “Let us see how long you can cycle... ”

    Ninety seconds later... “Stop... stop...” She shouts...

    O2 levels dropping... Nebulised at once you must...

    I have never seen such a sudden drop...

    We cannot continue with this show...

    Far too dangerous...Don’t YOU know...?

    I just smile and nod!

    Thirsty minutes later... O2 levels are more “acceptable” now

    As I smile and arise... my legs wobble... and Oops...down I go!

    In the process I snap the discs in my back...

    Another girl in white pricks my finger for a “little” drop of blood...

    Needle set on number two... “Oh my god what thin skin you have”

    Deep... Deep red pours out... Covering my gown...

    Reading taken and then another...“Oh my God...

    I think she is going into a diabetic shock!”...

    Do you have a sweetie or a chocolate..?”...She asks

    I shake my now ooh so tired weary head...

    As a “nice” lady offers me a sip of a glucose drink...

    But before I can say No, no thanks... a plastic cup is on my lips...

    Sickly liquid down my throat

    If they had waited just one second I would have said...

    The taste of THAT makes me “Auchgh”...

    Ooh it’s far too late to say it now, all can see the mess I’ve made!

    Now bright orange liquid adorns floor and ...to the red from before,

    I am so SO sorry I would pathetically pronounce

    But that sudden involuntary action... set my coughing fit off again...

    O2 levels dropping faster now and to top it all

    Obviously not wanting to be excluded...

    The loud wheeze of my “brittle” decides to happily join in!

    My weaken ribs now hurting...My back hurts more than just a bit

    I have had just about enough of this!!!

    Men in green are called for... “She must be RUSHED to her bed!”...

    Doctors and nurses gather round me...

    Talking about me NOT to me... “She is overweight... Hot shot says

    She is Brittle Asthma... another one exclaims...

    Now her liver, pancreas and other bits are failing...

    Steroid on-set Diabetes... The discs on her back have slipped

    And just to add to the picture... Two ribs broke during that last coughing fit....

    BUT her cholesterol could NOT be bettered...

    Seems she does NOT survive just eating chips or sweets !!

    ... surprisingly is exclaimed

    Her diet cannot be bettered.. the nutritionists loudly says

    Baffled heads and notes being read and taken

    She was managing at home... then she came here for two days

    But that was more than two weeks or so !

    ... Does someone know...What brought all these troubles on today...?

    And just then... Before I can say... as I look at Know it all...

    Another nurse leans over to attach more probes to me...

    She has just come in from getting her fix of nicotine....

    Oh dear.. Here we go again!

    .................... Fifty minutes later, I’m conscious and can almost smile again

    “I must go home soon... before these caring folk do me in”

    I move my arm... making sure the drip does not pull or tag...

    My other arm is wrapped and air squeezes it tight...

    Pull the mask from my face... and not at all sarcastically I say...

    “One of YOU doctors thought... I needed to be more active...

    To IMPROVE the Quality of life MY life...!”

    I smile at the gathering around my bed... and take one gentle

    Deep-ish breath... Smile and politely say...

    Please do not fret or worry... and is not that I do not appreciate your concerns

    But really... And I say this most honestly and sincerely...

    And knowing you all mean well... But...

    Could I now be left in alone... with MY “little” quality of life

    And please... Please try to remember that...

    I am doing the best I can... with my weak tired frail organs, bones and lungs

    I always say... If given half a chance...

    “Things could be much... so much worse...I could be...

    And this is said with no intend of offence...

    I honestly believe that I would feel far far far worse if I was...

    Skinny and a Blond!!!...” (Now at long last... the title to this prose makes sense)

    A roar of involuntary laughter fills the ward...

    As I place the Nebuliser mask back on my Moon puffy face...

    Some give me a big smile and hurriedly back away...

    And the hotshot doctor... shakes the still “all knowingly head”

    No lesson learned, in that doctor’s mind...

    I am a cause that’s lost... And all this is MY own fault!

    Life is too short and precious to spend my days apologising

    For being a Mrs Fatty,.. this was not always so...

    But I rather be A happy LIVING fatty than a desiccating skinny one

    And now I say ...To the AUK community and my buddies...

    I you are skinny or / and a blond... please do not get angry or take offence

    You could always come back with the retort...

    “It could be much so much worse...

    I could be just like Susy... more than a bit Brunette

    (with a little bit of grey on the side)

    and REALLY very quite Rotund ...! “

    © Susy

    I know it does not rhyme .. but like a good joke...the story had to be told reality really IS stranger than fiction at times !.. I mean.. you could not make it up !!

    Disclaimer...Names Times and Places may have been changed to protect the ""Innocent?"" ... (sorry in a silly happy mood now!)

  • that is an impressive story, although as a skinny blonde (although in my defence i eat constantly and care very little about how i look, my skinny blonde-ness is a result of genetics and a variety of medical conditions that lots of people i know are jealous of until they realise how hard it is) i would love to be able to come up with a good retort :) but i would fail so i will gracefully admit it was a good poem and made me smile :) x

    ps are they going to leave you alone?????

  • Dear (Not) Blond.....

    There's a moonbeam over Scotland

    Shining softly on the snow

    Sending messages to brunettes

    Some who we closely know.

    The message that it's sending

    Is to someone who's alive

    We'll take you as you've always been

    Be it dark, or blond, or olive!


    Your Kensington Pin-up!

    (Pushing his luck on last line, but hoping to get away with it)

    © AJJ 2010

  • My poem

    I wish I could feel my lungs gently fill with air,

    And then slowly breathe out forgetting any despair.

    As each breath passes by,

    I just wish I knew why?

    Why was it me that God chose?

    Was it to see how much I would grow?

    Or was it to get me to appreciate life?

    And think more about others feelings and strife?

    I would not wish this on anyone,

    Not even for a joke or a bit of fun.

    But my aim in life is to keep on going,

    Just follow the direction of the wind blowing.

    Whatever is thrown at me I will prove I am strong,

    I can do anything and prove everyone wrong.

    I love my life and appreciate everything I CAN do,

    And to be honest I probably could not do it if it were not for you!

    You all stick by me when I am in ill,

    And fill me in with all the gossip and thrill.

    And the special times I do spend with you,

    I feel like I can do anything I want to.

    i wrote this for all my friends that have stuck by me through the last 2 years of various diognoses that cant be cured, including asthma but i have had that since i was born. hope u like it!!! xxxxxx

  • Where did normal go?

    Enjoy the air

    The clear air, the wonderful air, the very, very breathable air.

    Enjoy strolling in the dark, gazing at the stars and the moon so full, so clear, so sparkling bright

    Enjoy that picture being the thing that takes your breath away

    Enjoy the dreams that do the same

    Enjoy not thinking about breathing

    Enjoy that moment when the flow hits a peak not encountered in months or years

    Enjoy feeling normal.....

    Wham. Blam

    Curse that meeting room

    Who stole the air

    Why is it so hot

    Why are there so many people in there

    Who let that elephant sit there

    Who stole the air

    What is all this gunge

    When will this end

    Why are those stairs so difficult to climb.

    They were easy this morning and they are only two floors high



    Where... did normal go?


    © AJJ

  • Thanks

    Thank You ""Backawayslol"" I am so glad that you were not offended !!! and thanks for the PM ! and the reply is I am home and although I still have achy ribs... This could be much much worse... I still could be .... hehehehe sorry could not resist it !!

    Chloe Thank you for your beautiful Poem.. and I do hope you are feeling so much better now a days ... Please keep your spirits high, good times will come!

    Alan .. My dearest and AUK magazine February 2010 ""Pin Up"" Friend !... thank you for EVERYTHING and I am I love your poem... Keeping everything cross that the preds do their thing. ta always

    And to all AUK new and ""Old"" please PLEASE keep them coming ... The happy ones inspire us all .. the ""sad"" or angry ones tell us we are not the only ones and put shape to our feelings and thoughts.

    Thank you .. one and all ... and There is always rooms for MORE more more

    Love and hugs from the Orkney Isles


  • Old friend

    Okay....I've been on the boards quite a while and feeling brave have decided to add my mite to the poetry. I wrote this aged 14 (a very long time ago!) about my golden labrador......a real old friend.

    You can hear the tapping of an old dog's claws as it wanders down the hall,

    You can hear him softly murmur as he bumps into the wall

    For the eyes that were once lively now are dull and without light

    And the limbs that were once springing now are creaking through the night.

    Soon he will look no more on a world ever changing

    He will go into the haven,

    the place of all his dreams.

    I wish that I could follow and keep him with me, by my side,

    but know that that is selfish and I cannot be his guide.

    The bonds of friendship last forever, no matter where we go,

    This friend who I have loved and who loved me in return,

    stays in my heart forever, a fire that will always burn.

  • Thank you

    Thank you Fee Jay your poem it's beautiful even more so as it was written in your teens... Please do not be shy and do write and post ""A Poem"" again !

    Hugs from the Orkney Isles


  • Another Star

    She wondered slowly through the park.

    No street lights to spoil the view.

    It was a perfect, clear evening.

    The moon was so full and reflections on the lake shone so clear.

    The ducks were quiet and motionless as they floated on a sheet of glass.

    Not a single movement was there other than the gliding moment of a grey, pink and blue cloud as it whisped as a feather across the night sky.

    The squirrels slumbered in their nests as the stars began to glow.

    She froze as the stars suddenly engulfed her in a beauty so deep.

    They were calling.

    Sending her a message.

    Their sparkle was a chatter – an urgent stellar text.

    Look up.

    Watch us.

    Count us.

    We are one more and we are glowing.

    We are watching you, just as you did when you were a star.

    We were stars.

    Then we were there with you.

    Now we are stars once more.

    Here to watch over you.

    Here high in the sky, but close - so very close.

    Watching over you.

    Sharing your dreams.

    Guiding you.

    Knowing you.

    Always there.



    © AJJ 2010

  • Wow

    Wow Alan as always your poems paint pictures, as you make the words come alive and dance.

    Thank you and please never stop putting your thoughts into words

    TA very much

    Love and hugs from the Starry Orkney Isles


  • Hi SUSY,hope you are a little better nice see you about.thanks for emails and pms,take care and lookforward to your next poem from your loving fan and friend Glynis xxx

  • computer user’s reboot

    computer user’s reboot

    Don’t you wish when life is bad

    and things just don’t compute,

    That all we really had to do

    was stop and hit reboot?

    Things would all turn out ok,

    life could be so sweet

    If we had those special keys

    Ctrl, Alt, and Delete

    Your boss is mad, your bills not paid,

    your wife, well she’s just mute

    Just stop and hit those wonderful keys

    that make it all reboot

    You’d like to have another job

    but you fear living in the street?

    You solve it all and start a new,

    Ctrl, Alt, and Delete

  • I've loved this poem since I was little. My mum used to read it to me. The poem is from The Verse Book of a Homely Woman by Fay Inchfawn.

    The Naughty Day

    I've had a naughty day to-day.

    I scrunched a biscuit in my hair,

    And dipped my feeder in the milk,

    And spread my rusk upon a chair.

    When mother put me in my bath,

    I tossed the water all about,

    And popped the soap upon my head,

    And threw the sponge and flannel out.

    I wouldn't let her put my hand

    Inside the arm-hole of my vest;

    I held the sleeve until she said

    I really never SHOULD be dressed.

    And while she made the beds, I found

    Her tidy, and took out the hairs;

    And then I got the water-can

    And tipped it headlong down the stairs.

    I crawled along the kitchen floor,

    And got some coal out of the box,

    And drew black pictures on the walls,

    And wiped my fingers on my socks.

    Oh, this HAS been a naughty day!

    That's why they've put me off to bed.

    ""He CAN'T get into mischief there,

    Perhaps we'll have some peace,"" they


    They put the net across my cot,

    Or else downstairs again I'd creep.

    But, see, I'll suck the counterpane

    To PULP before I go to sleep!

  • lovely Poem nana and woody-som

  • 2011

    Glistening white, covers the land

    Jewels twinkle in the skies

    One more layer of clothes and mittens on

    Loads of gifts and things lost in the post

    They say food in the markets running low

    But never mind all that

    This is my Christmas wish to you

    That when you look back in this year past

    And are counting back all the joyful laughter days

    And the number of nights sad or low

    That Joy and smiles outweigh the tears shed

    And wheezy days were far and few

    I wish you time with friends and family

    And to remember to take all your meds

    And who knows maybe... this New Year now

    Your deepest hopes come true

    That you too are loved and cherished

    Full of season’s hope and cheer

    But always remember that Christmas and New Year

    Are just two days... Not a full year

    So resolute to have not just those two

    But a very full happy safe healthy loving year

    Keep warm and toasty

    Snuggle up tight

    Take a puff of the inhaler and Raise a glass

    And make today the first day of a gloriously

    Magnificent, healthier, brighter and full New Year


    Happy New year to all at AUK, I am a bit late posting this as I have been a little under the weather,memory is going... and I have been a little under the weather.... ooh dear... anyway... Happy New Year !

  • SUSY,

    Happy New Year.

    Lovely poem Susy,hope you are feeling a little better and lovely

    see you back on AUK XXXX

  • I thought I would bump this thread as I remembered it from a long time ago. More especially as some of it may be of some help or comfort to those who are struggling right now.

    Hugs and healing thoughts to all


  • That was really lovely susy :)

  • :'(

    this means a lot to me right now....

    beautifully worded and so meaningful, straight from the heart

    x x x

  • Susys poems are lovely.Shes not been on for a while .Will send her a email xxx

  • wow Susy it is wonderful your writing, so true she gets me away for classes today :(

  • Thank you

    Thank you ALL for your lovely comments, I have not been here for a while... Trying to get myself better (long story..)

    I hope to get round to writing a little more soon but PLEASE any would be and already are ""Poets "".. Please do add your Asthma poems here. Remember a poem does not have to rhyme..

    A Poem is the gift our Soul gives to the world... and paints your heart with words

    Love and hugs


  • Take a moment


    Take a moment.



    Take a moment.


    If I had the space and time I’d really try to show.

    How very hard this is to do, how much you need to know.

    My life is ruled it seems to me,

    By rules you do not ken

    I do not have the life I want

    Or only now and then

    This asthma is a tiger, it tries to conquer me

    It will not win, I will not rest, determined I will not flee

    Before it’s teeth and snarling ways

    I stand always defiant

    And with your help and listening I will be triumphant.

    Please doctor, nurse

    Don’t look away

    Don’t look to books and numbers

    Look at me and understand



    Take a moment.



    Take a moment.

  • Very moved by your poem, FeeJay.

    If you don't mind, I'd like to copy it and put it in my medical folder so that I can show my doctors. Would that be ok?

    Thanks for expressing things so eloquently!


  • Thanks Wishes.

    Please feel free to put it in your folder :)

  • Light Keeper

    Sleep eludes,

    I sit and stare out at the silent, shaded street.


    Time to think, time to see.

    Dark thoughts,

    Suffocating, extinguish the light.


    Whirling, kaleidoscope collisions.


    A light, banishes the dark.

    Bearer of the light, guardian

    Saviour, Friend.

  • Soldier Man

    The soldier stood, alone,

    Head bowed, torn and battered.

    A strong man.

    But in this place, here,

    Bloodied, scarred, broken.


    Out of the darkness, slowly

    But with gathering speed and strength.

    A light.

    A candle flame, flickering,

    Gaining strength the closer it came.

    A multitude of candles, glowing.

    Bringing light, strength and warmth.

    And friends.

    The soldier stood, surrounded,

    By the light and strength of friends.

    A strong man.

  • Thanks Feejay for bumping up not sure I'd read this before. Woody-som, love your computer user’s reboot :)

  • Don’t Quit

    When things go wrong, as they sometime will

    When the road you’re trudging seems all up hill

    When the funds are low, and the debts are high,

    And you want to smile, but you have to sigh,

    When care is pressing you down a bit,

    Rest if you must, but don’t you quit.

    Life is queer with its twists and turns,

    As everyone of us sometimes learns,

    And many a failure turns about,

    When he might have won had he stuck it out;

    Don’t give up though the pace seems slow,

    You may succeed with another blow.

    Success is failure turned inside out,

    The silver tint of the clouds of doubt,

    And you never can tell how close you are,

    It may be near when it seems so far;

    So stick to the fight when you’re hardest hit,

    It’s when things seem worse,

    That you must not quit.


    I’m somewhere new

    Mid of the night

    My readings going fast

    Must call for help

    Am on my own

    No need to say can’t last

    10 minutes go

    No blue lights show

    We’re on the way they say

    10 minutes more

    I’m on the floor

    Beside my open door

    No blue or two

    We can’t find you

    It says you’re in a field

    I told you clear

    I know I’m here

    I’m sitting in the street

    Some minutes more

    At last they’re here

    No blue. No sound. Just light.

    I’m here, I wave

    I’m being brave

    I’m climbing to my feet

    I get indoors

    Put one arm out

    And slide down on my seat.

    © AJJ 2012

    What happened next is a story that went on for another week and ended with a far from routine OP appointment at RBH.

    I have moved from the noise and dirt of Kensington out to the clean air at the edge of the South Downs National Park, seven miles north of Brighton. This was my first call for urgent help since moving there last summer. With a 23-minute wait, thank heavens it was not my last. I was used to three.


  • Hello AlanJ, long time no see!

    Thanks for the poem thus bumping this thread back up.

    Hope you're doing ok now. I await the next instalment of your story.

    I'm in the RBH soon.

    Here's a poem - not mine - that I have always liked.

    W.B. Yeats: He Wishes For The Cloths Of Heaven (1899)

    Had I the heavens’ embroidered cloths,

    Enwrought with golden and silver light,

    The blue and the dim and the dark cloths

    Of night and light and the half light,

    I would spread the cloths under your feet:

    But I, being poor, have only my dreams;

    I have spread my dreams under your feet;

    Tread softly because you tread on my dreams.

  • Hi TJ

    Life has been a bit different. How do we chat offline these days, now that private messaging seems to have gone from here?

    Not doing too well right now. Been talking to RBH today and I have promised that I will get myself costa-fied if I continue like this. I think I may well be keeping that promise tomorrow. :( Subject to being on the outside next Wednesday, will be back at RBH on Wednesday afternoon for clinic.

    Public thanks to Dr Alina Dimitru at RBH on AMG's team. She has been and continues to be so very, very supportive.



  • Hello,

    Well as you have seen things have changed with the new forum resulting from IT contracts ending. Private Messaging is the only non working feature of the board with new ones such as thanks, watching topics, moderator ability to move posts to correct places etc. It is currently disabled because PM moderating tools on the old board are not available plus problems with emails. With unmoderated private messaging and safeguarding issues Asthma UK has to comply with the Charities Commission that minors can access.

    Anyway enough of the brief summary of changes. Offline chat is not available so email, facebook ... are the way forward. Unfortunately, exchanging such details is rather difficult considering the boards are open for all to read.

    Sorry to hear you are not doing so well but good to hear RBH are looking after you so well. As an aside, speaking from experience, thanks can make a health professional's day especially if busy, politics ... I am in the RBH most of the week after next, are you are around then?

  • Thanks for the explanation, TJ. I am so glad I have given up IT for a living.

    I hope it's OK to say send me across a Facebook friend request and we can chat there, but you have to guess my Facebook name. There is a big clue somewhere here. :)

    RBH the week after next is unknown at the moment. Right now, I can turn up without an appointment, which is what I am doing this coming Wednesday afternoon. I am feeling somewhat stir crazy right now, not being able to move far from my new home without getting exhausted, so, if I can get out the week after next, the trip up will give me a good escape with a purpose. I am sure I will be OK by then, even if I do get ""self-costafied"" tomorrow. I will be coming up from near Brighton.

    Alan J Johns


  • No problem re the explanation. Yes that's fine - you may want to edit the post unless you're ok with leaving the clue for all to see - but can I find at this moment? Will try again once back on the full site rather than than the app.

    Good you can drop in, is that MG clinic - not surprised it ran behind when I was there. Take it more likely than not you'll be costa'ed?

    Take care of yourself


  • AlanJ, no luck searching for you. How are doing this week? Good luck with the RBH clinic tomorrow.

    in regards to facebook requests with the absence of the private messaging system, this has been discussed. Details could be posted here on the forum e.g. link to page or username etc to search. Could be duely edited in the event one would rather these do not remain in the public eye.

  • Thanks TJ

    Managed to stay on the outside - just, but I'm still all over the place. :(

    If anyone you know (and has your contact details) sees me at the afternoon (AMG) clinic tomorrow (Wednesday) and I have not passed out in a heap on the floor (I will have my bright yellow ""HEAD"" bag, packed for NHS stay), perhaps they could pass on email addresses.

    I like the idea of linking in the Facebook usernames. I am happy to include mine in my posts, but will not do so yet as I do not want to set a trend before others agree. The same applies to my LinkedIn profile, which is also very much in use.

    Speak soon


  • Good luck tomorrow, think there are a few there but in the morning clinic. Have you seen the General forum » RBH next week?

    There is a similar discussion there. I may add my details for a limited time only. I have discussed with the other moderators and the webeditor is aware. It is ok to use facebook usernames etcI like the idea of linking in the Facebook usernames. I am happy to include mine in my posts, but will not do so yet as I do not want to set a trend before others agree. The same applies to my LinkedIn profile, which is also very much in use.

    Are your privacy settings on facebook open for people to search and find you?

    The bright yellow bag is a new & good idea for ways of spotting people though - needed in that massive waiting room. If anyone you know (and has your contact details) sees me at the afternoon (AMG) clinic tomorrow (Wednesday) and I have not passed out in a heap on the floor (I will have my bright yellow ""HEAD"" bag, packed for NHS stay), perhaps they could pass on email addresses.

  • Hi TJ

    Wednesday was definitely not a good day.

    AMG gave me a huge lecture on playing with my own life! After that, he sent me immediately across to my local costa, Princess Royal, Haywards Heath, where they were expecting me. I am back home now, very tired, a bit emotional and looking forward to 3 months recuperation from pneumonia. :(

    Try: facebook.com/AlanJJohns. You should be able to find me with that. My privacy settings should allow. I'll tell you more there. When I have got my head clear again about all that happened, I will tell everyone. I am very lucky and I have learnt some very serious lessons.



  • Oh no, that does not sound great then. Good he was looking after you even if there was a telling off, sounds like it may have been needed.

    That fb has worked too.

    Take care of yourself, ostrich/hibernate for a while if it helps to get your head around all the events

  • AlanJ, not seen you on here for a while, sounds like things have been eventful! As you may have gathered from reading other threads, I was in Lind last week (6th-9th) - shame no overlap, though sounds like you might not have been in a position to talk. I hope you start doing better soon and recovering.

    I remember you saying Dr MG was great and really lovely - you were right, regardless of how severe you are - or not - and they don't just tell you to go away, but seem to be aware that you exist even when not sitting in front of them.

    I will be there again, so maybe I'll see you another time - hopefully not one when you're about to be captured and given a ticking-off!

  • Thanks Philomela

    Seems like I have missed a number of people just in the last few weeks. One of the things I have lost moving away from Kensington last year is RBH being local and giving me the opportunity to pop by easily to meet up. Oh well, At least (or so I thought) my lungs are much better off down here in the Sussex countryside.

    I have total respect, admiration and praise for AMG and the team. My (needed) lecture does not change that. It probabaly strengthens it. It also showed just how passionate he is about people. My asthma was totally turned around with their help. I even have 724 recorded as a best PF (although the Piko meter later turned out to be faulty and my best was really about 640, which is still pretty amazing). Nothing was ignored. Everything was listened to and questioned. I have learnt never to worry about talking to a member of the team I have never met before as they learn it all. They may not have met you, but they know you inside out.

    My one stay in Lind was for a acid reflux overnight test and that had never ever been questioned until I got to RBH. It turned out to be significant and is now managed well.

    As we do not have messaging here, I am very happy for you to look me up on FB. TJ has just found me with facebook.com/AlanJJohns, so I know that will work.

    I will look to meeting up when I am slightly more with it and a little less emotional. I am sure I will post a poem here soon related to all this before my emotions leave it all behind (which they need to do).

    Love and hugs from the South Downs



  • I have not been able to find a clear guide to O2 levels. I did not ignore them, but I did not take enough notice of the threat to life, especially when combined with other signals. I am lucky. I offer this as a warning to others not to do as I did. I hope I have now got these right, but will refine/correct them if required.


    I am one hundred

    I am big

    I am fat

    I am scarily magnificent

    You want to dream of being me

    I am it

    I am ninety-nine

    I am a breath of fresh air

    I am lungs full of oxygen

    I am life

    I am joy

    I am the next best thing to perfection

    I am ninety-eight

    I am ninety-seven

    I am friends with ninety-nine

    I skip around the earth giving life to everything

    I walk through blood

    I run through veins

    I am ninety-six

    I am ninety-five

    I am ninety-four

    I am OK

    I pump

    I give life

    I am ninety-three

    I am all right

    I flow

    I pump

    I want to be bigger

    But I am OK

    I am ninety-two

    I am not so good

    I am a warning

    Take notice of me

    I want to be bigger

    I need to be bigger

    I am ninety-one

    I am ninety

    Help me, please

    I should be bigger

    I need to grow

    I need more

    Help me. Help me. I am confused

    I think I am eighty-nine

    I don’t know what I am

    I do not have stuff

    I need to do something

    What is it I do?

    I.. Eight-eight..



    Need.. urgent..

    Call.. help..



    © AJJ 2012


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