Been a member on here a while,but rarely come on as much as i should..I was told i had Copd a while back almost 2 years now..I also have Asthma..I am on Symbicort and have found this a great help,apart from a little weight gain esp in my face..
Had an appointment with the nurse this week and she now thinks i may have Alpha1.. But am having too go back for another Spirometry and a blood test...Not sure what too think..Is it just as bad or should i be releved is not Copd...Bit confused if am honest..I don"t smoke,i gave up over 10 years ago now..I look after myself,bit of a fitness freak really..Am in my early 40s.. Any advice as i got too wait a month now and i keep thinking about it...Thank You....
For your own peace of mind, have a chat with the BLF Helpline next week. They can talk with you about the various conditions and tests.
I know there are many on here who will want to help too, I've no personal experience of Alpha1 so will not comment on which is worse as I can't relate to it.
If you feel good in yourself and can lead a pretty normal life then that's a good start
A friend of mine has Alpha 1 antitrypsin deficiency, which is a cause of COPD, just as cigarette smoking is. Though as it is a different disease there are other issues too. Spirometry does not show this. I would be asking for an appointment with a consultant. Look at this for further info:
i have also been told my copd is probably caused by Alpha 1 which is a inherited condition
Sorry - I'm going to sound awful here but has Symbicort given you a rounded face? I've just started on it and I can't bear the thought of going back to having a moon face.
I have been on Symbicort for 8 years and neither I or my OH would consider I have a round face. Typically it is with Prednisone that a rounded face (amongst other things) is a side effect and then if taken long term as opposed to a couple of weeks. Stay well.
Thanks. Been there, been on the Pred (for 2 years) and definitely got/had the moonface. It's only just gone and I was very worried I'd get it back! Sorry - I must sound very vain!!
Hello Scottyboy, I'm waiting for results of tests for Alpha 1 antitrypsin deficiency as well as they think my Emphysema could be genetic. It is a 'protein' our bodies are not producing for some reason, might be an idea to 'google' it again I've forgotton what I read now sorry, hopefully someone else can help, take care, Carol
Thanks for all your above answers..
Too MarieWF..My weight has gone up since being on Symbicort even though I was dieting and very active..It dosen"t mean yours will..Its a good medication I have found personally and works well..
I have read up on Alpha1 since posting and maybe this is what has caused Copd as I wasn"t a very heavy smoker and could take it or leave it..Will just have to wait for the tests and results and go from there am guessing...x
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
My first post is a bit of a moan, sorry......
Advice needed please
Advice re azithromycin and vaccine please
A Bit Of A Scare
Desperate for some advice and information please
